{"id":2722,"date":"2019-04-29T10:19:08","date_gmt":"2019-04-29T15:19:08","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2722"},"modified":"2019-04-29T10:19:08","modified_gmt":"2019-04-29T15:19:08","slug":"individual-with-lgmd-hasan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/","title":{"rendered":"INDIVIDUO CON LGMD: Hasan"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"INTERVISTA SPOTLIGHT\"<\/strong><\/p>\n\n\n\n

Nome<\/strong>: Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0ET\u00c0<\/strong>: 34 anni<\/p>\n\n\n\n

Paese<\/strong>: Pakistan<\/p>\n\n\n\n

Sottotipo LGMD<\/strong>:\nSconosciuto<\/p>\n\n\n\n

A che et\u00e0 \u00e8 stata fatta la diagnosi<\/strong>:<\/p>\n\n\n\n

Mi \u00e8 stata diagnosticata all'et\u00e0 di 19 anni<\/p>\n\n\n\n

Quali sono stati i primi sintomi<\/strong>:<\/p>\n\n\n\n

Ho iniziato ad avvertire dolori e crampi, camminata ondulatoria, curvatura della colonna vertebrale\ncurvatura ....<\/p>\n\n\n\n

Avete altri familiari affetti da LGMD:<\/strong><\/p>\n\n\n\n

S\u00ec, anche due sorelle e un fratello sono affetti da questa patologia.<\/p>\n\n\n\n

Quali sono, secondo lei, le maggiori sfide\nnel vivere con la LGMD<\/strong>:<\/p>\n\n\n\n

Beh, perdere la vita indipendente credo sia la pi\u00f9 grande\nsfide nella mia vita. La cosa principale \u00e8 che i luoghi del mio paese non sono per lo pi\u00f9\nnon sono adatti alle sedie a rotelle e la gente pensa sempre che io abbia la poliomielite. Tuttavia, mi capita di\npensare ai vecchi tempi in cui facevo molte cose che ora non sono in grado di fare.\n\u00e8 un vero peccato per me. <\/p>\n\n\n\n

Le persone non capiscono i vostri bisogni e le vostre esigenze nella mia\ncorso della vita quotidiana. Pertanto, dobbiamo guidarle.<\/p>\n\n\n\n

Qual \u00e8 il suo pi\u00f9 grande risultato<\/strong>:<\/p>\n\n\n\n

Dal mio punto di vista, ora ho trovato un lavoro da sogno, che voglio fare nella mia vita.\nfare nella mia vita e ora amo molto il mio lavoro. Ho iniziato i sintomi quasi\nquasi al termine dei miei studi. Quindi, credo che questo sia uno dei\nrealizzazione nella mia vita.<\/p>\n\n\n\n

In che modo la LGMD l'ha influenzata nel diventare la persona che\npersona che siete oggi:<\/strong><\/p>\n\n\n\n

In tutta onest\u00e0, mi ha fatto cambiare la mia vita.\ntutta la mia vita. Ho imparato molto dopo la diagnosi di questa condizione e ho dovuto\naccettarla. Uno degli elementi principali della mia vita ora \u00e8 la pazienza. <\/p>\n\n\n\n

Cosa volete che il mondo sappia della LGMD?<\/strong>:<\/p>\n\n\n\n

Cercate di capire la nostra malattia invece di giudicarci.\nLa vita \u00e8 bella e si viene una volta sola. Quindi, godetevi ogni giorno e non sentitevi male o gi\u00f9 di\no gi\u00f9 di morale per quello che siete. <\/p>\n\n\n\n

Non esitate a fare domande su di noi.<\/p>\n\n\n\n

Se la vostra LGMD potesse essere \"curata\" domani, quale sarebbe la prima cosa che vorreste fare?\nsarebbe la prima cosa che vorreste fare<\/strong>:<\/p>\n\n\n\n

Voglio andare a trovare i miei familiari pi\u00f9 stretti per sorprenderli che\nloro che posso ricominciare a camminare. <\/p>\n\n\n\n

Per leggere altre \"Interviste LGMD Spotlight\nInterviste\" o per proporsi come volontari per una prossima intervista,\nvisitate il nostro sito web all'indirizzo: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 \u00a0\u00a0\u00a0 Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0AGE:\u00a0\u00a0 34 years old […]<\/p>","protected":false},"author":1,"featured_media":2723,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[],"class_list":["post-2722","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Hasan - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Hasan - 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