{"id":6061,"date":"2023-01-24T20:35:20","date_gmt":"2023-01-24T20:35:20","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=6061"},"modified":"2024-02-09T14:23:50","modified_gmt":"2024-02-09T14:23:50","slug":"individual-with-lgmd-heather","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Heather"},"content":{"rendered":"

\"<\/p>\n

Nom<\/strong>: Bruy\u00e8re<\/p>\n

L'\u00e2ge<\/strong>: 60 ans<\/p>\n

Pays<\/strong>: \u00c9TATS-UNIS<\/p>\n

LGMD Sous-type<\/strong>: LGMD2A\/R1 li\u00e9 \u00e0 la calpa\u00efne 3<\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>?<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 30 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers SYMPT\u00d4MES ?<\/strong><\/p>\n

Mes premiers sympt\u00f4mes ont \u00e9t\u00e9 une d\u00e9marche lat\u00e9rale, des difficult\u00e9s \u00e0 monter les escaliers et des chutes.<\/p>\n

Avez-vous d'autres membres de votre famille qui sont atteints de LGMD ?<\/strong><\/p>\n

Non, je suis le seul de ma famille \u00e0 \u00eatre atteint de LGMD.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>?<\/p>\n

Le plus grand d\u00e9fi pour moi est de rester aussi ind\u00e9pendant que possible sans assistance. Jusqu'\u00e0 pr\u00e9sent, j'y suis parvenu.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong><\/p>\n

Mes plus grandes r\u00e9ussites sont mes deux enfants, le fait de continuer \u00e0 vivre de mani\u00e8re autonome et de conduire ma camionnette en \u00e9tant assis dans mon fauteuil roulant \u00e9lectrique.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Le LGMD m'a influenc\u00e9 en faisant de moi une personne plus ind\u00e9pendante et plus positive.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>?<\/p>\n

Je veux que le monde sache que l'on peut mener une vie heureuse et \"normale\" si l'on s'en donne la peine, m\u00eame si l'on est en fauteuil roulant. Je veux aussi que le monde sache que je ne me suis pas laiss\u00e9 abattre par le LGMD. Je vis chaque jour pleinement, le sourire aux l\u00e8vres.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>?<\/p>\n

Si j'\u00e9tais gu\u00e9ri demain, la premi\u00e8re chose que je ferais serait de courir un marathon avec mon fils et ma fille. Ils sont mon univers !<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":6062,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[82,70],"class_list":["post-6061","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Heather - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Heather - 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