{"id":2303,"date":"2018-10-08T09:01:34","date_gmt":"2018-10-08T14:01:34","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2303"},"modified":"2018-10-08T09:01:34","modified_gmt":"2018-10-08T14:01:34","slug":"dan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2018\/10\/08\/dan\/","title":{"rendered":"INDIVIDUO CON LGMD: Dan"},"content":{"rendered":"

Intervista con i riflettori della LGMD<\/strong><\/p>\n

Nome<\/strong>: Dan \u00a0Et\u00e0<\/strong>: 40 anni. Vecchio\u00a0\u00a0\"\"<\/a><\/p>\n

Paese<\/strong>: Stati Uniti<\/p>\n

Sottotipo LGMD<\/strong>: LGMD2i<\/p>\n

A che et\u00e0 \u00e8 stata fatta la diagnosi<\/strong>:<\/p>\n

Mi \u00e8 stata diagnosticata all'et\u00e0 di 30 anni.<\/p>\n

Quali sono stati i primi sintomi<\/strong>:<\/p>\n

Il mio primo sintomo fu la debolezza delle gambe. Ricordo di aver calpestato un rotolo di moquette e di essere caduta a terra perch\u00e9 la mia gamba aveva ceduto. Camminavo con un'andatura insolita. Inoltre, non ero in grado di sedermi senza afferrare le gambe per tirarmi su.<\/p>\n

Avete altri familiari affetti da LGMD: <\/strong><\/p>\n

No, sono l'unica in famiglia con la LGMD.<\/p>\n

Quali sono, secondo lei, le sfide pi\u00f9 grandi da affrontare nella convivenza con la LGMD?<\/strong>:<\/p>\n

Sicuramente le scale sono la mia sfida pi\u00f9 grande in questo momento. In effetti, qualsiasi gradino con un'alzata superiore a 3\u2033 \u00e8 estremamente difficile o non va bene. All'inizio compensavo la debolezza delle gambe usando le braccia sulla ringhiera per salire le scale, ma negli ultimi anni la forza delle braccia \u00e8 stata compromessa.<\/p>\n

Qual \u00e8 il suo pi\u00f9 grande risultato<\/strong>:<\/p>\n

Ho molti piccoli trionfi che ho portato a termine. Uno di questi \u00e8 stato riuscire ad attraversare il ponte di Brooklyn a New York. Il mio pi\u00f9 grande risultato, per\u00f2, \u00e8 stato accettare e abbracciare la mia condizione (LGMD), perch\u00e9 cos\u00ec facendo mi si sono aperte molte pi\u00f9 porte e possibilit\u00e0 nella mia vita. Ho imparato che la mia condizione non definisce chi sono come persona.<\/p>\n

In che modo la LGMD l'ha influenzata nel diventare la persona che \u00e8 oggi: <\/strong><\/p>\n

La LGMD mi ha insegnato molte cose nella mia vita, la pi\u00f9 grande delle quali \u00e8 la pazienza. Sono sempre stata una persona paziente, ma ho imparato che le cose non mi accadono secondo i miei tempi, ma quando sono pronte.<\/p>\n

Cosa volete che il mondo sappia della LGMD?<\/strong>:<\/p>\n

    \n
  1. Che la distrofia muscolare della cintura degli arti non \u00e8 un capo di abbigliamento.<\/li>\n
  2. Che la LGMD \u00e8 semplicemente una prova, tutti affrontiamo una sorta di prova nella vita, la mia \u00e8 la LGMD. \u00c8 una questione di \"scelta\" su come reagire e su cosa fare. Non ho il diritto di fare meno di chiunque altro. S\u00ec, ho la distrofia muscolare della cintura degli arti, ma non mi avr\u00e0 mai.<\/li>\n<\/ol>\n

    Se la vostra LGMD potesse essere \"curata\" domani, quale sarebbe la prima cosa che vorreste fare?<\/strong>:<\/p>\n

    Io andrei a correre!<\/p>\n

    Per leggere altre \"interviste LGMD Spotlight\" o per proporsi come volontari per una prossima intervista, visitate il nostro sito web: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

    LGMD \u201cSpotlight interview\u201d Name:\u00a0 Dan \u00a0Age:\u00a0 40 Yrs. 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