{"id":544,"date":"2015-04-03T14:49:59","date_gmt":"2015-04-03T19:49:59","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=544"},"modified":"2015-04-03T14:49:59","modified_gmt":"2015-04-03T19:49:59","slug":"lacey","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Lacey"},"content":{"rendered":"

04\/03\/2015<\/p>\n

NOM<\/strong>: Lacey \u00a0\u00a0\u00a0AGE<\/strong>:\u00a042\"LGMD2i<\/a><\/p>\n

PAYS<\/strong>: \u00c9tats-Unis<\/p>\n

LGMD Sous-type<\/strong>: LGMD2i<\/p>\n

 <\/p>\n

\u00c0 QUEL \u00c2GE AVEZ-VOUS \u00c9T\u00c9 DIAGNOSTIQU\u00c9 ?<\/strong>:<\/p>\n

On m'a diagnostiqu\u00e9 une dystrophie musculaire \u00e0 16 ans et une LGMD2i \u00e0 34 ans. Les deux diagnostics ont \u00e9t\u00e9 pos\u00e9s par t\u00e9l\u00e9phone. Avec le recul, j'aurais aim\u00e9 que les m\u00e9decins m'en parlent en personne, car j'avais tellement de questions et j'\u00e9tais effray\u00e9e.<\/p>\n

QUELS ONT \u00c9T\u00c9 LES PREMIERS SYMPT\u00d4MES ?<\/strong>:<\/p>\n

Les premiers sympt\u00f4mes que j'ai remarqu\u00e9s ont \u00e9t\u00e9 des crampes douloureuses dans les jambes lorsque je courais et l'impossibilit\u00e9 de suivre les autres enfants. On m'a dit que j'\u00e9tais paresseuse et que je devais faire plus d'efforts en \u00e9ducation physique et en softball. Je me souviens avoir pens\u00e9 : \"Je fais de mon mieux, mais comment puis-je aller plus vite que les autres enfants ?<\/p>\n

AVEZ-VOUS D'AUTRES MEMBRES DE VOTRE FAMILLE QUI SONT ATTEINTS DE LA LGMD ?<\/strong>:<\/p>\n

Non, aucun autre membre de ma famille n'est atteint de LGMD.<\/p>\n

QUELS SONT, SELON VOUS, LES PLUS GRANDS D\u00c9FIS \u00c0 RELEVER POUR VIVRE AVEC LA LGMD ?<\/strong>:<\/p>\n

Les changements constants et le fait d'essayer de trouver des moyens de s'adapter \u00e0 ma nouvelle normalit\u00e9.<\/p>\n

QUELLE EST VOTRE PLUS GRANDE R\u00c9ALISATION ?<\/strong>:<\/p>\n

Ma plus grande r\u00e9ussite est de vivre chaque jour comme il vient avec compassion et courage, d'\u00eatre une \u00e9pouse pour mon mari qui me soutient et une m\u00e8re pour nos filles qui m'aiment.<\/p>\n

COMMENT LA LGMD VOUS A-T-ELLE INFLUENC\u00c9 POUR DEVENIR LA PERSONNE QUE VOUS \u00caTES AUJOURD'HUI ?<\/strong>:<\/p>\n

La LGMD m'a oblig\u00e9e \u00e0 ralentir, \u00e0 devenir pr\u00e9sente et consciente. Cette maladie a fait de moi une personne plus forte et plus empathique. J'ai appris \u00e0 pleurer et \u00e0 rire en m\u00eame temps.<\/p>\n

QUE VOULEZ-VOUS QUE LE MONDE SACHE SUR LA LGMD ?<\/strong>:<\/p>\n

J'aimerais que le monde soit davantage sensibilis\u00e9 \u00e0 la LGMD, en particulier les m\u00e9decins. Je sais que pour beaucoup d'entre nous, la route vers le diagnostic est longue, mais ce n'est pas une fatalit\u00e9. Certaines personnes atteintes de LGMD ont des probl\u00e8mes cardiaques et pulmonaires et je pense qu'il est essentiel que des m\u00e9decins comp\u00e9tents les suivent et les soutiennent.<\/p>\n

SI VOTRE LGMD POUVAIT \u00caTRE \"GU\u00c9RIE\" DEMAIN, QUELLE SERAIT LA PREMI\u00c8RE CHOSE QUE VOUS SOUHAITERIEZ FAIRE ?<\/strong>: La premi\u00e8re chose que je voudrais faire, c'est courir - j'aimerais pouvoir me souvenir de ce que je ressens. Parfois, quand je conduis mon scooter, je ferme les yeux et je fais semblant de courir - \u00e7a devient un peu dangereux \ud83d\ude42 .<\/p>","protected":false},"excerpt":{"rendered":"

04\/03\/2015 NAME: \u00a0Lacey \u00a0\u00a0\u00a0AGE:\u00a042 COUNTRY:\u00a0United States LGMD Sub-Type:\u00a0LGMD2i   AT […]<\/p>","protected":false},"author":1,"featured_media":542,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-544","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Lacey<\/title>\n<meta name=\"description\" content=\"Lacey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - Lacey\" \/>\n<meta property=\"og:description\" content=\"Lacey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-04-03T19:49:59+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Lacey\",\"datePublished\":\"2015-04-03T19:49:59+00:00\",\"dateModified\":\"2015-04-03T19:49:59+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/\"},\"wordCount\":374,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"LGMD2i\",\"United States\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2I\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/\",\"url\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/\",\"name\":\"LGMD Spotlight Interview - Lacey\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2015-04-03T19:49:59+00:00\",\"dateModified\":\"2015-04-03T19:49:59+00:00\",\"description\":\"Lacey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Lacey\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LGMD Spotlight Interview - Lacey","description":"Lacey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/","og_locale":"fr_FR","og_type":"article","og_title":"LGMD Spotlight Interview - Lacey","og_description":"Lacey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","og_url":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2015-04-03T19:49:59+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Lacey","datePublished":"2015-04-03T19:49:59+00:00","dateModified":"2015-04-03T19:49:59+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/"},"wordCount":374,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#primaryimage"},"thumbnailUrl":"","keywords":["LGMD2i","United States"],"articleSection":["Individuals with LGMD - Interviews","LGMD2I"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/","url":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/","name":"LGMD Spotlight Interview - Lacey","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#primaryimage"},"thumbnailUrl":"","datePublished":"2015-04-03T19:49:59+00:00","dateModified":"2015-04-03T19:49:59+00:00","description":"Lacey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Lacey"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts\/544","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/comments?post=544"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts\/544\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/media?parent=544"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/categories?post=544"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/tags?post=544"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}