{"id":1560,"date":"2017-09-04T13:37:06","date_gmt":"2017-09-04T18:37:06","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1560"},"modified":"2017-09-04T13:37:06","modified_gmt":"2017-09-04T18:37:06","slug":"felix","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2017\/09\/04\/felix\/","title":{"rendered":"INDIVIDU AVEC LGMD : Felix"},"content":{"rendered":"

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n

Nom<\/strong>: F\u00e9lix\u00a0 L'\u00e2ge<\/strong>: 35 ans\"\"<\/a><\/p>\n

Pays<\/strong>: Br\u00e9sil<\/p>\n

LGMD Sous-type<\/strong>: LGMD2A \/ Calpa\u00efnopathie<\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 11 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

Mes premiers sympt\u00f4mes ont \u00e9t\u00e9 les suivants : chutes, fatigue, marche sur la pointe des pieds. De plus, je n'arrivais pas \u00e0 suivre les autres personnes de mon \u00e2ge dans les activit\u00e9s physiques.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n

Oui, j'ai une s\u0153ur atteinte de LGMD2A.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

Le plus grand d\u00e9fi a \u00e9t\u00e9 de m'adapter aux changements de mon corps, de d\u00e9velopper des formes de d\u00e9fense contre les chutes probables, des tactiques pour monter et descendre les escaliers, de faire attention \u00e0 ne pas marcher \u00e0 la l\u00e9g\u00e8re sur certains obstacles et de toujours chercher une chaise pour me soutenir - en particulier lorsque je me l\u00e8ve d'une chaise et du sol. J'essaie toujours de faire attention \u00e0 tout ce qui pourrait me faire tomber.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

J'ai appris \u00e0 jouer de la guitare ! C'\u00e9tait un grand d\u00e9fi parce que la difficult\u00e9 \u00e9tait \u00e9norme - surtout lorsqu'il s'agissait de tenir l'instrument et de faire le mouvement avec mes bras pour jouer les cordes de la guitare. Cela peut \u00eatre tr\u00e8s fatigant, mais j'y arrive quand m\u00eame.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

La vie avec le LGMD m'a appris et m'apprend aujourd'hui \u00e0 me battre et \u00e0 donner plus de valeur \u00e0 la vie. Survivre dans un monde aussi difficile demande beaucoup d'efforts et fait de moi une meilleure personne, en particulier dans mes relations avec les autres. Il y a des situations dans lesquelles nous vivons que seuls ceux qui partagent la m\u00eame lutte connaissent et comprennent. Dieu a un but dans toutes les vies de ce monde. Je pense que le LGMD m'a donn\u00e9 un sentiment dans la vie, le plus grand d\u00e9fi que je pouvais avoir. Nous sommes des adversaires et, comme dans tout bon combat, j'ai l'intention de me battre jusqu'au bout - en gagnant, bien s\u00fbr !<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Le monde doit conna\u00eetre la LGMD, car des personnes vivent avec cette maladie. Il est important de savoir comment aider la cause. Le fait de savoir cela ne nous rend pas meilleurs ou pires que les autres personnes qui ont des limitations physiques. Et, esp\u00e9rons-le, dans un avenir proche, le monde conna\u00eetra la plus grande des nouvelles : il existe un traitement pour cette maladie !<\/p>\n

\u00a0<\/strong><\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

Si j'\u00e9tais gu\u00e9ri demain, je glorifierais le nom de Dieu. Je ferais des choses comme jouer au football, monter des escaliers, m'asseoir et me lever sans l'aide de personne. Ce sont ces activit\u00e9s quotidiennes simples auxquelles la plupart des gens n'accordent pas beaucoup d'attention, mais qui sont des r\u00eaves pour ceux d'entre nous qui se d\u00e9placent en fauteuil roulant. La d\u00e9couverte d'un rem\u00e8de sera une victoire \u00e9pique, une victoire qui figurera dans les livres d'histoire.<\/p>\n

 <\/p>\n

* Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Felix\u00a0 Age:\u00a0 35 yrs. old Country:\u00a0 […]<\/p>","protected":false},"author":1,"featured_media":1559,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[81,82],"class_list":["post-1560","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-brazil","tag-lgmd2a-calpainopathy"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Felix - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2017\/09\/04\/felix\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Felix - 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