{"id":2283,"date":"2018-09-29T08:54:12","date_gmt":"2018-09-29T13:54:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2283"},"modified":"2018-09-29T08:54:12","modified_gmt":"2018-09-29T13:54:12","slug":"nicole-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/09\/29\/nicole-2\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Nicole"},"content":{"rendered":"

LGMD \"Spotlight interview\" (en anglais)<\/strong><\/p>\n

\u00a0<\/strong>Nom<\/strong>: Nicole \u00a0\u00a0L'\u00e2ge<\/strong>: 24 ans\u00a0\u00a0\"\"<\/a><\/p>\n

Pays<\/strong>: \u00c9tats-Unis<\/p>\n

LGMD Sous-type<\/strong>: LGMD 2A \/ Calpa\u00efnopathie<\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e vers l'\u00e2ge de 12 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

Mes premiers sympt\u00f4mes ont \u00e9t\u00e9 la marche sur la pointe des pieds.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n

Personne d'autre dans ma famille n'est atteint de LGMD.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

Ces derniers temps, l'un de mes plus grands d\u00e9fis est de conserver mon \u00e9nergie et mon endurance tout au long de la journ\u00e9e. J'ai \u00e9galement du mal \u00e0 faire face \u00e0 l'\u00e9volution constante des sympt\u00f4mes et \u00e0 adapter ma vie.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

M<\/strong>a plus grande r\u00e9ussite est d'avoir un emploi \u00e0 temps plein et de travailler 40 heures par semaine (m\u00eame si c'est fatigant !).<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Le LGMD m'a permis de devenir une personne plus empathique et plus compr\u00e9hensive. Je pense que je ne serais pas ce que je suis sans le LGMD et j'en suis reconnaissante !<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Bien que la LGMD occupe une place importante dans ma vie, ce n'est pas la seule. Je n'ai pas honte d'avoir un handicap, mais je suis bien plus que cela.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

Je pense que j'aimerais aller courir J<\/p>\n

* Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0 <\/u><\/p>\n

* Merci de LIQUER, COMMENTER et PARTAGER cet article pour aider \u00e0 sensibiliser le public \u00e0 la LGMD !<\/p>","protected":false},"excerpt":{"rendered":"

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