{"id":1915,"date":"2018-04-27T10:04:04","date_gmt":"2018-04-27T15:04:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1915"},"modified":"2018-04-27T10:04:04","modified_gmt":"2018-04-27T15:04:04","slug":"zia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","title":{"rendered":"INDIVIDUO CON LGMD: Zia"},"content":{"rendered":"

INTERVISTA A LGMD SPOTLIGHT<\/strong><\/p>\n

Nome<\/strong>: Zia \u00a0\u00a0Et\u00e0<\/strong>: 26\"\"<\/a><\/p>\n

Paese<\/strong>: Australia<\/p>\n

LGMD Sottotipo:<\/strong> Distrofia muscolare degli arti di tipo 2i<\/p>\n

 <\/p>\n

A CHE ET\u00c0 \u00c8 STATA FATTA LA DIAGNOSI<\/strong>:<\/p>\n

Mi \u00e8 stata diagnosticata la distrofia muscolare all'et\u00e0 di due anni. Dopo molti esami e visite mediche, all'et\u00e0 di 22 anni mi \u00e8 stata diagnosticata la distrofia muscolare degli arti di tipo 2i.<\/p>\n

QUALI SONO STATI I PRIMI SINTOMI<\/strong>:<\/p>\n

All'et\u00e0 di 1 anno, la mamma si accorse che io e la mia sorella gemella non camminavamo, non gattonavamo nemmeno correttamente, piuttosto ci muovevamo sul sedere. Fu allora che la mamma cap\u00ec che qualcosa non andava.<\/p>\n

HA ALTRI FAMILIARI AFFETTI DA LGMD:<\/strong><\/p>\n

Solo la mia sorella gemella Cyanne ha la distrofia muscolare degli arti di tipo 2i.<\/p>\n

QUALI SONO, SECONDO LEI, LE MAGGIORI SFIDE NEL VIVERE CON LA LGMD<\/strong>:<\/p>\n

Ogni giorno \u00e8 la sfida pi\u00f9 grande per me, perch\u00e9 devo affidarmi completamente a mia madre e ai miei assistenti per alzarmi dal letto al mattino e per tutto il resto, in modo da poter vivere la mia vita.<\/p>\n

QUAL \u00c8 IL SUO PI\u00d9 GRANDE RISULTATO<\/strong>:<\/p>\n

Ho raggiunto molti traguardi nella mia vita e molti altri ne raggiunger\u00f2! Il mio pi\u00f9 grande traguardo sarebbe quello di poter studiare. Attualmente sto studiando un Certificato IV in Servizi legali. Nel 2016 ho conseguito il Certificate IV in Small Business Management e ho avviato la mia attivit\u00e0 di editing e correzione di bozze chiamata Wondrous Words with Zia. Ho anche un Advanced Diploma in Arts (Professional Writing), un Certificate in Professional Editing and Proofreading e un Society of Editors (SA) Award for Highest Achievement in Editing. Ho anche avuto il piacere di lavorare in biblioteca per 6 mesi con persone straordinarie. Sono anche attivamente coinvolta nella comunit\u00e0. Io e altre 15 persone facciamo parte del Comitato consultivo giovanile (YAC). Lavoriamo a stretto contatto con i membri del Consiglio, partecipiamo alle riunioni del Consiglio, esprimiamo le nostre preoccupazioni e opinioni per i giovani locali di Whyalla e pianifichiamo e organizziamo eventi.<\/p>\n

IN CHE MODO LA LGMD L'HA INFLUENZATA NEL DIVENTARE LA PERSONA CHE \u00c8 OGGI:<\/strong><\/p>\n

Mi concentro su ci\u00f2 che posso fare piuttosto che su ci\u00f2 che non posso fare. Il mio motto \u00e8: \"Faccio quello che posso e amo quello che posso fare!\".<\/p>\n

COSA VOLETE CHE IL MONDO SAPPIA DELLA LGMD?<\/strong>:<\/p>\n

Vorrei che il mondo sapesse che vivere con la LGMD \u00e8 impegnativo. La LGMD influisce sul vostro<\/p>\n

muscoli non la tua mente e che sono ancora in grado di far parte della vita di tutti i giorni.<\/p>\n

SE LA VOSTRA LGM POTESSE ESSERE \"CURATA\" DOMANI, QUALE SAREBBE LA PRIMA COSA CHE VORRESTE FARE?<\/strong>:<\/p>\n

Io correvo, correvo, correvo, correvo, correvo e... beh, credo che abbiate capito il concetto, no?<\/p>\n

 <\/p>\n

* * * Per leggere altre \"interviste LGMD Spotlight\" o per proporsi come volontari per una prossima intervista, visitate il nostro sito web all'indirizzo https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>\n

* * * Vi invitiamo a mettere MI PIACE, COMMENTARE e CONDIVIDERE questo post per contribuire a sensibilizzare l'opinione pubblica sulla LGMD!<\/p>","protected":false},"excerpt":{"rendered":"

LGMD SPOTLIGHT INTERVIEW Name: Zia \u00a0\u00a0Age: 26 Country: Australia LGMD […]<\/p>","protected":false},"author":1,"featured_media":1913,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[96],"class_list":["post-1915","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-australia"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD SPOTLIGHT INTERVIEW Name: Zia \u00a0\u00a0Age: 26 Country: Australia LGMD […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2018-04-27T15:04:04+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Zia\",\"datePublished\":\"2018-04-27T15:04:04+00:00\",\"dateModified\":\"2018-04-27T15:04:04+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\"},\"wordCount\":484,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"LGMD2i; Australia\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2I\"],\"inLanguage\":\"it-IT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\",\"url\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\",\"name\":\"INDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2018-04-27T15:04:04+00:00\",\"dateModified\":\"2018-04-27T15:04:04+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#breadcrumb\"},\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Zia\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"it-IT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","og_locale":"it_IT","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation","og_description":"LGMD SPOTLIGHT INTERVIEW Name: Zia \u00a0\u00a0Age: 26 Country: Australia LGMD […]","og_url":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2018-04-27T15:04:04+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Zia","datePublished":"2018-04-27T15:04:04+00:00","dateModified":"2018-04-27T15:04:04+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/"},"wordCount":484,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage"},"thumbnailUrl":"","keywords":["LGMD2i; Australia"],"articleSection":["Individuals with LGMD - Interviews","LGMD2I"],"inLanguage":"it-IT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","url":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","name":"INDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage"},"thumbnailUrl":"","datePublished":"2018-04-27T15:04:04+00:00","dateModified":"2018-04-27T15:04:04+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#breadcrumb"},"inLanguage":"it-IT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/"]}]},{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Zia"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"it-IT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/1915","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/comments?post=1915"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/1915\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/media?parent=1915"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/categories?post=1915"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/tags?post=1915"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}