{"id":5855,"date":"2022-08-13T22:20:30","date_gmt":"2022-08-13T22:20:30","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5855"},"modified":"2024-02-09T14:23:52","modified_gmt":"2024-02-09T14:23:52","slug":"5855","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/","title":{"rendered":"INDIVIDU AVEC LGMD : Arthur"},"content":{"rendered":"

\"<\/p>\n

Nom<\/strong>: Arthur<\/p>\n

L'\u00e2ge<\/strong>: \u00a013<\/p>\n

Pays<\/strong>: France<\/p>\n

LGMD Sous-type<\/strong>: LGMD 2C\/R5 li\u00e9 au sarcoglycane gamma<\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>?<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 9 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong><\/p>\n

Depuis que je suis toute petite, j'ai du mal \u00e0 courir et \u00e0 me lever du sol, mais aussi \u00e0 monter les escaliers.<\/p>\n

\u00a0<\/strong>Avez-vous d'autres membres de votre famille qui sont atteints de LGMD ?<\/strong><\/p>\n

Non, j'ai une s\u0153ur, mais elle n'a pas de LGMD.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>?<\/p>\n

Il n'est pas facile de faire comprendre nos difficult\u00e9s lorsque nous sommes enfants. Souvent, les gens croient que nous ne voulons pas faire certaines choses alors que nous ne le pouvons pas parce que notre corps fonctionne diff\u00e9remment.<\/p>\n

Malgr\u00e9 la maladie, je reste toujours heureuse et ambitieuse et j'esp\u00e8re rester debout le plus longtemps possible.<\/p>\n

Quelle est votre plus grande R\u00c9ALISATION ?<\/strong><\/p>\n

J'essaie de faire du sport \u00e0 mon niveau et \u00e0 mon rythme, surtout le football, j'aime l'\u00e9quipe de France et surtout Paris. Malheureusement, je ne peux pas courir. Tant que mes muscles me soutiendront, je continuerai.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Je suis une personne combative, je ne veux pas baisser les bras devant la maladie, je veux la vaincre. Je trouve que les personnes malades ont une grande force int\u00e9rieure qu'il est important de garder pour ne pas s'affaiblir. J'ai rencontr\u00e9 d'autres personnes atteintes de LGMD et toutes ont cette force int\u00e9rieure et je l'appr\u00e9cie.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>?<\/p>\n

J'aimerais que les gens connaissent et comprennent la gravit\u00e9 de la maladie et les risques qu'elle comporte, m\u00eame si elle n'est pas tr\u00e8s visible lorsque nous sommes enfants. C'est difficile \u00e0 expliquer parce que les autres pensent que nous ne voulons pas faire les choses et cela peut faire tr\u00e8s mal mentalement.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>?<\/p>\n

Si je suis gu\u00e9ri, je veux courir en ligne droite le plus longtemps possible, devenir un grand footballeur et \u00eatre le plus rapide sur le terrain. Mais je veux aussi continuer \u00e0 me battre pour les autres enfants atteints de maladies rares. J'esp\u00e8re que les traitements arriveront bient\u00f4t.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5856,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[110],"class_list":["post-5855","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-france"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Arthur - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Arthur - 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