{"id":2254,"date":"2018-09-18T21:34:38","date_gmt":"2018-09-19T02:34:38","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2254"},"modified":"2018-09-18T21:34:38","modified_gmt":"2018-09-19T02:34:38","slug":"aric","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2018\/09\/18\/aric\/","title":{"rendered":"INDIVIDUO CON LGMD: Aric"},"content":{"rendered":"

Intervista a riflettori accesi sulla LGMD<\/strong><\/span><\/p>\n

Nome<\/strong><\/span>:\u00a0 Aric \u00a0\u00a0Et\u00e0<\/strong>: 22 anni\"\"<\/a><\/span><\/p>\n

Paese<\/strong>: Stati Uniti<\/span><\/p>\n

LSottotipo GMD<\/strong>: LGMD2B<\/span><\/p>\n

 <\/p>\n

A che et\u00e0 \u00e8 stata fatta la diagnosi<\/strong>:<\/span><\/p>\n

Mi \u00e8 stata diagnosticata all'et\u00e0 di 21 anni.<\/span><\/p>\n

Quali sono stati i primi sintomi<\/strong>:<\/span><\/p>\n

I miei primi sintomi sono stati l'impossibilit\u00e0 di salire le scale o di stare in piedi sulla punta dei piedi.<\/span><\/p>\n

Avete altri familiari affetti da LGMD:<\/strong><\/span><\/p>\n

Io non lo faccio.<\/span><\/p>\n

Quali sono, secondo lei, le sfide pi\u00f9 grandi da affrontare nella convivenza con la LGMD?<\/strong>:<\/span><\/p>\n

Nella mia giornata normale, ho difficolt\u00e0 a salire le scale e ad uscire dall'auto, cose a cui la maggior parte delle persone non penserebbe mai. Questa credo sia la sfida pi\u00f9 grande: cercare di aiutare le persone a capire meglio cosa stanno passando le persone come me. \u00c8 difficile descrivere perch\u00e9 non riesco a svolgere le normali attivit\u00e0 quotidiane come facevo prima.<\/span><\/p>\n

Qual \u00e8 il suo pi\u00f9 grande risultato<\/strong>:<\/span><\/p>\n

Negli ultimi anni ho ottenuto risultati sportivi e accademici mentre frequentavo la scuola superiore. Nei pochi lavori che ho svolto ho raggiunto obiettivi che nessun altro giovane si \u00e8 mai avvicinato. Onestamente penso che il mio pi\u00f9 grande risultato sia quello di non rinunciare alla lotta che sto affrontando. Questa terribile malattia pu\u00f2 davvero togliere molto a una persona, la forza e il messaggio che devo dire a me stessa ogni giorno solo per alzarmi dal letto sono il mio pi\u00f9 grande risultato. Continuer\u00f2 a lottare per una vita migliore per me e per gli altri malati, sono ancora molto giovane e credo di poter fare la differenza in questo mondo.<\/span><\/p>\n

In che modo la LGMD l'ha influenzata nel diventare la persona che \u00e8 oggi:<\/strong><\/span><\/p>\n

La LGMD mi ha trasformato in una persona pi\u00f9 forte e l'ironia di questa affermazione \u00e8 piuttosto divertente. Considero ogni giorno come una benedizione, ho recentemente creato il mio team per un evento locale sulla MD e sto attualmente lavorando al mio evento! Voglio solo creare un posto migliore e dare speranza a tutti i bambini e gli adulti che vivono questa situazione.<\/span><\/p>\n

Cosa volete che il mondo sappia della LGMD?<\/strong>:<\/span><\/p>\n

Voglio solo che il mondo sappia la lotta che affrontiamo, quanto pu\u00f2 essere difficile continuare a vivere la vita di tutti i giorni. Voglio che il mondo sappia.<\/span><\/p>\n

Se la vostra LGMD potesse essere \"curata\" domani, quale sarebbe la prima cosa che vorreste fare?<\/strong>:<\/span><\/p>\n

Se domani fossi guarito, sinceramente parlerei solo di corsa, inviterei tutta la mia famiglia e i miei amici e correremmo il pi\u00f9 lontano possibile come Forest Gump. Rideremmo e piangeremmo per tutto il percorso. Il mondo saprebbe sicuramente che sono un <\/span>curato uomo!<\/span><\/p>\n

 <\/p>\n

Per leggere altre \"interviste LGMD Spotlight\" o per proporsi come volontari per una prossima intervista, visitate il nostro sito web. <\/span>a: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” Name:\u00a0 Aric \u00a0\u00a0Age:\u00a0 22 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":2253,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-2254","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Aric - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2018\/09\/18\/aric\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Aric - 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