{"id":5724,"date":"2022-05-09T21:26:35","date_gmt":"2022-05-09T21:26:35","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5724"},"modified":"2024-02-09T14:23:54","modified_gmt":"2024-02-09T14:23:54","slug":"individual-with-lgmd-buck","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/lgmd2l\/2022\/05\/09\/individual-with-lgmd-buck\/","title":{"rendered":"INDIVIDU AVEC LGMD : Buck"},"content":{"rendered":"

 <\/p>\n

\"\"<\/p>\n

Nom<\/strong>: Buck<\/p>\n

L'\u00e2ge<\/strong>: 31 ans<\/p>\n

Pays<\/strong>: \u00c9tats-Unis d'Am\u00e9rique<\/p>\n

LGMD Sous-type<\/strong>: LGMD 2L \/ R12<\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>?<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 28 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers SYMPT\u00d4MES ?<\/strong><\/p>\n

Mes premiers sympt\u00f4mes \u00e9taient des faiblesses et des douleurs dans les jambes, des difficult\u00e9s \u00e0 monter les escaliers et \u00e0 me lever du sol.<\/p>\n

Avez-vous d'autres membres de votre famille qui sont atteints de LGMD ?<\/strong><\/p>\n

Je n'ai aucun parent connu chez qui on a diagnostiqu\u00e9 une LGMD.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>?<\/p>\n

La douleur chronique est mon plus grand d\u00e9fi avec la LGMD.<\/p>\n

Quelle est votre plus grande R\u00c9ALISATION ?<\/strong><\/p>\n

Je travaille encore sur ma plus grande r\u00e9alisation, mais pour l'instant, je me concentre sur mes trois magnifiques enfants.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

J'ai toujours eu une grande \u00e9thique de travail et j'ai toujours \u00e9t\u00e9 capable d'accomplir ce que je voulais. En raison de mon handicap, les choses sont difficiles \u00e0 faire, mais je n'abandonne jamais. J'ai r\u00e9ussi \u00e0 rester positive et \u00e0 encourager les autres.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>?<\/p>\n

Je veux que le monde sache que cette maladie change la vie et qu'elle est parfois extr\u00eamement difficile. Malheureusement, il n'y a pas beaucoup de soutien pour la LGMD. J'esp\u00e8re que la sensibilisation permettra d'apporter un meilleur soutien aux personnes atteintes de cette maladie.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>?<\/p>\n

Si je pouvais gu\u00e9rir demain, j'irais dans un parc de trampolines avec mes enfants ! Ce sont les petites choses de la vie que je ch\u00e9ris aujourd'hui.<\/p>","protected":false},"excerpt":{"rendered":"

  Name:\u00a0 \u00a0\u00a0\u00a0 \u00a0Buck Age: \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a031 years old Country: \u00a0\u00a0Unites […]<\/p>","protected":false},"author":3,"featured_media":5725,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,49],"tags":[],"class_list":["post-5724","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2l"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Buck - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/lgmd2l\/2022\/05\/09\/individual-with-lgmd-buck\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Buck - 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