{"id":825,"date":"2015-06-15T09:42:05","date_gmt":"2015-06-15T14:42:05","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=825"},"modified":"2015-06-15T09:42:05","modified_gmt":"2015-06-15T14:42:05","slug":"rinku","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Rinku"},"content":{"rendered":"

06\/15\/2015:<\/strong><\/p>\n

Nom<\/strong>:\u00a0 Rinku \u00a0\u00a0\u00a0L'\u00e2ge<\/strong>: 23\"Unknown<\/a><\/p>\n

Pays<\/strong>: INDIA<\/p>\n

LGMD Sous-type<\/strong>:\u00a0\u00a0 Unknown<\/p>\n

\u00a0<\/strong><\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

I was diagnosed at the age of 8 yrs. old.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

I was falling frequently and had difficulty\u00a0 with climbing stairs and running.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n

No, I am the only family member<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

The greatest challenge for me is that LGMD is a progressive disease.\u00a0 My muscles are getting weaker day by day and keeps getting worse.\u00a0 My mind is not accepting it.\u00a0\u00a0 It is very difficult for me to lose my independence.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

My friends and my family are my greatest and I never lose hope in any condition\u2026that is my greatest accomplishment.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Having LGMD has changed everything in my life. \u00a0My dreams, my future, my hopes\u2026 everything!\u00a0 Other people think about their careers and I am only thinking about that how much longer I will be able to run, walk or even stand at all. \u00a0\u00a0\u00a0LGMD is not all bad.\u00a0 I have learned many things from LGMD – ‘learn ground mode of disabled’.\u00a0 \u00a0If any treatment is discovered, I want to become normal.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

The world?? First of all I personally do not know about the LGMD.\u00a0 My doctors don\u2019t know all about LGMD and about the different LGMD sub-types.<\/p>\n

Unfortunately, every association or organization In India uses only the English language.\u00a0 \u00a0Where on other hand, people with any type of muscular dystrophy are not good in education or skilled in English so there is a very big problem in communication.<\/p>\n

And I want that first government to help make doctors aware of muscular dystrophy and all the different types.\u00a0\u00a0 They need to open special research institutes for muscular dystrophy.\u00a0\u00a0 If the doctors can treat the LGMD, they may also become able to treat the old aged body the experiences weakness\u2026<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

If my LGMD was \u201ccured\u201d tomorrow\u2026.First, I would cry so much and then dance like a crazy person \u2026<\/p>","protected":false},"excerpt":{"rendered":"

06\/15\/2015: Name:\u00a0 Rinku \u00a0\u00a0\u00a0Age: 23 Country: INDIA LGMD Sub-Type:\u00a0\u00a0 Unknown […]<\/p>","protected":false},"author":1,"featured_media":823,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[30,47],"class_list":["post-825","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-india","tag-unknown-sub-type"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Rinku<\/title>\n<meta name=\"description\" content=\"Rinku, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - Rinku\" \/>\n<meta property=\"og:description\" content=\"Rinku, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-06-15T14:42:05+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Rinku\",\"datePublished\":\"2015-06-15T14:42:05+00:00\",\"dateModified\":\"2015-06-15T14:42:05+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/\"},\"wordCount\":388,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"India\",\"Unknown Sub-type\"],\"articleSection\":[\"Individuals with LGMD - Interviews\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/\",\"url\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/\",\"name\":\"LGMD Spotlight Interview - Rinku\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2015-06-15T14:42:05+00:00\",\"dateModified\":\"2015-06-15T14:42:05+00:00\",\"description\":\"Rinku, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Rinku\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LGMD Spotlight Interview - Rinku","description":"Rinku, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/","og_locale":"fr_FR","og_type":"article","og_title":"LGMD Spotlight Interview - Rinku","og_description":"Rinku, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","og_url":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2015-06-15T14:42:05+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Rinku","datePublished":"2015-06-15T14:42:05+00:00","dateModified":"2015-06-15T14:42:05+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/"},"wordCount":388,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#primaryimage"},"thumbnailUrl":"","keywords":["India","Unknown Sub-type"],"articleSection":["Individuals with LGMD - Interviews"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/","url":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/","name":"LGMD Spotlight Interview - Rinku","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#primaryimage"},"thumbnailUrl":"","datePublished":"2015-06-15T14:42:05+00:00","dateModified":"2015-06-15T14:42:05+00:00","description":"Rinku, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2015\/06\/15\/rinku\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Rinku"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts\/825","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/comments?post=825"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/posts\/825\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/media?parent=825"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/categories?post=825"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/fr\/wp-json\/wp\/v2\/tags?post=825"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}