Quali sono stati i primi sintomi<\/strong>:<\/p>\nI primi sintomi sono stati la difficolt\u00e0 a stare in piedi sulle punte dei piedi e la necessit\u00e0 di aggrapparsi a un corrimano dopo essere saliti per 2 piani.<\/p>\n
Avete altri familiari affetti da LGMD:<\/strong><\/p>\nSiamo una coppia di gemelli identici affetti da distrofia muscolare degli arti. Non ci sono precedenti familiari nelle ultime 5 generazioni.<\/p>\n
Quali sono, secondo lei, le sfide pi\u00f9 grandi da affrontare nella convivenza con la LGMD?<\/strong>:<\/p>\nLa nostra sfida pi\u00f9 grande \u00e8 superare le paure, crescere con questa malattia progressiva e rimanere positivi. Gitika ha dovuto abbandonare la sua carriera di successo e diventare casalinga. Gopika continua a dare ripetizioni presso un centro educativo. Prima insegnava nelle classi superiori di una scuola rinomata.<\/p>\n
Qual \u00e8 il suo pi\u00f9 grande risultato<\/strong>:<\/p>\nIl nostro pi\u00f9 grande risultato \u00e8 stato quello di riuscire a convivere con questa malattia e a lavorare con entusiasmo alle nostre faccende quotidiane, nonostante le numerose delusioni.<\/p>\n
In che modo la LGMD l'ha influenzata nel diventare la persona che \u00e8 oggi:<\/strong><\/p>\nEntrambi siamo diventati pi\u00f9 tolleranti nei confronti delle persone e delle situazioni, perch\u00e9 abbiamo dovuto lasciar andare le nostre inibizioni e chiedere sostegno pi\u00f9 volte.<\/p>\n
Cosa volete che il mondo sappia della LGMD?<\/strong>:<\/p>\nSpesso, in assenza di un feedback visivo esterno, diventa difficile per le persone comprendere il livello di disabilit\u00e0 (a meno che non si utilizzi una sedia a rotelle) di questa malattia. Vogliamo che il mondo si appassioni allo stesso modo ai pazienti affetti da LGMD e che fornisca alcuni benefici come quelli concessi alle altre persone affette da questa malattia.<\/p>\n
Se la vostra LGMD potesse essere \"curata\" domani, quale sarebbe la prima cosa che vorreste fare?<\/strong>:<\/p>\nGitika vorrebbe riprendere la sua carriera e partire per una destinazione balneare.<\/p>\n
Gopika desidera correre su un tapis roulant e riprendere gli esercizi in palestra.<\/p>\n
Per leggere altre \"interviste LGMD Spotlight\" o per proporsi come volontario per una prossima intervista, visitate il nostro sito web: https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>","protected":false},"excerpt":{"rendered":"
09\/17\/2015 NAME:\u00a0 Gitika & Gopika \u00a0\u00a0AGE: \u00a0\u00a038 yrs old COUNTRY:\u00a0 […]<\/p>","protected":false},"author":1,"featured_media":1014,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[30,23],"class_list":["post-1013","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-india","tag-lgmd2b"],"acf":[],"yoast_head":"\n
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<\/a><\/p>\n