{"id":602,"date":"2015-04-20T15:21:34","date_gmt":"2015-04-20T20:21:34","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=602"},"modified":"2015-04-20T15:21:34","modified_gmt":"2015-04-20T20:21:34","slug":"602","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Jane"},"content":{"rendered":"

04\/20\/2015:<\/p>\n

Nom<\/strong>: Jane<\/p>\n

L'\u00e2ge<\/strong>: 18 ans<\/p>\n

\"LGMD2i<\/a><\/p>\n

Pays<\/strong>: \u00c9tats-Unis<\/p>\n

LGMD Sous-type<\/strong>: LGMD2i<\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 5 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

J'avais du mal \u00e0 monter les escaliers et \u00e0 suivre mes camarades dans la cour de r\u00e9cr\u00e9ation.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n

Non, je suis la seule personne de ma famille atteinte de dystrophie musculaire des ceintures.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

Je trouve qu'il est difficile de chercher des chemins accessibles lorsque l'on se trouve dans un environnement peu familier. Il peut \u00e9galement \u00eatre difficile d'avoir \u00e0 suivre mon rythme - plus que celui de mon ami.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

J'ai subi un grave accident en octobre 2014. Ma plus grande r\u00e9ussite est d'avoir travaill\u00e9 si dur pour marcher \u00e0 nouveau de mani\u00e8re ind\u00e9pendante. \u00c0 l'h\u00f4pital, on m'a dit de ne pas porter de poids sur mes jambes pendant un mois. Mais apr\u00e8s plusieurs consultations avec plusieurs m\u00e9decins, ils sont revenus sur leur d\u00e9cision. J'ai travaill\u00e9 dur tous les jours pour pouvoir sortir de l'h\u00f4pital toute seule, un mois plus tard !<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Il m'a appris \u00e0 sortir des sentiers battus, \u00e0 \u00eatre cr\u00e9atif et original.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Ce n'est pas parce que l'on est physiquement handicap\u00e9 que l'on est mentalement handicap\u00e9.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

Je ferais une course et je sauterais de joie !<\/p>","protected":false},"excerpt":{"rendered":"

04\/20\/2015: Name:\u00a0 Jane Age:\u00a0 18 yrs. old Country: \u00a0\u00a0United Stated […]<\/p>","protected":false},"author":1,"featured_media":603,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-602","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Jane<\/title>\n<meta name=\"description\" content=\"Jane, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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