{"id":2357,"date":"2018-12-11T14:39:46","date_gmt":"2018-12-11T20:39:46","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2357"},"modified":"2018-12-11T14:39:46","modified_gmt":"2018-12-11T20:39:46","slug":"individual-with-lgmd-melissa","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/12\/11\/individual-with-lgmd-melissa\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Melissa"},"content":{"rendered":"

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Nom<\/strong>: Melissa L'\u00e2ge<\/strong>: 32 ans<\/p>\n\n\n\n

Pays<\/strong>: \u00c9tats-Unis<\/p>\n\n\n\n

LGMD Sous-type<\/strong>: LGMD2A (une forme de calpa\u00efnopathie) <\/p>\n\n\n\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n\n\n\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 26 ans.<\/p>\n\n\n\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n\n\n\n

\u00c0 l'\u00e2ge de 5 ans, j'avais du mal \u00e0 courir, j'avais un muscle de la jambe hypertrophi\u00e9, je tr\u00e9buchais souvent et j'avais du mal \u00e0 me lever du sol.<\/p>\n\n\n\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n\n\n\n

Non, je suis la seule personne de ma famille \u00e0 avoir re\u00e7u le diagnostic de\nLGMD2A<\/p>\n\n\n\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever\ndans la vie avec le LGMD<\/strong>:<\/p>\n\n\n\n

Les plus grands d\u00e9fis pour moi sont de ne pas pouvoir aider les autres, de perdre ma force, de ne pas pouvoir atteindre les choses lorsque je suis dans mon fauteuil roulant et de devoir compter sur l'aide des autres.<\/p>\n\n\n\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n\n\n\n

Ma plus grande r\u00e9ussite est ma capacit\u00e9 \u00e0 rester positive malgr\u00e9 les difficult\u00e9s et le fait que j'essaie de r\u00e9pandre la gentillesse chaque fois que j'en ai l'occasion.<\/p>\n\n\n\n

Comment le LGMD vous a-t-il influenc\u00e9 pour devenir la personne que vous \u00eates aujourd'hui ?\npersonne que vous \u00eates aujourd'hui :<\/strong><\/p>\n\n\n\n

Vivre avec le LGMD m'a appris \u00e0 \u00eatre \u00e9motionnellement forte\nalors que mon corps s'affaiblit physiquement.<\/p>\n\n\n\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n\n\n\n

Je veux que les gens sachent que la DM n'est pas la m\u00eame chose que la SEP et que le LGMD n'affecte pas mon cerveau.<\/p>\n\n\n\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?\nserait la premi\u00e8re chose que vous voudriez faire<\/strong>:<\/p>\n\n\n\n

Je courrais jusqu'\u00e0 l'a\u00e9roport le plus proche, m'envolerais pour New York afin de rendre visite \u00e0 mon fr\u00e8re et terminerais la journ\u00e9e en me relaxant dans un jacuzzi.<\/p>\n\n\n\n

Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Melissa Age: 32 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":2355,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-2357","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Melissa - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2018\/12\/11\/individual-with-lgmd-melissa\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Melissa - 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