{"id":417,"date":"2015-02-18T14:59:09","date_gmt":"2015-02-18T20:59:09","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=282"},"modified":"2015-02-18T14:59:09","modified_gmt":"2015-02-18T20:59:09","slug":"282","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Suzanne"},"content":{"rendered":"

\u00a002\/18\/2015:<\/span><\/p>\n

NOM : Suzanne \"LGMD2B<\/a><\/span><\/p>\n

AGE : 45
\n<\/span><\/p>\n

PAYS : Angleterre
\n<\/span><\/p>\n

Sous-type LGMD : LGMD2B - Variante Miyoshi
\n
\n\u00c0 QUEL \u00c2GE AVEZ-VOUS \u00c9T\u00c9 DIAGNOSTIQU\u00c9 ?
\nJ'ai \u00e9t\u00e9 correctement diagnostiqu\u00e9e vers l'\u00e2ge de 29 ans.<\/span><\/span><\/p>\n

QUELS ONT \u00c9T\u00c9 VOS PREMIERS SYMPT\u00d4MES :
\nJe ne pouvais pas me tenir sur la pointe des pieds.<\/p>\n

AVEZ-VOUS D'AUTRES MEMBRES DE LA FAMILLE ATTEINTS DE LGMD : Non<\/p>\n

QUELS SONT, SELON VOUS, LES PLUS GRANDS D\u00c9FIS \u00c0 RELEVER POUR VIVRE AVEC LA LGMD :
\nLe plus grand d\u00e9fi est de trouver l'\u00e9nergie n\u00e9cessaire pour faire tout ce que je veux faire. Je trouve que le simple fait de se lever d'une chaise est un travail tr\u00e8s difficile.<\/p>\n

QUELLE EST VOTRE PLUS GRANDE R\u00c9ALISATION :
\nMa plus grande r\u00e9ussite est de m'\u00eatre mari\u00e9e et d'avoir deux merveilleux enfants. J'ai \u00e9galement appris \u00e0 faire du bateau avec Sailability et j'ai fait du patin \u00e0 glace dans mon fauteuil roulant !<\/p>\n

COMMENT LA LGMD VOUS A-T-ELLE INFLUENC\u00c9 POUR QUE VOUS DEVENIEZ LA PERSONNE QUE VOUS \u00caTES AUJOURD'HUI :
\nCela m'a aid\u00e9 \u00e0 r\u00e9aliser ce qui est vraiment important dans la vie, comme la famille et les amis, et \u00e0 appr\u00e9cier ce que j'ai, car il y a toujours des gens plus mal lotis que vous.<\/p>\n

QUE VOULEZ-VOUS FAIRE SAVOIR AU MONDE SUR LA LGMD : Il n'existe actuellement aucun traitement ou rem\u00e8de pour la LGMD 2B Miyoshi. La Jain Foundation participe actuellement \u00e0 des \u00e9tudes cliniques et \u00e0 des recherches pour en savoir plus sur la maladie et essayer de trouver des traitements ou un rem\u00e8de !<\/p>\n

SI VOTRE LGMD POUVAIT \u00caTRE \"GU\u00c9RIE\" DEMAIN, QUELLE SERAIT LA PREMI\u00c8RE CHOSE QUE VOUS VOUDRIEZ FAIRE :
\nJe serrerais mes enfants dans mes bras, je courrais sur la route et je prendrais des cours de danse.<\/p>","protected":false},"excerpt":{"rendered":"

\u00a002\/18\/2015: NAME: Suzanne AGE: 45 COUNTRY: England LGMD Sub-Type: LGMD2B […]<\/p>","protected":false},"author":1,"featured_media":283,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[26,23,27],"class_list":["post-417","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-england","tag-lgmd2b","tag-miyoshi-variant"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Suzanne<\/title>\n<meta name=\"description\" content=\"Suzanne, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - Suzanne\" \/>\n<meta property=\"og:description\" content=\"Suzanne, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-02-18T20:59:09+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Suzanne\",\"datePublished\":\"2015-02-18T20:59:09+00:00\",\"dateModified\":\"2015-02-18T20:59:09+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\"},\"wordCount\":253,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"England\",\"LGMD2B\",\"Miyoshi Variant\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2B\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\",\"url\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\",\"name\":\"LGMD Spotlight Interview - Suzanne\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2015-02-18T20:59:09+00:00\",\"dateModified\":\"2015-02-18T20:59:09+00:00\",\"description\":\"Suzanne, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Suzanne\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LGMD Spotlight Interview - Suzanne","description":"Suzanne, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/","og_locale":"fr_FR","og_type":"article","og_title":"LGMD Spotlight Interview - Suzanne","og_description":"Suzanne, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","og_url":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2015-02-18T20:59:09+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"1 minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Suzanne","datePublished":"2015-02-18T20:59:09+00:00","dateModified":"2015-02-18T20:59:09+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/"},"wordCount":253,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#primaryimage"},"thumbnailUrl":"","keywords":["England","LGMD2B","Miyoshi Variant"],"articleSection":["Individuals with LGMD - Interviews","LGMD2B"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/","url":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/","name":"LGMD Spotlight Interview - Suzanne","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#primaryimage"},"thumbnailUrl":"","datePublished":"2015-02-18T20:59:09+00:00","dateModified":"2015-02-18T20:59:09+00:00","description":"Suzanne, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Suzanne"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts\/417","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/comments?post=417"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts\/417\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/media?parent=417"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/categories?post=417"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/tags?post=417"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}