{"id":3332,"date":"2020-07-07T21:55:22","date_gmt":"2020-07-08T02:55:22","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3332"},"modified":"2024-02-09T14:24:36","modified_gmt":"2024-02-09T14:24:36","slug":"individual-with-lgmd-eric","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2020\/07\/07\/individual-with-lgmd-eric\/","title":{"rendered":"INDIVIDUO CON LGMD: Eric"},"content":{"rendered":"
\"\"<\/figure><\/div>\n\n\n\n

LGMD \"INTERVISTA SPOTLIGHT\" <\/strong><\/p>\n\n\n\n

Nome<\/strong>: Eric\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Et\u00e0<\/strong>: 23 anni<\/p>\n\n\n\n

Paese<\/strong>: STATI UNITI D'AMERICA   <\/p>\n\n\n\n

Sottotipo LGMD<\/strong>: LGMD 2B\/R2 legato alla disferlina<\/p>\n\n\n\n

A che et\u00e0 \u00e8 stata fatta la diagnosi<\/strong>:<\/p>\n\n\n\n

All'et\u00e0 di due anni mi \u00e8 stata diagnosticata erroneamente una miopia muscolare. Due decenni dopo, mi \u00e8 stata diagnosticata con precisione la LGMD.                                 <\/p>\n\n\n\n

Quali sono stati i primi sintomi<\/strong>:<\/p>\n\n\n\n

I miei primi sintomi sono stati: ritardo nel parlare, camminare male e non riuscire a stare seduta.<\/p>\n\n\n\n

Ha altri familiari affetti da LGMD?<\/strong>:<\/strong><\/p>\n\n\n\n

No, sono l'unica in famiglia con la LGMD.<\/p>\n\n\n\n

Quali sono, secondo lei, le sfide pi\u00f9 grandi da affrontare nella convivenza con la LGMD?<\/strong>:<\/p>\n\n\n\n

Ci sono diverse sfide, la pi\u00f9 grande per me in questo momento \u00e8 salire le scale.<\/p>\n\n\n\n

Qual \u00e8 il suo pi\u00f9 grande risultato<\/strong>:<\/p>\n\n\n\n

Il mio pi\u00f9 grande risultato sarebbe la creazione e la registrazione della mia organizzazione no-profit, che si chiama Deletethewordcant. Inoltre, sto per conseguire un master in psicologia.<\/p>\n\n\n\n

In che modo la LGMD l'ha influenzata nel diventare la persona che \u00e8 oggi<\/strong>:<\/strong><\/p>\n\n\n\n

Mi ha influenzato perch\u00e9 ho dovuto essere pi\u00f9 forte e pi\u00f9 resistente con la scuola, i bulli, le attivit\u00e0 quotidiane e molto altro.<\/p>\n\n\n\n

Cosa volete che il mondo sappia della LGMD?<\/strong>:<\/p>\n\n\n\n

Il mondo dovrebbe sapere che, indipendentemente dal fatto che siate affetti da LGMD o meno, dovete sempre credere in voi stessi. Inoltre, per alcune cose potreste avere difficolt\u00e0 o potrebbe volerci pi\u00f9 tempo, ma non arrendetevi mai. Dite sempre che ce la posso fare!<\/p>\n\n\n\n

Se la vostra LGMD potesse essere \"curata\" domani, quale sarebbe la prima cosa che vorreste fare?<\/strong>:<\/p>\n\n\n\n

Se domani mi curassi, scalerei la cima della montagna pi\u00f9 alta.<\/p>\n\n\n\n

Per leggere altre \"interviste LGMD Spotlight\" o per proporsi come volontari per una prossima intervista, visitate il nostro sito web: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

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