{"id":1591,"date":"2017-09-27T13:12:40","date_gmt":"2017-09-27T18:12:40","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1591"},"modified":"2017-09-27T13:12:40","modified_gmt":"2017-09-27T18:12:40","slug":"becky","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","title":{"rendered":"INDIVIDUO CON LGMD: Becky"},"content":{"rendered":"

Intervista a riflettori accesi sulla LGMD \u00a0<\/strong><\/p>\n

Nome<\/strong>: Becky \u00a0\u00a0Et\u00e0<\/strong>: 35 anni\"\"<\/a><\/p>\n

Paese:<\/strong> STATI UNITI D'AMERICA<\/p>\n

Sottotipo LGMD<\/strong>: LGMD2B<\/p>\n

 <\/p>\n

A CHE ET\u00c0 LE \u00c8 STATA DIAGNOSTICATA: <\/strong><\/p>\n

Mi \u00e8 stata diagnosticata nel 2009, all'et\u00e0 di 27 anni.<\/p>\n

QUALI SONO STATI I PRIMI SINTOMI: <\/strong><\/p>\n

I primi sintomi sono stati la difficolt\u00e0 a salire i gradini, ad alzarsi da terra o ad alzarsi da una sedia o da una toilette.<\/p>\n

HA ALTRI FAMILIARI AFFETTI DA LGMD: <\/strong><\/p>\n

Nessun altro membro della famiglia \u00e8 affetto da LGMD.<\/p>\n

QUALI SONO, SECONDO LEI, LE MAGGIORI SFIDE NEL VIVERE CON LA LGMD: <\/strong><\/p>\n

La sfida pi\u00f9 grande per me \u00e8 la parte mentale della comprensione dei miei limiti. Sapere che la mia vita non \u00e8 come l'avevo immaginata. Conoscere le cose che io e mio marito abbiamo dovuto cambiare per far fronte a questa malattia in continua evoluzione.<\/p>\n

QUAL \u00c8 IL SUO PI\u00d9 GRANDE RISULTATO: <\/strong><\/p>\n

Credo che il mio pi\u00f9 grande risultato dopo la diagnosi di questa malattia sia il mio matrimonio. Ci siamo sposati due mesi prima che iniziassi a sottopormi a tutti gli esami per determinare cosa c'era che non andava. In salute e in malattia \u00e8 arrivato molto prima di quanto avremmo mai potuto immaginare, ma oggi siamo pi\u00f9 forti grazie a questo.<\/p>\n

IN CHE MODO LA LGMD L'HA INFLUENZATA NEL DIVENTARE LA PERSONA CHE \u00c8 OGGI: <\/strong><\/p>\n

Questa malattia cambia la vita. Nonostante la mia dipendenza dalla famiglia e dagli amici, sono ancora abbastanza indipendente. Guido con i comandi manuali, sono piena di risorse per continuare a fare le cose da sola e, in un certo senso, anche se i miei muscoli sono pi\u00f9 deboli, sono pi\u00f9 forte. Non \u00e8 successo tutto in una volta. C'\u00e8 voluto del tempo per capire che sono una persona forte anche se i miei muscoli sono deboli.<\/p>\n

COSA VUOLE CHE IL MONDO SAPPIA DELLA LGMD: <\/strong><\/p>\n

Voglio che il mondo sappia e capisca che questa malattia \u00e8 cos\u00ec impegnativa. A volte il mio cervello non ricorda che non posso fare qualcosa e inizio a farlo per poi rendermi conto che non ci riesco. Voglio che sappiano che dal momento in cui una persona con LGMD si sveglia deve pensare immediatamente a come affrontare la giornata. Il mondo deve sapere che questa malattia, anche se in qualche modo invisibile, \u00e8 reale ed \u00e8 estremamente difficile da affrontare. Il fatto che qualcuno sia in giro con questa malattia non significa che stia bene o che sia guarito. Dobbiamo comunque vivere la nostra vita, anche se dietro il nostro sorriso siamo esausti o sofferenti. Il mondo dovrebbe anche sapere che ci sar\u00e0 una cura. Ci sono cos\u00ec tante persone che ci stanno lavorando e i passi avanti fatti nei pochi anni in cui mi \u00e8 stata diagnosticata la malattia sono stati enormi.<\/p>\n

SE LA VOSTRA LGM POTESSE ESSERE \"CURATA\" DOMANI, QUALE SAREBBE LA PRIMA COSA CHE VORRESTE FARE: <\/strong><\/p>\n

L'elenco \u00e8 lungo.... ma per prima cosa correrei. Le mie gambe non si muovevano cos\u00ec da tanto tempo.<\/p>\n

 <\/p>\n

* * * Per leggere altre \"interviste LGMD Spotlight\" o per proporsi come volontari per una prossima intervista, visitate il nostro sito web all'indirizzo: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d \u00a0 Name: Becky \u00a0\u00a0Age:\u00a0 35 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1590,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-1591","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSpotlight Interview\u201d \u00a0 Name: Becky \u00a0\u00a0Age:\u00a0 35 yrs. old […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2017-09-27T18:12:40+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Becky\",\"datePublished\":\"2017-09-27T18:12:40+00:00\",\"dateModified\":\"2017-09-27T18:12:40+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\"},\"wordCount\":519,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"LGMD2B; United States\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2B\"],\"inLanguage\":\"it-IT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\",\"url\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\",\"name\":\"INDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2017-09-27T18:12:40+00:00\",\"dateModified\":\"2017-09-27T18:12:40+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#breadcrumb\"},\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Becky\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"it-IT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","og_locale":"it_IT","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation","og_description":"LGMD \u201cSpotlight Interview\u201d \u00a0 Name: Becky \u00a0\u00a0Age:\u00a0 35 yrs. old […]","og_url":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2017-09-27T18:12:40+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Becky","datePublished":"2017-09-27T18:12:40+00:00","dateModified":"2017-09-27T18:12:40+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/"},"wordCount":519,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage"},"thumbnailUrl":"","keywords":["LGMD2B; United States"],"articleSection":["Individuals with LGMD - Interviews","LGMD2B"],"inLanguage":"it-IT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","url":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","name":"INDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage"},"thumbnailUrl":"","datePublished":"2017-09-27T18:12:40+00:00","dateModified":"2017-09-27T18:12:40+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#breadcrumb"},"inLanguage":"it-IT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/"]}]},{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Becky"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"it-IT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/1591","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/comments?post=1591"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/1591\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/media?parent=1591"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/categories?post=1591"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/tags?post=1591"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}