{"id":1915,"date":"2018-04-27T10:04:04","date_gmt":"2018-04-27T15:04:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1915"},"modified":"2018-04-27T10:04:04","modified_gmt":"2018-04-27T15:04:04","slug":"zia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","title":{"rendered":"INDIVIDU AVEC LGMD : Zia"},"content":{"rendered":"

LGMD SPOTLIGHT INTERVIEW<\/strong><\/p>\n

Nom<\/strong>: Zia \u00a0\u00a0L'\u00e2ge<\/strong>: 26\"\"<\/a><\/p>\n

Pays<\/strong>: Australie<\/p>\n

LGMD Sous-type :<\/strong> Dystrophie musculaire des ceintures de type 2i<\/p>\n

 <\/p>\n

\u00c0 QUEL \u00c2GE AVEZ-VOUS \u00c9T\u00c9 DIAGNOSTIQU\u00c9 ?<\/strong>:<\/p>\n

On m'a diagnostiqu\u00e9 une dystrophie musculaire \u00e0 l'\u00e2ge de deux ans. Apr\u00e8s de nombreux tests et visites chez le m\u00e9decin, j'ai re\u00e7u un diagnostic complet de dystrophie musculaire des ceintures de type 2i \u00e0 l'\u00e2ge de 22 ans.<\/p>\n

QUELS ONT \u00c9T\u00c9 LES PREMIERS SYMPT\u00d4MES ?<\/strong>:<\/p>\n

\u00c0 l'\u00e2ge d'un an, ma m\u00e8re a remarqu\u00e9 que ma s\u0153ur jumelle et moi ne marchions pas, nous ne rampions m\u00eame pas correctement, nous tra\u00eenions plut\u00f4t sur nos fesses. C'est \u00e0 ce moment-l\u00e0 que notre m\u00e8re a compris que quelque chose n'allait pas.<\/p>\n

AVEZ-VOUS D'AUTRES MEMBRES DE VOTRE FAMILLE QUI SONT ATTEINTS DE LA LGMD :<\/strong><\/p>\n

Seule ma s\u0153ur jumelle Cyanne est atteinte d'une dystrophie musculaire des ceintures de type 2i.<\/p>\n

QUELS SONT, SELON VOUS, LES PLUS GRANDS D\u00c9FIS \u00c0 RELEVER POUR VIVRE AVEC LA LGMD ?<\/strong>:<\/p>\n

Chaque jour est le plus grand d\u00e9fi pour moi, car je dois compter enti\u00e8rement sur ma m\u00e8re et sur les personnes qui s'occupent de moi pour me sortir du lit le matin et pour tout ce qui se passe entre les deux, afin que je puisse vivre ma vie.<\/p>\n

QUELLE EST VOTRE PLUS GRANDE R\u00c9ALISATION ?<\/strong>:<\/p>\n

Oh, j'ai accompli beaucoup de choses dans ma vie et j'en ai encore beaucoup d'autres \u00e0 venir ! Ma plus grande r\u00e9ussite serait d'avoir pu \u00e9tudier. J'\u00e9tudie actuellement un certificat IV en services juridiques. En 2016, j'ai obtenu mon certificat IV en gestion des petites entreprises et j'ai lanc\u00e9 ma propre entreprise d'\u00e9dition et de relecture, Wondrous Words with Zia. Je suis \u00e9galement titulaire d'un Advanced Diploma in Arts (Professional Writing), d'un Certificate in Professional Editing and Proofreading, ainsi que d'un Society of Editors (SA) Award for Highest Achievement in Editing. J'ai \u00e9galement eu le plaisir de travailler \u00e0 la biblioth\u00e8que pendant six mois avec des personnes formidables. Je suis \u00e9galement tr\u00e8s impliqu\u00e9e dans la communaut\u00e9. Avec une quinzaine d'autres personnes, je fais partie du Comit\u00e9 consultatif de la jeunesse (CCJ). Nous travaillons en \u00e9troite collaboration avec les membres du Conseil, nous assistons aux r\u00e9unions du Conseil, nous exprimons nos pr\u00e9occupations et nos opinions pour les jeunes de Whyalla et nous planifions et organisons des \u00e9v\u00e9nements.<\/p>\n

COMMENT LA LGMD VOUS A-T-ELLE INFLUENC\u00c9 POUR QUE VOUS DEVENIEZ LA PERSONNE QUE VOUS \u00caTES AUJOURD'HUI :<\/strong><\/p>\n

Je me concentre sur ce que je peux faire plut\u00f4t que sur ce que je ne peux pas faire. Ma devise est la suivante : \"Je fais ce que je peux et j'aime ce que je peux faire ! \"Je fais ce que je peux et j'aime ce que je peux faire\".<\/p>\n

QUE VOULEZ-VOUS QUE LE MONDE SACHE SUR LA LGMD ?<\/strong>:<\/p>\n

Je voudrais que le monde sache que vivre avec la LGMD est un d\u00e9fi. Le LGMD affecte votre<\/p>\n

Il faut savoir que les muscles ne sont pas votre esprit et que je suis toujours capable de faire partie de la vie de tous les jours.<\/p>\n

SI VOTRE LGMD POUVAIT \u00caTRE \"GU\u00c9RIE\" DEMAIN, QUELLE SERAIT LA PREMI\u00c8RE CHOSE QUE VOUS SOUHAITERIEZ FAIRE ?<\/strong>:<\/p>\n

Je courrais, je courrais, je courrais, je courrais et... je pense que vous avez compris l'image lol ?<\/p>\n

 <\/p>\n

* Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>\n

* Merci de LIQUER, COMMENTER et PARTAGER cet article pour aider \u00e0 sensibiliser le public \u00e0 la LGMD !<\/p>","protected":false},"excerpt":{"rendered":"

LGMD SPOTLIGHT INTERVIEW Name: Zia \u00a0\u00a0Age: 26 Country: Australia LGMD […]<\/p>","protected":false},"author":1,"featured_media":1913,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[96],"class_list":["post-1915","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-australia"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Zia - 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