{"id":5561,"date":"2021-11-07T23:51:06","date_gmt":"2021-11-07T23:51:06","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5561"},"modified":"2024-02-09T14:23:59","modified_gmt":"2024-02-09T14:23:59","slug":"individual-with-lgmd-osman","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/","title":{"rendered":"INDIVIDU AVEC LGMD : Osman"},"content":{"rendered":"

\"\"<\/p>\n

LGMD \"SPOTLIGHT INTERVIEW\"<\/p>\n

Nom :<\/strong>\u00a0 Osman<\/p>\n

L'\u00e2ge<\/strong>: 30 ans<\/p>\n

Pays :<\/strong>\u00a0 Turquie<\/p>\n

LGMD Sous-type :<\/strong>\u00a0 LGMD2D\/R3 Li\u00e9 \u00e0 l'alpha-sarcoglycane<\/p>\n

A quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong><\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 16 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong><\/p>\n

Les sympt\u00f4mes ont commenc\u00e9 \u00e0 se manifester vers l'\u00e2ge de 17 ans. J'ai ressenti le besoin de me reposer apr\u00e8s avoir couru un peu. J'\u00e9tais fatigu\u00e9 lorsque je montais les escaliers. Apr\u00e8s quelques ann\u00e9es, j'ai commenc\u00e9 \u00e0 m'accrocher en montant les escaliers ou en me levant d'une position assise. \u00c0 l'\u00e2ge de 25 ans, j'ai commenc\u00e9 \u00e0 ne plus pouvoir me pencher en avant et \u00e0 marcher lentement pour ne pas tomber.<\/p>\n

Avez-vous d'autres membres de votre famille qui sont atteints de LGMD ?<\/strong><\/p>\n

Oui, ma s\u0153ur a \u00e9galement \u00e9t\u00e9 diagnostiqu\u00e9e LGMD2D\/R3.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong><\/p>\n

Les plus grandes difficult\u00e9s concernent les activit\u00e9s de la vie quotidienne. Je ne peux pas aller o\u00f9 je veux avec ma famille et monter les escaliers sans m'accrocher \u00e0 quelque chose.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong><\/p>\n

Ma plus grande r\u00e9ussite est d'avoir \u00e9t\u00e9 ing\u00e9nieur en informatique et d'avoir contribu\u00e9 \u00e0 la cr\u00e9ation de l'association LGMD Turquie.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Je suis devenu une personne tr\u00e8s consciente. J'essaie d'aider les autres dans toutes les situations, au mieux de mes capacit\u00e9s. J'essaie d'annoncer ma maladie et d'autres maladies \u00e0 d'autres personnes.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong><\/p>\n

Je veux que le monde sache tout sur la LGMD - les sympt\u00f4mes, les d\u00e9fis, la prise en charge, la r\u00e9\u00e9ducation, les derni\u00e8res recherches scientifiques et l'organisation qui s'efforce de sensibiliser et de soulager les personnes et les familles touch\u00e9es par cette maladie neuromusculaire progressive.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong><\/p>\n

Si je gu\u00e9ris, je veux courir sans arr\u00eat et monter des escaliers dans des endroits que je craignais auparavant.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5560,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[108],"class_list":["post-5561","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d-turkey"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Osman - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/\" \/>\n<meta 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