{"id":8593,"date":"2024-09-27T17:23:35","date_gmt":"2024-09-27T17:23:35","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=8593"},"modified":"2024-09-27T17:25:03","modified_gmt":"2024-09-27T17:25:03","slug":"individual-with-lgmd-dilek","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2024\/09\/27\/individual-with-lgmd-dilek\/","title":{"rendered":"INDIVIDU AVEC LGMD : Dilek"},"content":{"rendered":"

\"\"<\/p>\n

Nom<\/strong>: Dilek<\/p>\n

L'\u00e2ge<\/strong>: \u00a039<\/p>\n

Pays<\/strong>: Turquie<\/p>\n

LGMD Sous-type<\/strong>: LGMD 2D \/ R3<\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>?<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 21 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong><\/p>\n

Au d\u00e9but, j'ai remarqu\u00e9 que j'avais du mal \u00e0 monter les escaliers.<\/p>\n

Avez-vous d'autres membres de votre famille qui sont atteints de LGMD ?<\/strong><\/p>\n

Mon fr\u00e8re a 35 ans<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>?<\/p>\n

Je ne peux pas me relever quand je tombe. Je peux tomber au moindre tr\u00e9buchement. J'ai du mal \u00e0 lever les bras. Je ne peux pas monter ou descendre les escaliers. Ma vie sociale est limit\u00e9e.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong><\/p>\n

Ma psychologie est forte et j'envisage la vie avec espoir. Je me bats pour soutenir les efforts de traitement. Parce que je suis une m\u00e8re, une \u00e9pouse et une \u00e9ducatrice.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Bien s\u00fbr, il y a des endroits o\u00f9 cela a un effet n\u00e9gatif, ma vie sociale pourrait \u00eatre plus active et plus anim\u00e9e. Malheureusement, je ne peux pas participer \u00e0 tous les environnements.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>?<\/p>\n

En termes d'accessibilit\u00e9, j'esp\u00e8re que les lieux publics (routes, toilettes, caf\u00e9s, restaurants, etc.) nous seront accessibles, que les m\u00e9decins, les scientifiques, les associations et surtout les gouvernements soutiendront les \u00e9tudes de th\u00e9rapie g\u00e9nique et les \u00e9tudes de m\u00e9dicaments, et que des solutions permanentes seront trouv\u00e9es pour nous.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>?<\/p>\n

J'ai beaucoup de r\u00eaves, comme nager dans la mer avec ma fille sans crainte, prendre des cours pour jouer d'un instrument de musique, courir, jouer aux boules de neige, et bien d'autres choses encore. Je veux revivre la vie que j'ai d\u00fb reporter.<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

Name:\u00a0 Dilek Age: \u00a039 Country: \u00a0Turkey LGMD Sub-Type: \u00a0LGMD 2D […]<\/p>","protected":false},"author":3,"featured_media":8594,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[108],"class_list":["post-8593","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d-turkey"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Dilek - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2024\/09\/27\/individual-with-lgmd-dilek\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dilek - 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