{"id":3332,"date":"2020-07-07T21:55:22","date_gmt":"2020-07-08T02:55:22","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3332"},"modified":"2024-02-09T14:24:36","modified_gmt":"2024-02-09T14:24:36","slug":"individual-with-lgmd-eric","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2020\/07\/07\/individual-with-lgmd-eric\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Eric"},"content":{"rendered":"
\"\"<\/figure><\/div>\n\n\n\n

LGMD \"SPOTLIGHT INTERVIEW\" <\/strong><\/p>\n\n\n\n

Nom<\/strong>: Eric\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 L'\u00e2ge<\/strong>: 23 ans<\/p>\n\n\n\n

Pays<\/strong>: \u00c9TATS-UNIS   <\/p>\n\n\n\n

LGMD Sous-type<\/strong>: LGMD 2B\/R2 li\u00e9e \u00e0 la dysferline<\/p>\n\n\n\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n\n\n\n

\u00c0 l'\u00e2ge de deux ans, on m'a diagnostiqu\u00e9 \u00e0 tort une myopathie. Deux d\u00e9cennies plus tard, on m'a diagnostiqu\u00e9 une LGMD.                                 <\/p>\n\n\n\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n\n\n\n

Mes premiers sympt\u00f4mes ont \u00e9t\u00e9 un retard d'\u00e9locution, une mauvaise marche et une incapacit\u00e9 \u00e0 rester assis.<\/p>\n\n\n\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong>:<\/strong><\/p>\n\n\n\n

Non, je suis le seul de ma famille \u00e0 \u00eatre atteint de LGMD.<\/p>\n\n\n\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n\n\n\n

Il y a beaucoup de d\u00e9fis \u00e0 relever, mais le plus important pour moi en ce moment est de monter les escaliers.<\/p>\n\n\n\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n\n\n\n

Ma plus grande r\u00e9alisation serait la cr\u00e9ation et l'enregistrement de mon organisation \u00e0 but non lucratif, qui s'appelle Deletethewordcant. Et je suis en train de pr\u00e9parer un master en psychologie.<\/p>\n\n\n\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong>:<\/strong><\/p>\n\n\n\n

Il m'a influenc\u00e9e parce que j'ai d\u00fb \u00eatre plus forte et plus r\u00e9sistante \u00e0 l'\u00e9cole, aux intimidations, aux activit\u00e9s quotidiennes, et \u00e0 bien d'autres choses encore.<\/p>\n\n\n\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n\n\n\n

Le monde devrait savoir que, que l'on soit atteint ou non de LGMD, il faut toujours croire en soi. Il se peut aussi que vous ayez du mal \u00e0 faire certaines choses ou que cela prenne plus de temps, mais n'abandonnez jamais. Dites toujours \"Je peux\" !<\/p>\n\n\n\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n\n\n\n

Si j'\u00e9tais gu\u00e9ri demain, je grimperais au sommet de la plus haute montagne.<\/p>\n\n\n\n

Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d  Name: Eric\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Age:\u00a0 23 yrs. old Country:  […]<\/p>","protected":false},"author":1,"featured_media":3333,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[],"class_list":["post-3332","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Eric - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2020\/07\/07\/individual-with-lgmd-eric\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Eric - 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