{"id":2303,"date":"2018-10-08T09:01:34","date_gmt":"2018-10-08T14:01:34","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2303"},"modified":"2018-10-08T09:01:34","modified_gmt":"2018-10-08T14:01:34","slug":"dan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/10\/08\/dan\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Dan"},"content":{"rendered":"

LGMD \"Spotlight interview\" (en anglais)<\/strong><\/p>\n

Nom<\/strong>: Dan \u00a0L'\u00e2ge<\/strong>: 40 ans Ancienne\u00a0\u00a0\"\"<\/a><\/p>\n

Pays<\/strong>: \u00c9tats-Unis<\/p>\n

LGMD Sous-type<\/strong>: LGMD2i<\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 30 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

Mon premier sympt\u00f4me a \u00e9t\u00e9 une faiblesse des jambes. Je me souviens d'avoir enjamb\u00e9 un rouleau de moquette et d'\u00eatre tomb\u00e9e parce que ma jambe avait l\u00e2ch\u00e9. J'avais une d\u00e9marche inhabituelle. Et je n'\u00e9tais pas capable de m'asseoir une seule fois sans m'agripper \u00e0 mes jambes pour me relever.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ? <\/strong><\/p>\n

Non, je suis le seul de ma famille \u00e0 \u00eatre atteint de LGMD.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

Les escaliers sont sans aucun doute mon plus grand d\u00e9fi \u00e0 l'heure actuelle. En fait, toute marche dont la contremarche est sup\u00e9rieure \u00e0 3\u2033 est soit extr\u00eamement difficile, soit impossible \u00e0 monter. Au d\u00e9but, je compensais la faiblesse de mes jambes en utilisant mes bras sur la rampe pour monter les escaliers, mais ces derni\u00e8res ann\u00e9es, la force de mes bras a \u00e9t\u00e9 compromise.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

J'ai accompli de nombreuses petites victoires. L'une d'entre elles est d'avoir pu traverser le pont de Brooklyn \u00e0 New York. Mais ma plus grande r\u00e9ussite est d'avoir accept\u00e9 et embrass\u00e9 ma maladie (LGMD), ce qui m'a ouvert beaucoup plus de portes et de possibilit\u00e9s dans ma vie. J'ai appris que ma maladie ne d\u00e9finit pas qui je suis en tant que personne.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ? <\/strong><\/p>\n

Le LGMD m'a appris beaucoup de choses dans ma vie, mais la plus importante est la patience. J'ai toujours \u00e9t\u00e9 une personne patiente, mais j'ai appris que les choses ne m'arrivent pas selon mon emploi du temps, elles m'arrivent quand je suis pr\u00eate \u00e0 les recevoir.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

    \n
  1. La dystrophie musculaire des ceintures n'est pas un v\u00eatement.<\/li>\n
  2. La LGMD est simplement un test, nous passons tous par une sorte de test dans la vie, le mien est la LGMD. C'est une question de \"choix\" dans la mani\u00e8re dont je vais r\u00e9agir et ce que je vais faire \u00e0 ce sujet. Je n'ai pas le droit de faire moins que les autres. Oui, j'ai la dystrophie musculaire des ceintures, mais elle ne m'aura jamais.<\/li>\n<\/ol>\n

    Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

    J'irais courir !<\/p>\n

    Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

    LGMD \u201cSpotlight interview\u201d Name:\u00a0 Dan \u00a0Age:\u00a0 40 Yrs. Old\u00a0\u00a0 Country: […]<\/p>","protected":false},"author":1,"featured_media":2302,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-2303","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Dan - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/10\/08\/dan\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dan - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSpotlight interview\u201d Name:\u00a0 Dan \u00a0Age:\u00a0 40 Yrs. 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