{"id":5356,"date":"2021-06-08T19:13:33","date_gmt":"2021-06-08T19:13:33","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5356"},"modified":"2024-02-09T14:24:05","modified_gmt":"2024-02-09T14:24:05","slug":"individual-with-lgmd-jasmine","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/06\/08\/individual-with-lgmd-jasmine\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Jasmine"},"content":{"rendered":"

\"Jasmine\"<\/p>\n

Nom<\/strong>: Jasmin<\/p>\n

L'\u00e2ge<\/strong>: 24 ans<\/p>\n

Pays<\/strong>: \u00c9TATS-UNIS<\/p>\n

LGMD Sous-type<\/strong>: LGMD 2A\/R1 li\u00e9 \u00e0 la calpa\u00efne 3<\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>?<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e r\u00e9cemment, \u00e0 l'\u00e2ge de 24 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ? <\/strong><\/p>\n

La marche sur les orteils a \u00e9t\u00e9 mon premier sympt\u00f4me. J'ai remarqu\u00e9 des faiblesses depuis que je suis toute petite. Je me souviens qu'\u00e0 l'\u00e9cole primaire, lorsque c'\u00e9tait mon tour de jouer au basket-ball contre l'autre \u00e9quipe, il me fallait une \u00e9ternit\u00e9 pour me lever du sol et courir jusqu'\u00e0 l'autre c\u00f4t\u00e9 du terrain. Je me servais de mes mains sur mes genoux pour me lever. Au coll\u00e8ge, j'ai commenc\u00e9 \u00e0 \u00e9viter les marches parce que j'avais remarqu\u00e9 que mes jambes commen\u00e7aient \u00e0 s'affaiblir en montant et en descendant les escaliers. Puis, tout d'un coup, je n'ai plus \u00e9t\u00e9 capable de monter un trottoir ou une bordure de rue. Je devais prendre ma jambe avec mon pantalon lorsque j'essayais de monter.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong>?<\/strong><\/p>\n

Je suis la seule personne de ma famille \u00e0 qui l'on a diagnostiqu\u00e9 une LGMD.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>?<\/p>\n

Le plus grand d\u00e9fi de la vie avec la LGMD est de conserver mon ind\u00e9pendance aussi longtemps que possible.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ? <\/strong><\/p>\n

J'ai r\u00e9cemment obtenu mon dipl\u00f4me d'associ\u00e9 en \u00e9ducation des classes moyennes au Georgia Military College. Je suis maintenant une nouvelle \u00e9tudiante transf\u00e9r\u00e9e \u00e0 la meilleure \"Universit\u00e9 de G\u00e9orgie\", avec une sp\u00e9cialisation en \u00e9ducation des \u00e9l\u00e8ves du secondaire. La bonne nouvelle, c'est que je poursuis un programme \u00e0 double sp\u00e9cialisation qui me permettra d'obtenir mon master en m\u00eame temps que ma licence ! J'envisage de devenir professeur de math\u00e9matiques (ma mati\u00e8re pr\u00e9f\u00e9r\u00e9e). J'ai l'intention de poursuivre mes objectifs de carri\u00e8re un peu plus loin en fonction de la progression de mon doctorat : comme option de secours ou finale, j'envisage de devenir professeur d'universit\u00e9 en ligne, o\u00f9 je peux rester \u00e0 la maison la plupart du temps et enseigner les pr\u00e9requis en anglais ou en math\u00e9matiques.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong>?<\/strong><\/p>\n

Le fait d'avoir une LGMD m'a rendue tr\u00e8s humble et patiente dans toutes les situations auxquelles je suis confront\u00e9e. De plus, j'ai appris beaucoup de trucs sympas pour m'adapter \u00e0 la maison et \u00e0 l'ext\u00e9rieur, surtout maintenant, \u00e0 cet \u00e2ge et en tant que jeune femme \u00e0 l'universit\u00e9 qui navigue dans ce monde avec la DM !<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>?<\/p>\n

Je veux que le monde sache que le fait d'\u00eatre atteint de LGMD est diff\u00e9rent de la plupart des autres handicaps. Si nous tombons, nous ne pouvons pas nous relever. Cela dit, prendre notre bras pour nous aider \u00e0 nous relever ne fonctionne pas pour la plupart d'entre nous. Il faut litt\u00e9ralement nous tirer par la taille pour nous relever jusqu'\u00e0 ce que nous soyons capables de bloquer notre corps en position pour nous tenir debout. Et lorsque notre corps a \u00e9t\u00e9 surmen\u00e9, il nous faut parfois quelques jours pour r\u00e9cup\u00e9rer. Nous ne pouvons pas accomplir certaines t\u00e2ches simples que les personnes valides accomplissent. Nous devons \u00e9galement y r\u00e9fl\u00e9chir avant d'effectuer cette t\u00e2che sp\u00e9cifique. Avec cette maladie, nous avons tendance \u00e0 devoir v\u00e9rifier chaque endroit avant de nous y rendre pour nous assurer qu'il est accessible et que nous pouvons b\u00e9n\u00e9ficier d'am\u00e9nagements.<\/p>\n

Si votre LGMD peut \u00eatre <\/strong>\"<\/strong>gu\u00e9ri\" demain, quelle serait la premi\u00e8re chose que vous voudriez faire ?<\/strong>?<\/p>\n

Je voudrais me lever d'une chaise basse parce que c'est l'une de mes plus grandes difficult\u00e9s avec le LGMD en ce moment.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5355,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,70],"class_list":["post-5356","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Jasmine - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/06\/08\/individual-with-lgmd-jasmine\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Jasmine - 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