{"id":1692,"date":"2018-02-13T09:31:28","date_gmt":"2018-02-13T15:31:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1692"},"modified":"2018-02-13T09:31:28","modified_gmt":"2018-02-13T15:31:28","slug":"younis","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Younis"},"content":{"rendered":"

NOM<\/strong>: Younis\u00a0 AGE<\/strong>: 14 ans<\/span>
\n PAYS<\/strong>: Syrie<\/span>
\n SOUS-TYPE LGMD<\/strong>: LGMD 2C\"\"<\/a><\/span><\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/strong><\/span><\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 7 ans.<\/span><\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong><\/span><\/p>\n

Les sympt\u00f4mes ont commenc\u00e9 \u00e0 appara\u00eetre lorsque j'avais 5 ans. Enfant, je marchais sur les orteils.<\/span><\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/span><\/p>\n

Oui, mon fr\u00e8re a\u00een\u00e9 et deux de mes oncles (les fr\u00e8res de ma m\u00e8re) ont \u00e9galement \u00e9t\u00e9 diagnostiqu\u00e9s comme \u00e9tant atteints de LGMD2C. (Mon fr\u00e8re a\u00een\u00e9 a immigr\u00e9 en Allemagne).<\/span><\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/span><\/p>\n

Pour moi, \u00e0 l'heure actuelle, les plus grands d\u00e9fis sont de courir, de monter les escaliers et d'aller aux toilettes de mani\u00e8re autonome.<\/span><\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/span><\/p>\n

Je ne sais pas quelle est ma plus grande r\u00e9ussite, mais je suis fi\u00e8re de pouvoir encore marcher et d'\u00eatre encore assez ind\u00e9pendante. Cependant, l'un des d\u00e9fis les plus difficiles que j'ai d\u00fb relever dans la vie a \u00e9t\u00e9 de terminer mes \u00e9tudes malgr\u00e9 les \"circonstances de guerre et de d\u00e9placement\" en Syrie.<\/span><\/p>\n

COMMENT LA LGMD VOUS A-T-ELLE INFLUENC\u00c9 POUR QUE VOUS DEVENIEZ LA PERSONNE QUE VOUS \u00caTES AUJOURD'HUI :<\/strong><\/span><\/p>\n

Le LGMD m'a appris \u00e0 \u00eatre patient. Il m'a \u00e9galement permis d'\u00eatre plus conscient et plus ouvert.<\/span><\/p>\n

QUE VOULEZ-VOUS QUE LE MONDE SACHE \u00c0 PROPOS DE LA LGMD :<\/strong><\/span><\/p>\n

Je veux que le monde entier en sache plus sur cette maladie et sur les diff\u00e9rents types de LGMD. De plus, je veux que les gens sachent qu'il est essentiel de poursuivre la recherche sur la LGMD pour trouver un rem\u00e8de et un traitement \u00e0 ces maladies. J'esp\u00e8re que les scientifiques trouveront un rem\u00e8de \u00e0 cette maladie. Je souhaite \u00e9galement que les gens prennent des mesures pour la pr\u00e9venir.<\/span><\/p>\n

SI VOTRE LGMD POUVAIT \u00caTRE \"GU\u00c9RIE\" DEMAIN, QUELLE SERAIT LA PREMI\u00c8RE CHOSE QUE VOUS VOUDRIEZ FAIRE :<\/strong><\/span><\/p>\n

Si la LGMD \u00e9tait gu\u00e9rie demain, la premi\u00e8re chose que je ferais serait de courir vite, puis de jouer au football avec mes amis.<\/span><\/p>\n

 <\/p>\n

* Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante<\/span> https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0 <\/u><\/p>\n

* Merci de LIQUER, COMMENTER et PARTAGER cet article pour aider \u00e0 sensibiliser le public \u00e0 la LGMD !<\/span><\/p>","protected":false},"excerpt":{"rendered":"

NAME:\u00a0 Younis\u00a0 AGE:\u00a0 14 yrs. old COUNTRY:\u00a0 Syria LGMD SUB-TYPE:\u00a0 […]<\/p>","protected":false},"author":1,"featured_media":1690,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[89],"class_list":["post-1692","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-syria"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Younis - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Younis - 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