{"id":701,"date":"2015-05-21T11:57:37","date_gmt":"2015-05-21T16:57:37","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=701"},"modified":"2015-05-21T11:57:37","modified_gmt":"2015-05-21T16:57:37","slug":"andrea","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/05\/21\/andrea\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Andrea"},"content":{"rendered":"

05\/21\/2015:<\/p>\n

 <\/p>\n

Nom :<\/strong>\u00a0 Andrea \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 L'\u00e2ge<\/strong>: 17 ans\"LGMD1B<\/a><\/p>\n

Pays<\/strong>: Norv\u00e8ge<\/p>\n

LGMD Sous-type<\/strong>: LGMD 1B \/ Laminopathie<\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'avais environ 6 mois lorsqu'ils ont d\u00e9couvert que quelque chose n'allait pas, mais ce n'est qu'\u00e0 l'\u00e2ge de 2 ans qu'ils ont d\u00e9cid\u00e9 qu'il s'agissait d'une dystrophie musculaire. J'ai probablement \u00e9t\u00e9 atteinte de cette maladie toute ma vie. J'avais 7 ans lorsque j'ai re\u00e7u le diagnostic de LGMD 1B.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

Je ne pouvais pas tenir ma t\u00eate en l'air quand j'ai commenc\u00e9 \u00e0 m'asseoir toute seule.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n

Non, je suis la seule personne atteinte de LGMD dans ma famille. Mes deux parents ont \u00e9t\u00e9 test\u00e9s et les r\u00e9sultats ont montr\u00e9 que je n'avais pas h\u00e9rit\u00e9 de la maladie, mais qu'elle provenait d'une mutation.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

Le plus grand d\u00e9fi est que je ne peux rien faire par moi-m\u00eame. J'ai besoin d'aide pour pratiquement tout, comme m'habiller, me lever et me coucher, et ramasser des objets.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

Ma plus grande r\u00e9ussite, c'est mon esprit. J'ai un regard positif sur tout.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Cela m'a permis d'appr\u00e9cier les petits plaisirs et a fait de moi une personne tr\u00e8s positive.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Je veux que le monde sache que je ne suis pas encha\u00een\u00e9 \u00e0 mon fauteuil roulant, qui est l'aide la plus utile dont je dispose. Sans lui, je serais encha\u00een\u00e9, c'est ma libert\u00e9. Lorsque certaines personnes me voient, elles ne voient que le fauteuil roulant, le bruit autour de moi, et pas moi. La maladie n'affecte que mes muscles et non mon cerveau, je suis une jeune fille normale de 17 ans.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

Je sautais, je courais dans les escaliers, je prenais des objets, je faisais toutes les choses normales que je n'avais jamais pu faire !<\/p>","protected":false},"excerpt":{"rendered":"

05\/21\/2015:   Name:\u00a0 Andrea \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Age: 17 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":702,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,44],"tags":[42,43,45],"class_list":["post-701","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd1b","tag-laminopathy","tag-lgmd1b","tag-norway"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Andrea<\/title>\n<meta name=\"description\" content=\"Andrea who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/05\/21\/andrea\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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