{"id":898,"date":"2015-06-25T11:14:20","date_gmt":"2015-06-25T16:14:20","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=898"},"modified":"2015-06-25T11:14:20","modified_gmt":"2015-06-25T16:14:20","slug":"rod","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/06\/25\/rod\/","title":{"rendered":"INDIVIDU AVEC LGMD : Rod"},"content":{"rendered":"

06\/25\/2015:<\/strong><\/p>\n

Nom<\/strong>: Rod\u00a0\u00a0 L'\u00e2ge<\/strong>: 65 Yrs. \u00c2ge : 65 ans\"LGMD2L<\/a><\/p>\n

Pays<\/strong>: \u00c9tats-Unis<\/p>\n

LGMD Sous-type<\/strong>: LGMD2L \/ Anoctaminopathie<\/p>\n

\u00a0<\/strong><\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 49 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

Mes premiers sympt\u00f4mes ont \u00e9t\u00e9 des difficult\u00e9s \u00e0 monter les escaliers et une faiblesse des mollets.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n

Non, je suis le seul membre de ma famille \u00e0 avoir re\u00e7u un diagnostic de LGMD.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

Les plus grands d\u00e9fis pos\u00e9s par mon LGMD2L sont les suivants : 1) une mobilit\u00e9 r\u00e9duite et 2) l'impossibilit\u00e9 de pratiquer les sports que j'aime comme le surf, le ski de neige et le ski nautique.<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

Ma plus grande r\u00e9ussite, ce sont mes deux merveilleuses filles, matures et magnifiques !<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Vivre avec le LGMD m'a montr\u00e9 le chemin de la force, de la patience et de l'empathie.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Je veux que le monde entier sache que la LGMD existe et ce qu'elle est. La plupart des gens n'en ont jamais entendu parler.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

La premi\u00e8re chose que je ferais si ma LGMD \u00e9tait gu\u00e9rie demain serait d'aller dans la r\u00e9gion de Slick Rock dans l'Utah et de faire une longue randonn\u00e9e... avec un peu de p\u00eache \u00e0 la mouche en rivi\u00e8re \u00e0 la fin !<\/p>","protected":false},"excerpt":{"rendered":"

06\/25\/2015: Name:\u00a0 Rod\u00a0\u00a0 Age: 65 Yrs. Old Country: United States […]<\/p>","protected":false},"author":1,"featured_media":899,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,49],"tags":[48,50,16],"class_list":["post-898","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2l","tag-anoctaminopathy","tag-lgmd2l","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Rod<\/title>\n<meta name=\"description\" content=\"Rod, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/06\/25\/rod\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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