{"id":1503,"date":"2017-07-11T11:52:08","date_gmt":"2017-07-11T16:52:08","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1503"},"modified":"2017-07-11T11:52:08","modified_gmt":"2017-07-11T16:52:08","slug":"ralph","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2017\/07\/11\/ralph\/","title":{"rendered":"INDIVIDUO CON LGMD: Ralph"},"content":{"rendered":"

Nome<\/strong>: Ralph\u00a0 Et\u00e0<\/strong>: 24 anni<\/p>\n

Paese<\/strong>: Sudafrica<\/p>\n

Sottotipo LGMD<\/strong>: LGMD2B\"\"<\/a><\/p>\n

 <\/p>\n

A che et\u00e0 \u00e8 stata fatta la diagnosi<\/strong>:<\/p>\n

Mi \u00e8 stata diagnosticata all'et\u00e0 di 23 anni, subito dopo aver terminato il corso di immersione di salvataggio.<\/p>\n

Quali sono stati i primi sintomi<\/strong>:<\/p>\n

Ho uno stile di vita molto attivo e adrenalinico e, dopo aver notato che correvo ogni giorno pi\u00f9 lentamente, ho iniziato ad allenarmi sempre pi\u00f9 duramente. Ma alla fine il mio corpo continuava a indebolirsi. Dopo aver completato la mia immersione ho deciso di chiedere aiuto.<\/p>\n

Avete altri familiari affetti da LGMD:<\/strong><\/p>\n

No, sono l'unica e la mia famiglia ha subito un duro colpo quando ha saputo della mia diagnosi. In realt\u00e0 non mi ha influenzato. L'ho vista come un'altra sfida. Ma dopo un po' la realt\u00e0 si \u00e8 fatta strada... se capite cosa intendo.<\/p>\n

Quali sono, secondo lei, le sfide pi\u00f9 grandi da affrontare nella convivenza con la LGMD?<\/strong>:<\/p>\n

Accettazione. Il fatto di non poter fare tutte le attivit\u00e0 che facevo prima \u00e8 una bella sfida. \u00c8 stato difficile rinunciare al paracadutismo, al rafting e al fuoristrada, perch\u00e9 mi impegnavano troppo le braccia e le gambe.<\/p>\n

Qual \u00e8 il suo pi\u00f9 grande risultato<\/strong>:<\/p>\n

Vivere la vita che la maggior parte delle persone sogna ed essere un'ispirazione per tutti coloro che mi circondano. Quando si ha la giusta mentalit\u00e0 e una forte volont\u00e0, non c'\u00e8 nulla che non si possa realizzare.<\/p>\n

C'\u00e8 una storia che mi ispira a vivere una vita piena. Publio Orazio Cocle era un ufficiale dell'esercito dell'antica Repubblica romana che difese notoriamente il Pons Sublicius durante la guerra tra Roma e Clusium. La poesia recita: Allora parl\u00f2 il prode Orazio, il capitano della porta: \"Ad ogni uomo su questa terra. La morte arriva presto o tardi. E come pu\u00f2 l'uomo morire meglio che affrontando temibili avversit\u00e0\".<\/p>\n

In che modo la LGMD l'ha influenzata nel diventare la persona che \u00e8 oggi:<\/strong><\/p>\n

Ho sempre creduto di essere inarrestabile. Da quando ho avuto la diagnosi, ho capito che sono inarrestabile. Esiste solo la vita e la morte e, scegliendo la vita, i miei sogni sono a un soffio di distanza. E intendo colmare questo divario.<\/p>\n

Cosa volete che il mondo sappia della LGMD?<\/strong>:<\/p>\n

Non guardate mai dall'alto in basso le persone che soffrono di una qualsiasi forma di malattia. La mentalit\u00e0 necessaria per convivere e superare un tale ostacolo potrebbe essere troppo forte per voi.<\/p>\n

Se la vostra LGMD potesse essere \"curata\" domani, quale sarebbe la prima cosa che vorreste fare?<\/strong>:<\/p>\n

Inizierei a correre e non mi fermerei mai finch\u00e9 non mi si spezzano le gambe, perch\u00e9 per il momento... sarei libera!<\/p>\n

Per leggere altre \"interviste LGMD Spotlight\" o per proporsi come volontari per una prossima intervista, visitate il nostro sito web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Name:\u00a0 Ralph\u00a0 Age: 24 yrs. old Country: South Africa LGMD […]<\/p>","protected":false},"author":1,"featured_media":1502,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[77],"class_list":["post-1503","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-south-africa"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Ralph - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2017\/07\/11\/ralph\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Ralph - 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