{"id":990,"date":"2015-08-18T11:15:27","date_gmt":"2015-08-18T16:15:27","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=990"},"modified":"2015-08-18T11:15:27","modified_gmt":"2015-08-18T16:15:27","slug":"martin","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/08\/18\/martin\/","title":{"rendered":"INDIVIDUELLE AVEC LGMD : Martin"},"content":{"rendered":"

08\/18\/2015<\/strong><\/p>\n

Nom<\/strong>: Martin \u00a0AGE<\/strong>: 42 ans\"LGMD2A<\/a><\/p>\n

Pays<\/strong>: Royaume-Uni<\/p>\n

LGMD Sous-type<\/strong>: LGMD2A \/ Calpa\u00efnopathie<\/p>\n

 <\/p>\n

\u00c0 quel \u00e2ge avez-vous \u00e9t\u00e9 diagnostiqu\u00e9 ?<\/strong>:<\/p>\n

J'ai \u00e9t\u00e9 diagnostiqu\u00e9e \u00e0 l'\u00e2ge de 23 ans.<\/p>\n

Quels ont \u00e9t\u00e9 vos premiers sympt\u00f4mes ?<\/strong>:<\/p>\n

J'ai fait une chute dans un garage, je me suis d\u00e9bo\u00eet\u00e9 le genou et cela ne s'est pas r\u00e9par\u00e9 dans les d\u00e9lais pr\u00e9vus.<\/p>\n

Avez-vous d'autres membres de votre famille atteints de LGMD ?<\/strong><\/p>\n

Oui, mon fr\u00e8re a\u00een\u00e9 est \u00e9galement atteint de LGMD.<\/p>\n

Quels sont, selon vous, les plus grands d\u00e9fis \u00e0 relever pour vivre avec le LGMD ?<\/strong>:<\/p>\n

Mes plus grands d\u00e9fis sont de monter les escaliers et d'essayer de faire comprendre aux gens \u00e0 quel point il est difficile d'\u00eatre une personne handicap\u00e9e ambulante qui est d\u00e9termin\u00e9e \u00e0 rester debout le plus longtemps possible. (et qui vacille un peu)<\/p>\n

Quelle est votre plus grande r\u00e9ussite ?<\/strong>:<\/p>\n

J'ai r\u00e9alis\u00e9 que je pouvais \u00e9crire sur la dystrophie musculaire et que les gens m'\u00e9coutaient aussi ! J'ai continu\u00e9 \u00e0 sensibiliser le public et \u00e0 collecter des fonds vitaux pour la recherche, en me rendant au Parlement, en sensibilisant les personnalit\u00e9s du sport et de la t\u00e9l\u00e9vision \u00e0 ces maladies via les m\u00e9dias sociaux, en \u00e9tant reconnu et r\u00e9compens\u00e9 par MDUK pour tous mes efforts de sensibilisation et de collecte de fonds pour la recherche, en changeant de carri\u00e8re pour \u00eatre en mesure d'aider les autres, en \u00e9tant le p\u00e8re de trois filles formidables, en essayant d'\u00eatre un bon mod\u00e8le et de rester positif tout le temps.<\/p>\n

Comment le LGMD vous a-t-il influenc\u00e9 pour que vous deveniez la personne que vous \u00eates aujourd'hui ?<\/strong><\/p>\n

Paradoxalement, je pense que la LGMD m'a rendu plus fort que je ne l'aurais jamais imagin\u00e9. Je suis extr\u00eamement d\u00e9termin\u00e9 \u00e0 faire conna\u00eetre ces maladies \u00e0 tout le monde et \u00e0 faciliter la vie de beaucoup d'autres personnes \u00e0 l'avenir.<\/p>\n

Que voulez-vous que le monde sache sur le LGMD ?<\/strong>:<\/p>\n

Le fait qu'elle existe serait un bon d\u00e9but ! Ce n'est qu'apr\u00e8s mon diagnostic et des ann\u00e9es plus tard, lorsque j'ai commenc\u00e9 \u00e0 parler de la maladie, que je me suis rendu compte que ma famille, mes amis et la soci\u00e9t\u00e9 en g\u00e9n\u00e9ral n'avaient jamais entendu parler d'AUCUN type ou souche de dystrophie musculaire et cela doit changer ; il est imp\u00e9ratif que les gens connaissent ces maladies.<\/p>\n

Si votre LGMD pouvait \u00eatre \"gu\u00e9rie\" demain, quelle serait la premi\u00e8re chose que vous souhaiteriez faire ?<\/strong>:<\/p>\n

Courir sur une plage aussi vite que possible (pensez au film \"Chariots of fire\" et \u00e0 la bande-son de Vangelis !) et ensuite faire un gros c\u00e2lin \u00e0 toutes mes filles et \u00e0 ma femme.<\/p>\n

Pour lire d'autres \"LGMD Spotlight Interviews\" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web \u00e0 l'adresse suivante : https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

08\/18\/2015 Name: Martin \u00a0AGE: 42 yrs. old Country: United Kingdom […]<\/p>","protected":false},"author":1,"featured_media":991,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,20],"class_list":["post-990","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-kingdom"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Martin<\/title>\n<meta name=\"description\" content=\"Martin, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2015\/08\/18\/martin\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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