{"id":8762,"date":"2025-02-25T21:24:53","date_gmt":"2025-02-25T21:24:53","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=8762"},"modified":"2025-02-25T21:24:53","modified_gmt":"2025-02-25T21:24:53","slug":"individual-with-lgmd-tamara","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2025\/02\/25\/individual-with-lgmd-tamara\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Tamara"},"content":{"rendered":"

\"<\/p>\n

 <\/p>\n

NAME: Tamara \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 AGE: 41
\nPAYS : \u00c9tats-Unis
\nLGMD SUB-TYPE:\u00a0 LGMD 2B\/R2 Dysferlin-related<\/p>\n

AT WHAT AGE WERE YOU DIAGNOSED?<\/p>\n

I was diagnosed at the age of 27 years old.<\/p>\n

WHAT WERE YOUR FIRST SYMPTOMS?<\/p>\n

I noticed that I was having trouble going up stairs and getting on my tip toes.<\/p>\n

DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD?<\/p>\n

My younger brother was diagnosed after me based off of my diagnosis.<\/p>\n

WHAT DO YOU FIND TO BE THE GREATEST CHALLENGES IN LIVING WITH LGMD?<\/p>\n

The progression can be challenging. Right, now is the pain from pressure from being in a wheelchair and or in the bed.<\/p>\n

WHAT IS YOUR GREATEST ACCOMPLISHMENT?<\/p>\n

Finding God in the midst of my circumstances and turning my situation into a chance to advocate, becoming Ms. Wheelchair Kansas, and then becoming Ms. Wheelchair America is on the list as well but 2nd to God is my family.<\/p>\n

HOW HAS LGMD INFLUENCED YOU INTO BECOMING THE PERSON YOU ARE TODAY?<\/p>\n

LGMD had been a driving force to becoming a better advocate and to being a more empathetic person.<\/p>\n

WHAT DO YOU WANT THE WORLD TO KNOW ABOUT LGMD?<\/p>\n

LGMD isn\u2019t a death sentence. That there is life to live even with the diagnosis.<\/p>\n

IF YOUR LGMD COULD BE \u201cCURED\u201d TOMORROW, WHAT WOULD BE THE FIRST THING THAT YOU WOULD WANT TO DO?<\/p>\n

I would just go on a walk with my dog.<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

  NAME: Tamara \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 […]<\/p>","protected":false},"author":3,"featured_media":8763,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-8762","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Tamara - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2025\/02\/25\/individual-with-lgmd-tamara\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Tamara - 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