{"id":2722,"date":"2019-04-29T10:19:08","date_gmt":"2019-04-29T15:19:08","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2722"},"modified":"2019-04-29T10:19:08","modified_gmt":"2019-04-29T15:19:08","slug":"individual-with-lgmd-hasan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/","title":{"rendered":"INDIVIDU AVEC LGMD : Hasan"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"SPOTLIGHT INTERVIEW\"<\/strong><\/p>\n\n\n\n

Nom<\/strong>: Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0AGE<\/strong>: 34 ans<\/p>\n\n\n\n

Pays<\/strong>: Pakistan<\/p>\n\n\n\n

LGMD Sous-type<\/strong>:\nInconnu<\/p>\n\n\n\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n\n\n\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 19 ans.<\/p>\n\n\n\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n\n\n\n

J'ai commenc\u00e9 \u00e0 ressentir des douleurs et des crampes, j'ai commenc\u00e9 \u00e0 marcher \u00e0 pas feutr\u00e9s, j'ai commenc\u00e9 \u00e0 avoir des courbures de la colonne vert\u00e9brale.\nde la colonne vert\u00e9brale ....<\/p>\n\n\n\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n\n\n\n

Oui, deux s\u0153urs et un fr\u00e8re souffrent \u00e9galement de cette maladie.<\/p>\n\n\n\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever\ndans la vie avec le LGMD<\/strong>:<\/p>\n\n\n\n

Je pense que la perte de l'autonomie est le plus grand d\u00e9fi de ma vie.\nles plus grands d\u00e9fis de ma vie. Le plus important est que les endroits de mon pays ne sont g\u00e9n\u00e9ralement pas adapt\u00e9s aux fauteuils roulants et les gens pensent toujours que j'ai la polio.\npas adapt\u00e9s aux fauteuils roulants et les gens pensent toujours que j'ai la polio. Pourtant, il m'arrive de penser au bon vieux temps o\u00f9 j'avais l'habitude de faire beaucoup de choses.\nJe pense toujours au temps o\u00f9 j'avais l'habitude de faire beaucoup de choses que je ne peux plus faire aujourd'hui, ce qui me fait vraiment mal.\nCela me fait vraiment de la peine. <\/p>\n\n\n\n

Les gens ne comprennent pas vos besoins et vos exigences dans ma vie quotidienne.\nquotidien. C'est pourquoi nous devons les guider.<\/p>\n\n\n\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n\n\n\n

De mon point de vue, j'ai obtenu un emploi de r\u00eave que je veux faire dans ma vie et j'aime beaucoup mon travail.\nque je veux faire dans ma vie et j'aime beaucoup mon travail. J'ai commenc\u00e9 les sympt\u00f4mes presque\npresque \u00e0 la fin de mes \u00e9tudes. Je pense donc que c'est l'une des\naccomplissement dans ma vie.<\/p>\n\n\n\n

Comment le LGMD vous a-t-il influenc\u00e9 pour devenir la personne que vous \u00eates aujourd'hui ?\npersonne que vous \u00eates aujourd'hui :<\/strong><\/p>\n\n\n\n

Pour \u00eatre honn\u00eate, cela m'a fait changer ma vie enti\u00e8re.\ntoute ma vie. J'ai beaucoup appris apr\u00e8s le diagnostic de cette maladie et j'ai d\u00fb l'accepter.\nl'accepter. L'un des principaux \u00e9l\u00e9ments de ma vie est d\u00e9sormais de faire preuve de patience. <\/p>\n\n\n\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n\n\n\n

Essayez de comprendre notre maladie au lieu de nous juger.\nLa vie est belle et nous ne venons qu'une fois. Alors, profitez de chaque jour et ne vous sentez pas mal\net ne vous sentez pas mal \u00e0 l'aise pour ce que vous \u00eates. <\/p>\n\n\n\n

N'h\u00e9sitez pas \u00e0 poser des questions sur nous.<\/p>\n\n\n\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?\nserait la premi\u00e8re chose que vous voudriez faire<\/strong>:<\/p>\n\n\n\n

Je veux aller voir les membres de ma famille proche pour les surprendre\npour les surprendre que je puisse recommencer \u00e0 marcher. <\/p>\n\n\n\n

Pour lire d'autres \"LGMD Spotlight\nou pour vous porter volontaire pour une prochaine interview,\nveuillez visiter notre site web \u00e0 l'adresse suivante https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 \u00a0\u00a0\u00a0 Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0AGE:\u00a0\u00a0 34 years old […]<\/p>","protected":false},"author":1,"featured_media":2723,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[],"class_list":["post-2722","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Hasan - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Hasan - 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