{"id":1004,"date":"2015-09-08T10:17:31","date_gmt":"2015-09-08T15:17:31","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1004"},"modified":"2015-09-08T10:17:31","modified_gmt":"2015-09-08T15:17:31","slug":"shelley","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/","title":{"rendered":"INDIVIDUO CON LGMD: Shelley"},"content":{"rendered":"

09\/08\/2015<\/p>\n

 <\/p>\n

Nome<\/strong>: Shelley ET\u00c0: 50\"LGMD2A<\/a><\/p>\n

PAESE<\/strong>: Canada<\/p>\n

Sottotipo LGMD<\/strong>: LGMD2A \/ Calpainopatia<\/p>\n

A che et\u00e0 \u00e8 stata fatta la diagnosi<\/strong>:<\/p>\n

Mi \u00e8 stata diagnosticata all'et\u00e0 di 11 anni.<\/p>\n

Quali sono stati i primi sintomi<\/strong>:<\/p>\n

I miei primi sintomi sono stati camminare sulle punte dei piedi e avere difficolt\u00e0 a salire le scale.<\/p>\n

Avete altri familiari affetti da LGMD:<\/strong><\/p>\n

S\u00ec, tutti i miei fratelli sono affetti. Mia sorella Michele e mio fratello Giovanni hanno entrambi la LGMD2A.<\/p>\n

Quali sono, secondo lei, le sfide pi\u00f9 grandi da affrontare nella convivenza con la LGMD?<\/strong>:<\/p>\n

Una delle sfide pi\u00f9 grandi dei miei vent'anni \u00e8 stata quella di essere fisicamente pi\u00f9 debole e incapace di avere figli, di partorire e di portare in grembo il bambino.<\/p>\n

\u00c8 stato anche difficile trovare un impiego significativo nonostante la laurea e il diploma. Anche i datori di lavoro e i dipendenti che si rifiutano di comprendere le esigenze di una persona disabile hanno rappresentato una sfida.<\/p>\n

Qual \u00e8 il suo pi\u00f9 grande risultato<\/strong>:<\/p>\n

Uno dei miei pi\u00f9 grandi successi \u00e8 stato scrivere il mio libro di memorie sulla convivenza con la LGMD e aiutare gli altri a superare le loro diversit\u00e0. Anche la laurea \u00e8 stata un traguardo.<\/p>\n

In che modo la LGMD l'ha influenzata nel diventare la persona che \u00e8 oggi:<\/strong><\/p>\n

Non do per scontate le cose che posso fare. Uso la mia disabilit\u00e0 per educare gli altri attraverso le mie memorie e i miei discorsi ispirati.<\/p>\n

Cosa volete che il mondo sappia della LGMD?<\/strong>:<\/p>\n

La LGMD priva le persone della forza dei muscoli volontari, ma non influisce sull'intelletto. Avere una disabilit\u00e0 fisica pu\u00f2 essere molto frustrante, ma essere giudicati dagli altri a causa di una disabilit\u00e0 pu\u00f2 essere molto peggio.<\/p>\n

Se la vostra LGMD potesse essere \"curata\" domani, quale sarebbe la prima cosa che vorreste fare?<\/strong>:<\/p>\n

Mi mettevo un paio di pattini da figura e pattinavo per ore. Quando mi \u00e8 stato diagnosticato, 39 anni fa, i tendini della corda del tallone si erano allungati (a causa dello sviluppo di contratture) e non potevo pi\u00f9 pattinare. Mi si spezz\u00f2 il cuore!<\/p>\n

Per leggere altre \"interviste LGMD Spotlight\" o per proporsi come volontari per una prossima intervista, visitate il nostro sito web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

09\/08\/2015   Name:\u00a0 \u00a0 Shelley \u00a0\u00a0\u00a0AGE:\u00a0 50 COUNTRY: \u00a0\u00a0\u00a0Canada LGMD […]<\/p>","protected":false},"author":1,"featured_media":1005,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,38,15],"class_list":["post-1004","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-canada","tag-lgmd2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Shelley<\/title>\n<meta name=\"description\" content=\"Shelley, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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