{"id":2254,"date":"2018-09-18T21:34:38","date_gmt":"2018-09-19T02:34:38","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2254"},"modified":"2018-09-18T21:34:38","modified_gmt":"2018-09-19T02:34:38","slug":"aric","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/09\/18\/aric\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Aric"},"content":{"rendered":"

LGMD \"Spotlight Interview\" (en anglais)<\/strong><\/span><\/p>\n

Nom<\/strong><\/span>:\u00a0 Aric \u00a0\u00a0L'\u00e2ge<\/strong>: 22 ans\"\"<\/a><\/span><\/p>\n

Pays<\/strong>: \u00c9tats-Unis<\/span><\/p>\n

LSous-type GMD<\/strong>: LGMD2B<\/span><\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/span><\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 21 ans.<\/span><\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/span><\/p>\n

Mes premiers sympt\u00f4mes ont \u00e9t\u00e9 l'impossibilit\u00e9 de monter les escaliers ou de se tenir sur la pointe des pieds.<\/span><\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/span><\/p>\n

Ce n'est pas le cas.<\/span><\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/span><\/p>\n

Dans la vie de tous les jours, j'ai du mal \u00e0 monter les escaliers et \u00e0 sortir de ma voiture - des choses auxquelles la plupart des gens ne penseraient jamais. Je pense que c'est l\u00e0 le plus grand d\u00e9fi : essayer d'aider les gens \u00e0 mieux comprendre ce que vivent des personnes comme moi. Il est difficile d'expliquer pourquoi je ne peux plus faire les activit\u00e9s quotidiennes normales comme avant.<\/span><\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/span><\/p>\n

Ces derni\u00e8res ann\u00e9es, alors que j'\u00e9tais au lyc\u00e9e, j'ai accompli des exploits dans le domaine du sport et des \u00e9tudes. Dans les quelques emplois que j'ai occup\u00e9s, j'ai atteint des objectifs dont aucun autre jeune ne s'est jamais approch\u00e9. Je pense honn\u00eatement que ma plus grande r\u00e9ussite est de ne pas avoir abandonn\u00e9 le combat que je m\u00e8ne actuellement. La force et le message que je dois me dire chaque jour pour sortir du lit sont ma plus grande r\u00e9ussite. Je continuerai \u00e0 me battre pour une vie meilleure pour moi et pour les autres personnes atteintes de la maladie, je suis encore tr\u00e8s jeune et je crois que je peux maintenant faire une diff\u00e9rence dans ce monde.<\/span><\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/span><\/p>\n

Le LGMD a fait de moi une personne plus forte et l'ironie de cette d\u00e9claration est assez amusante. Je consid\u00e8re chaque jour comme une b\u00e9n\u00e9diction, j'ai r\u00e9cemment cr\u00e9\u00e9 ma propre \u00e9quipe pour un \u00e9v\u00e9nement local de lutte contre le DM et je travaille actuellement sur mon propre \u00e9v\u00e9nement ! Je veux simplement am\u00e9liorer les choses et donner de l'espoir \u00e0 tous les enfants et adultes qui traversent cette \u00e9preuve.<\/span><\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/span><\/p>\n

Je veux juste que le monde sache la lutte que nous menons, combien il peut \u00eatre difficile de continuer \u00e0 vivre au quotidien. Je veux que le monde sache.<\/span><\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/span><\/p>\n

Si j'\u00e9tais gu\u00e9ri demain, je parlerais honn\u00eatement de courir, j'inviterais toute ma famille et mes amis et nous courrions aussi loin que possible comme Forest Gump. Nous ririons et pleurerions tout au long du parcours. Le monde entier saurait que je suis un <\/span>gu\u00e9ri homme !<\/span><\/p>\n

 <\/p>\n

Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web. <\/span>au : https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” Name:\u00a0 Aric \u00a0\u00a0Age:\u00a0 22 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":2253,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-2254","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Aric - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/09\/18\/aric\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Aric - 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