{"id":3256,"date":"2020-05-07T19:03:28","date_gmt":"2020-05-08T00:03:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3256"},"modified":"2024-02-09T14:24:38","modified_gmt":"2024-02-09T14:24:38","slug":"denise","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2020\/05\/07\/denise\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Denise"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"Spotlight Interview\" (en anglais)<\/strong><\/p>\n\n\n\n

NOM<\/strong>: Denise                                  AGE<\/strong>: 49<\/p>\n\n\n\n

PAYS<\/strong>: Nouvelle-Z\u00e9lande<\/p>\n\n\n\n

SOUS-TYPE LGMD<\/strong>: LGMD 2A\/R1 li\u00e9e \u00e0 la calpa\u00efne3<\/p>\n\n\n\n

\u00c0 QUEL \u00c2GE AVEZ-VOUS \u00c9T\u00c9 DIAGNOSTIQU\u00c9 ?<\/strong>:<\/p>\n\n\n\n

 J'ai \u00e9t\u00e9 diagnostiqu\u00e9e LGMD \u00e0 l'\u00e2ge de 18 ans et j'ai re\u00e7u un diagnostic confirm\u00e9 de LGMD 2A\/R1 \u00e0 l'\u00e2ge de 39 ans.<\/p>\n\n\n\n

QUELS ONT \u00c9T\u00c9 LES PREMIERS SYMPT\u00d4MES ?<\/strong>:<\/p>\n\n\n\n

Mes premiers sympt\u00f4mes \u00e9taient des difficult\u00e9s \u00e0 courir et \u00e0 monter les escaliers.<\/p>\n\n\n\n

AVEZ-VOUS D'AUTRES MEMBRES DE VOTRE FAMILLE QUI SONT ATTEINTS DE LA LGMD ?<\/strong>:<\/p>\n\n\n\n

Non, je suis le seul membre de ma famille \u00e0 \u00eatre atteint de LGMD.<\/p>\n\n\n\n

QUELS SONT, SELON VOUS, LES PLUS GRANDS D\u00c9FIS \u00c0 RELEVER POUR VIVRE AVEC LA LGMD ?<\/strong>:<\/p>\n\n\n\n

Mes plus grands d\u00e9fis ont \u00e9t\u00e9 de perdre la force de mes bras, d'\u00eatre priv\u00e9 de mes choix, de perdre mon ind\u00e9pendance et de devoir compter sur les autres pour les fonctions de base.<\/p>\n\n\n\n

QUELLE EST VOTRE PLUS GRANDE R\u00c9ALISATION ?<\/strong>:<\/p>\n\n\n\n

Ma plus grande r\u00e9ussite est d'avoir deux magnifiques filles (20 et 16 ans).<\/p>\n\n\n\n

COMMENT LA LGMD VOUS A-T-ELLE INFLUENC\u00c9 POUR DEVENIR LA PERSONNE QUE VOUS \u00caTES AUJOURD'HUI ?<\/strong>:<\/p>\n\n\n\n

Je m\u00e8ne une vie bien remplie malgr\u00e9 cette maladie. Je continue \u00e0 travailler \u00e0 temps plein, \u00e0 voyager et \u00e0 faire tout ce que je peux. J'essaie de ne pas laisser cette maladie affecter les choses que je veux accomplir dans la vie. Il y a toujours un moyen si l'on est suffisamment d\u00e9termin\u00e9.<\/p>\n\n\n\n

QUE VOULEZ-VOUS QUE LE MONDE SACHE SUR LA LGMD ?<\/strong>:<\/p>\n\n\n\n

Le LGMD est une maladie progressive et d\u00e9bilitante qui vous prive de vos fonctions humaines de base. Les personnes atteintes de cette maladie sont incroyablement fortes face \u00e0 des d\u00e9fis incroyables.<\/p>\n\n\n\n

SI VOTRE LGMD POUVAIT \u00caTRE \"GU\u00c9RIE\" DEMAIN, QUELLE SERAIT LA PREMI\u00c8RE CHOSE QUE VOUS SOUHAITERIEZ FAIRE ?<\/strong>:<\/p>\n\n\n\n

Si mon LGMD \u00e9tait gu\u00e9ri demain, je me baignerais \u00e0 la plage !<\/p>\n\n\n\n

* Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire pour une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d NAME:  Denise                                  AGE: 49 COUNTRY: New […]<\/p>","protected":false},"author":1,"featured_media":3260,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[],"class_list":["post-3256","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Denise - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2020\/05\/07\/denise\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Denise - 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