{"id":1591,"date":"2017-09-27T13:12:40","date_gmt":"2017-09-27T18:12:40","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1591"},"modified":"2017-09-27T13:12:40","modified_gmt":"2017-09-27T18:12:40","slug":"becky","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Becky"},"content":{"rendered":"

LGMD \"Spotlight Interview\" (en anglais) \u00a0<\/strong><\/p>\n

Nom<\/strong>: Becky \u00a0\u00a0L'\u00e2ge<\/strong>: 35 ans\"\"<\/a><\/p>\n

Pays :<\/strong> \u00c9TATS-UNIS<\/p>\n

LGMD Sous-type<\/strong>: LGMD2B<\/p>\n

 <\/p>\n

\u00c0 QUEL \u00c2GE AVEZ-VOUS \u00c9T\u00c9 DIAGNOSTIQU\u00c9 ? <\/strong><\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e en 2009, \u00e0 l'\u00e2ge de 27 ans.<\/p>\n

QUELS ONT \u00c9T\u00c9 VOS PREMIERS SYMPT\u00d4MES : <\/strong><\/p>\n

Mes premiers sympt\u00f4mes ont \u00e9t\u00e9 des difficult\u00e9s \u00e0 monter des marches, \u00e0 me lever du sol ou \u00e0 me lever d'un si\u00e8ge ou des toilettes.<\/p>\n

AVEZ-VOUS D'AUTRES MEMBRES DE VOTRE FAMILLE QUI SONT ATTEINTS DE LA LGMD : <\/strong><\/p>\n

Aucun autre membre de la famille n'est atteint de LGMD.<\/p>\n

QUELS SONT, SELON VOUS, LES PLUS GRANDS D\u00c9FIS \u00c0 RELEVER POUR VIVRE AVEC LA LGMD : <\/strong><\/p>\n

Le plus grand d\u00e9fi pour moi est la partie mentale de la compr\u00e9hension de mes limites. Savoir que ma vie n'est pas celle que j'avais imagin\u00e9e. Savoir ce que mon mari et moi avons d\u00fb changer pour faire face \u00e0 cette maladie qui ne cesse de progresser.<\/p>\n

QUELLE EST VOTRE PLUS GRANDE R\u00c9ALISATION : <\/strong><\/p>\n

Je pense que ma plus grande r\u00e9ussite apr\u00e8s avoir \u00e9t\u00e9 diagnostiqu\u00e9e avec cette maladie est mon mariage. Nous nous sommes mari\u00e9s deux mois avant que je ne commence \u00e0 passer tous les tests pour d\u00e9terminer ce qui n'allait pas. La maladie et la sant\u00e9 sont arriv\u00e9es bien plus t\u00f4t que nous ne l'aurions jamais imagin\u00e9, mais nous sommes plus forts aujourd'hui gr\u00e2ce \u00e0 cela.<\/p>\n

COMMENT LA LGMD VOUS A-T-ELLE INFLUENC\u00c9 POUR QUE VOUS DEVENIEZ LA PERSONNE QUE VOUS \u00caTES AUJOURD'HUI : <\/strong><\/p>\n

Cette maladie change la vie. Malgr\u00e9 ma d\u00e9pendance \u00e0 l'\u00e9gard de ma famille et de mes amis, je suis encore assez ind\u00e9pendante. Je conduis avec des commandes manuelles, je suis pleine de ressources pour continuer \u00e0 faire des choses par moi-m\u00eame et, d'une certaine mani\u00e8re, m\u00eame si mes muscles sont plus faibles, je suis plus forte. Cela ne s'est pas produit d'un seul coup. Il m'a fallu du temps pour r\u00e9aliser que je suis une personne forte m\u00eame si mes muscles sont faibles.<\/p>\n

QUE VOULEZ-VOUS QUE LE MONDE SACHE \u00c0 PROPOS DE LA LGMD : <\/strong><\/p>\n

Je veux que le monde sache et comprenne que cette maladie est un v\u00e9ritable d\u00e9fi. Parfois, mon cerveau ne se souvient pas que je ne peux pas faire quelque chose et je commence \u00e0 le faire pour me rendre compte que je ne peux pas. Je veux qu'ils sachent qu'\u00e0 partir du moment o\u00f9 une personne atteinte de LGMD se r\u00e9veille, elle doit imm\u00e9diatement penser \u00e0 la mani\u00e8re dont elle va aborder la journ\u00e9e. Le monde doit savoir que cette maladie, m\u00eame si elle est quelque peu invisible, est bien r\u00e9elle et qu'il est extr\u00eamement difficile d'y faire face. Ce n'est pas parce qu'une personne vit avec cette maladie qu'elle va bien ou qu'elle est gu\u00e9rie. Nous devons continuer \u00e0 vivre notre vie, m\u00eame si, derri\u00e8re notre sourire, nous sommes \u00e9puis\u00e9s ou bless\u00e9s. Le monde doit aussi savoir qu'il y aura un rem\u00e8de. Il y a tellement de gens qui travaillent sur ce sujet et les progr\u00e8s r\u00e9alis\u00e9s au cours des quelques ann\u00e9es o\u00f9 j'ai \u00e9t\u00e9 diagnostiqu\u00e9e ont \u00e9t\u00e9 \u00e9normes.<\/p>\n

SI VOTRE LGMD POUVAIT \u00caTRE \"GU\u00c9RIE\" DEMAIN, QUELLE SERAIT LA PREMI\u00c8RE CHOSE QUE VOUS VOUDRIEZ FAIRE : <\/strong><\/p>\n

Cette liste est LONGUE....mais je commencerais par courir. Mes jambes n'ont pas boug\u00e9 de cette fa\u00e7on depuis si longtemps.<\/p>\n

 <\/p>\n

* Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d \u00a0 Name: Becky \u00a0\u00a0Age:\u00a0 35 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1590,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-1591","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Becky - 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