{"id":2266,"date":"2018-09-24T12:51:12","date_gmt":"2018-09-24T17:51:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2266"},"modified":"2018-09-24T12:51:12","modified_gmt":"2018-09-24T17:51:12","slug":"rodrigo","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/09\/24\/rodrigo\/","title":{"rendered":"Personne atteinte de LGMD : Rodrigo"},"content":{"rendered":"

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/span><\/p>\n

Nom<\/strong><\/span>:\u00a0 Rodrigo\u00a0 L'\u00e2ge<\/strong>: 29 ans\u00a0\u00a0\"\"<\/a><\/span><\/p>\n

Pays<\/strong>: \u00c9tats-Unis<\/span><\/p>\n

LGMD Sous-type :\u00a0 <\/strong>LGMD2B \/ <\/span>Myoshi Myopathie<\/span><\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/span><\/p>\n

On m'a diagnostiqu\u00e9 une LGMD2B \u00e0 l'\u00e2ge de 24 ans.<\/span><\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/span><\/p>\n

Mes sympt\u00f4mes sont apparus vers l'\u00e2ge de 17 ans.<\/span><\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/span><\/p>\n

J'ai deux fr\u00e8res qui pr\u00e9sentent des sympt\u00f4mes mais qui n'ont pas \u00e9t\u00e9 diagnostiqu\u00e9s.<\/span><\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/span><\/p>\n

La mobilit\u00e9 est mon plus grand d\u00e9fi.<\/span><\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/span><\/p>\n

Ma plus grande r\u00e9ussite est d'avoir permis \u00e0 mon talent artistique de se r\u00e9v\u00e9ler.<\/span><\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/span><\/p>\n

Le LGMD m'a beaucoup influenc\u00e9 et m'a permis de devenir la personne que je suis aujourd'hui. Il m'a permis de voir la vie d'une mani\u00e8re compl\u00e8tement diff\u00e9rente. Il m'a forc\u00e9 \u00e0 me d\u00e9passer constamment, m\u00eame pour les plus petites t\u00e2ches, ce qui m'a permis de devenir r\u00e9silient et pers\u00e9v\u00e9rant. Il m'a \u00e9galement donn\u00e9 de l'empathie et je peux sympathiser avec ceux qui luttent aussi. Le LGMD m'a permis d'appr\u00e9cier tous les aspects de la vie et d'abandonner les comportements mat\u00e9rialistes.<\/span><\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/span><\/p>\n

Le monde doit tout d'abord savoir que nous existons. La dystrophie musculaire des ceintures peut \u00eatre gu\u00e9rie et le sera, mais il n'y a pas assez de gens qui le savent pour s'en pr\u00e9occuper. C'est une bonne chose qu'elle ne touche qu'un faible pourcentage de la population, mais nous sommes un groupe relativement important de personnes qui veulent r\u00e9ussir dans la vie. Nous recherchons \u00e9galement le bonheur, mais nous avons besoin de beaucoup plus d'aide de la part des autres. Le monde a besoin de savoir que nous contribuons encore \u00e0 ce que nous pouvons. Nous luttons, ne serait-ce que pour mettre un morceau de pain dans notre bouche, mais nous avons accept\u00e9 ces d\u00e9fis et \u00eatre forts est devenu notre seul mode de vie.<\/span><\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/span><\/p>\n

Je prendrais le chemin le plus rapide vers la gu\u00e9rison. Je partirais en courant comme l'a fait Forest Gump. Je dirais \u00e0 tous ceux qui se trouveraient sur mon chemin \u00e0 quel point j'appr\u00e9cie de bouger \u00e0 nouveau, dans le but de sensibiliser les gens \u00e0 la sant\u00e9 en g\u00e9n\u00e9ral et de souligner tout ce que nous tenons pour acquis. Chaque pas qu'une personne en bonne sant\u00e9 prend pour acquis, une personne atteinte de dystrophie musculaire aimerait pouvoir le faire.<\/span><\/p>\n

 <\/p>\n

Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/span><\/p>\n

 <\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

LGMD “SPOTLIGHT INTERVIEW” Name:\u00a0 Rodrigo\u00a0 Age: 29 yrs. old\u00a0\u00a0 Country: […]<\/p>","protected":false},"author":1,"featured_media":2265,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-2266","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nIndividual with LGMD: Rodrigo - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/09\/24\/rodrigo\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Individual with LGMD: Rodrigo - 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