{"id":606,"date":"2015-04-25T15:46:38","date_gmt":"2015-04-25T20:46:38","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=606"},"modified":"2015-04-25T15:46:38","modified_gmt":"2015-04-25T20:46:38","slug":"audrey","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/04\/25\/audrey\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Audrey"},"content":{"rendered":"

04\/25\/2015<\/p>\n

NOM<\/strong>: Audrey\"LGMD2i<\/a><\/p>\n

AGE<\/strong>: 42 ans Ancienne<\/p>\n

PAYS<\/strong>: \u00c9tats-Unis<\/p>\n

LGMD Sous-type<\/strong>: LGMD2i<\/p>\n

\u00c0 QUEL \u00c2GE AVEZ-VOUS \u00c9T\u00c9 DIAGNOSTIQU\u00c9 ?<\/strong>:
\nOn m'a diagnostiqu\u00e9 une LGMD \u00e0 l'\u00e2ge de 37 ans. Je n'avais jamais entendu parler de cette maladie avant le diagnostic.<\/p>\n

QUELS ONT \u00c9T\u00c9 LES PREMIERS SYMPT\u00d4MES ?<\/strong>:<\/p>\n

J'ai remarqu\u00e9 que dans la vingtaine, j'ai commenc\u00e9 \u00e0 avoir des difficult\u00e9s \u00e0 monter les escaliers, \u00e0 me lever du sol et \u00e0 soulever mes jambes. Malheureusement, je ne savais pas \u00e0 quel point je devenais anormalement faible. Je pensais que je n'\u00e9tais pas en forme ou que je manquais de coordination. Lorsque j'ai eu besoin d'une th\u00e9rapie physique pour des douleurs \u00e0 l'\u00e9paule, la physioth\u00e9rapeute m'a renvoy\u00e9e chez mon m\u00e9decin car elle s'est rendu compte que quelque chose n'allait pas du tout.<\/p>\n

AVEZ-VOUS D'AUTRES MEMBRES DE VOTRE FAMILLE ATTEINTS DE LA LGMD ?<\/strong>:<\/p>\n

Ma s\u0153ur a\u00een\u00e9e est \u00e9galement atteinte de LGMD2i, mais sa progression est plus lente.<\/p>\n

QUELS SONT, SELON VOUS, LES PLUS GRANDS D\u00c9FIS \u00c0 RELEVER POUR VIVRE AVEC LA LGMD ?<\/strong>:<\/p>\n

Mon plus grand d\u00e9fi a \u00e9t\u00e9 d'accepter de l'aide sans avoir l'impression d'\u00eatre un fardeau pour les autres. Je suis encore capable de marcher, mais j'ai besoin de beaucoup d'aide de la part de ma famille dans la vie de tous les jours. J'ai beaucoup de chance d'avoir un syst\u00e8me de soutien familial aussi efficace. Parfois, je n'arrive pas \u00e0 croire \u00e0 la chance que j'ai !<\/p>\n

QUELLE EST VOTRE PLUS GRANDE R\u00c9ALISATION ?<\/strong>:<\/p>\n

J'ai pass\u00e9 les 23 derni\u00e8res ann\u00e9es \u00e0 \u00eatre la m\u00e8re de mes trois filles. La maternit\u00e9 est certainement ma plus grande r\u00e9ussite.<\/p>\n

COMMENT LA LGMD VOUS A-T-ELLE INFLUENC\u00c9 POUR DEVENIR LA PERSONNE QUE VOUS \u00caTES AUJOURD'HUI ?<\/strong>:<\/p>\n

Le LGMD m'a permis d'accepter simplement ce que la vie m'offre. Face \u00e0 ce diagnostic et \u00e0 un avenir incertain, j'ai d\u00e9couvert que j'allais toujours bien... Je peux le faire et je vais m'en sortir !<\/p>\n

QUE VOULEZ-VOUS QUE LE MONDE SACHE SUR LA LGMD ?<\/strong>:<\/p>\n

Je pense qu'il serait formidable de faire conna\u00eetre le LGMD \u00e0 un plus grand nombre de personnes. La plupart des m\u00e9decins que j'ai vus n'en ont jamais entendu parler.<\/p>\n

SI VOTRE LGMD POUVAIT \u00caTRE \"GU\u00c9RIE\" DEMAIN, QUELLE SERAIT LA PREMI\u00c8RE CHOSE QUE VOUS SOUHAITERIEZ FAIRE ?<\/strong>:<\/p>\n

Si j'\u00e9tais gu\u00e9ri demain, je courrais. Je courrais le plus loin possible, puis je monterais les escaliers. J'aiderais chaque personne qui a fait tomber quelque chose \u00e0 le ramasser. Je planterais et entretiendrais un beau jardin. Je ne prendrais jamais ces jambes pour acquises !<\/p>","protected":false},"excerpt":{"rendered":"

04\/25\/2015 NAME: \u00a0Audrey AGE: 42 Yrs. Old COUNTRY: United States […]<\/p>","protected":false},"author":1,"featured_media":607,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-606","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Audrey<\/title>\n<meta name=\"description\" content=\"Audrey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/04\/25\/audrey\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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