{"id":1633,"date":"2017-11-06T10:00:14","date_gmt":"2017-11-06T16:00:14","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1633"},"modified":"2017-11-06T10:00:14","modified_gmt":"2017-11-06T16:00:14","slug":"fred","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Fred"},"content":{"rendered":"

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n

Nom<\/strong>: Fred \u00a0\u00a0L'\u00e2ge<\/strong>: 36 ans\"\"<\/a><\/p>\n

Pays<\/strong>: \u00c9tats-Unis<\/p>\n

LGMD Sous-type<\/strong>: LGMD2A \/ Calpa\u00efnopathie<\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 13 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

Avec le recul, j'ai toujours \u00e9t\u00e9 l\u00e9g\u00e8rement plus lent que les autres enfants, mais je ne peux pas dire que mes parents ou moi-m\u00eame ayons remarqu\u00e9 un seul sympt\u00f4me. J'ai \u00e9t\u00e9 diagnostiqu\u00e9 par hasard. J'\u00e9tais all\u00e9 skier avec un groupe religieux et je me suis cass\u00e9 la jambe. Lorsque je me suis rendu aux urgences de l'h\u00f4pital pour ma jambe cass\u00e9e, un m\u00e9decin a remarqu\u00e9 que je n'\u00e9tais pas aussi fort que j'aurais d\u00fb l'\u00eatre \u00e0 cet \u00e2ge. Il a donc proc\u00e9d\u00e9 \u00e0 une biopsie musculaire. Au d\u00e9part, on m'a diagnostiqu\u00e9 la maladie de Becker, avant les tests ADN.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ? <\/strong><\/p>\n

Non, je suis le seul.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

Le plus grand d\u00e9fi pour moi est de ne pas pouvoir tenir mon enfant de 7 mois sans aide. Je dois constamment d\u00e9fendre mes int\u00e9r\u00eats dans le cadre de cette maladie. Je n'avais jamais remarqu\u00e9 \u00e0 quel point les gens avaient des attitudes \"incapables\". Le dernier d\u00e9fi pour moi serait de ne pas pouvoir rendre visite \u00e0 mes amis et \u00e0 ma famille.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

J'ai tellement de r\u00e9alisations \u00e0 mon actif, mais si je ne devais en choisir qu'une, je dirais que j'ai r\u00e9ussi \u00e0 m'affranchir du SSI. Apr\u00e8s le diagnostic, j'avais perdu tout espoir d'avoir un jour un emploi, une voiture, une maison, une famille, etc. Aujourd'hui, je suis r\u00e9partiteur pour la police d'\u00c9tat, je conduis, j'ai une belle famille, je cherche actuellement \u00e0 acheter ma premi\u00e8re maison, et je suis optimiste quant au fait que lorsque le moment sera venu et que je ne pourrai plus physiquement faire le travail que j'ai, Dieu me fournira une autre opportunit\u00e9.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ? <\/strong><\/p>\n

Le LGMD m'a appris \u00e0 me battre pour ce que je veux. Il m'a appris que je ne suis jamais aussi limit\u00e9 que je le pense. Tout est possible.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Cette maladie n'a pas encore \u00e9t\u00e9 gu\u00e9rie mais, avec leur aide, elle peut l'\u00eatre.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

Prendre mon petit gar\u00e7on, le serrer fort dans mes bras, le lancer en l'air et le rattraper.<\/p>\n

 <\/p>\n

* Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/u><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Fred \u00a0\u00a0Age: 36 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1632,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-1633","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Fred - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Fred - 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