{"id":1618,"date":"2017-10-16T19:18:11","date_gmt":"2017-10-17T00:18:11","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1618"},"modified":"2017-10-16T19:18:11","modified_gmt":"2017-10-17T00:18:11","slug":"vicki","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2017\/10\/16\/vicki\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Vicki"},"content":{"rendered":"

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/span><\/p>\n

Nom<\/strong><\/span>:\u00a0 Vicki \u00a0\u00a0L'\u00e2ge<\/strong>: 44 yrs. old\"\"<\/a><\/span><\/p>\n

Pays<\/strong>: Canada<\/span><\/p>\n

LGMD Sous-type<\/strong>: LGMD2A \/ Calpa\u00efnopathie<\/span><\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:\u00a0<\/span><\/p>\n

I was diagnosed at the age of 22.<\/span><\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/span><\/p>\n

I was having difficulty climbing stairs.\u00a0 The Doctor told me that the tendons in my ankles were short, he then sent me to a neurologist for a second opinion to see if there was an underlying condition as to <\/span>way they were short.\u00a0 My neurologist sent me to have a muscle biopsy in Montreal.<\/span><\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?\u00a0 <\/strong><\/span><\/p>\n

No, I am the only person with LGMD in my family.<\/span><\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:\u00a0<\/span><\/p>\n

There are many challenges; to stay independent alone in my home, and to stay active in my community and with friends.\u00a0 It is challenging when planning to go somewhere new.\u00a0 I have to ensure it is accessible for a wheelchair and I have to ask about the washroom facilities.\u00a0 It is also challenging to stay positive- when you can\u2019t perform an ordinary task, go somewhere you want to go, or just see others moving so easily in public.\u00a0<\/span><\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/span><\/p>\n

My family is my first great accomplishment- My husband, Dean, and our son, Tyler.\u00a0 They make my life worth living; they make me feel like I can do anything.\u00a0 I am very blessed.\u00a0 I also take great pride in my MD fundraising.\u00a0 In the <\/span>past, I have organized a yearly auction, online FB auctions, yard sales, raffles, etc.\u00a0 My latest idea has been making and selling felt ornaments.\u00a0 I started making them January 2016.\u00a0 I design a pattern, cut it out on felt, hand sew them together then market them on Facebook. They have their own FB page: \u201cVicki\u2019s Handmade Ornaments for MD\u201d.\u00a0 My husband and I have donated all the supplies to make them, I have even gotten business cards.\u00a0 ALL proceeds from the sale of the ornaments go to MD Canada every year in June for our Walk for Muscular Dystrophy.\u00a0 Since starting I have sold ~$4000 worth of ornaments.\u00a0 My fundraising goal for the walk for MD has been $6000 for the past many years.\u00a0 I always find a way to exceed my goal.<\/span><\/p>\n

My husband and I started a healthy eating regime back in March.\u00a0 We have both gotten lighter, and healthier because of it.\u00a0 I was able to stop taking the 3 medications I was taking for inflammation, pain and high blood pressure.\u00a0 We feel great and I love to spread the word about it!<\/span><\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?\u00a0 <\/strong><\/span><\/p>\n

I am learning more and more about myself every day.\u00a0 My challenges and past experiences have made me learn so many things about myself.\u00a0 I have learned to love myself for who I am and not for what I can or cannot do.\u00a0 I have become a strong, self-confident person.\u00a0 I have realized that I am who I am and the wheelchair does not define me!\u00a0 I also belong to a local disability group.\u00a0 We go into middle schools every Spring and talk about living with a disability, and how you can help people with disabilities.\u00a0 My public speaking has come a long way because of this.\u00a0<\/span><\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:\u00a0<\/span><\/p>\n

It is rare but it is also a common disability.\u00a0 Some of us liked to be offered a helping hand, some like to do it themselves however difficult it may be.\u00a0 Everyone is different.\u00a0 Ask before helping someone and never be turned off by someone with a negative attitude or personality.\u00a0 I always smile because I know what I have in my life and LGMD cannot take my smile away from me!<\/span><\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:\u00a0<\/span><\/p>\n

There are probably many things that I would do: travel, swim, run, go shopping on my own, work, exercise, visit my friends\u2019 houses with stairs, get in and out of the <\/span>bathtub, clean the house, I am sure I could come up with a long list\u2026\u00a0 A lot of these things I can do now, but in a modified way.\u00a0 It would be nice to do these things without thinking, in a more carefree way.<\/span><\/p>\n

 <\/p>\n

* Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web. <\/span>\u00e0 https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/span><\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Vicki \u00a0\u00a0Age: 44 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1617,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[38,82],"class_list":["post-1618","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-canada","tag-lgmd2a-calpainopathy"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Vicki - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2017\/10\/16\/vicki\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Vicki - 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