{"id":5884,"date":"2022-09-14T01:28:29","date_gmt":"2022-09-14T01:28:29","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5884"},"modified":"2024-02-09T14:23:51","modified_gmt":"2024-02-09T14:23:51","slug":"individual-with-lgmd-boonsub","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/lgmd2a\/2022\/09\/14\/individual-with-lgmd-boonsub\/","title":{"rendered":"INDIVIDU AVEC LGMD : Boonsub"},"content":{"rendered":"

\"<\/p>\n

Nom<\/strong>: Boonsub<\/p>\n

L'\u00e2ge<\/strong>: \u00a031<\/p>\n

Pays<\/strong>: THAILANDE<\/p>\n

LGMD Sous-type<\/strong>: LGMD 2A\/R1 li\u00e9 \u00e0 la calpa\u00efne3<\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>?<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 20 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong><\/p>\n

Rhabdomyolyse (douleur musculaire et urine fonc\u00e9e) due \u00e0 un exercice physique intense.<\/p>\n

Avez-vous d'autres membres de votre famille qui sont atteints de LGMD ?<\/strong><\/p>\n

Non, aucun membre de ma famille n'est atteint de LGMD.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>?<\/p>\n

Depuis que j'ai \u00e9t\u00e9 diagnostiqu\u00e9, courir et monter les escaliers est devenu un d\u00e9fi. Je n'ai donc pas la possibilit\u00e9 de participer \u00e0 des activit\u00e9s aventureuses avec d'autres personnes.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong><\/p>\n

\u00c0 l'heure actuelle, ma plus grande r\u00e9ussite est l'\u00e9ducation.\u00a0<\/strong>Je suis m\u00e9decin et professeur \u00e0 l'\u00e9cole de m\u00e9decine. Je suis \u00e9galement dipl\u00f4m\u00e9 du programme de ma\u00eetrise en sant\u00e9 publique de la Harvard T.H. Chan School of Public Health. En outre, j'\u00e9tudie le programme de doctorat (\u00e9pid\u00e9miologie) \u00e0 l'universit\u00e9 du Minnesota.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Je me rends compte que je dois vivre avec le LGMD. Je pense qu'il n'y a rien de pire que cela. Bien que la LGMD affecte mes muscles, mon cerveau se porte toujours bien. En ce qui concerne mes capacit\u00e9s, je suis pr\u00eat \u00e0 aider les autres, en particulier mes coll\u00e8gues, mes \u00e9tudiants en m\u00e9decine et mes amis. La LGMD m'a appris que la vie est trop courte pour \u00eatre gaspill\u00e9e. Je ne sais pas combien de temps je pourrai vivre dans ce monde. C'est pourquoi je fais tout ce qui est en mon pouvoir.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>?<\/p>\n

La LGMD est une maladie g\u00e9n\u00e9tique qui touche les muscles et l'esprit des personnes qui en sont atteintes. Cependant, chaque personne a un potentiel ; elle peut donc l'utiliser pour cr\u00e9er un monde merveilleux.<\/p>\n

Je remercie mon institut, mes professeurs, mes amis et ma m\u00e8re de m'avoir soutenu au fil du temps dans toutes les dimensions.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>?<\/p>\n

Je vais courir !<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5885,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[111],"class_list":["post-5884","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-thailand"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Boonsub - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/lgmd2a\/2022\/09\/14\/individual-with-lgmd-boonsub\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Boonsub - 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