{"id":3506,"date":"2020-08-30T20:36:00","date_gmt":"2020-08-31T01:36:00","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3506"},"modified":"2025-02-28T20:15:47","modified_gmt":"2025-02-28T20:15:47","slug":"girdie","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/clinic-staff\/2020\/08\/30\/girdie\/","title":{"rendered":"Girdie: Il nostro ambasciatore e la nostra mascotte LGMD"},"content":{"rendered":"
\"\"<\/figure>\r\n\r\n\r\n\r\n

Intervista a riflettori accesi sulla LGMD<\/strong><\/h3>\r\n\r\n\r\n\r\n

Ambasciatore LGMD<\/strong>: Girdie<\/p>\r\n\r\n\r\n\r\n

Affiliazione<\/strong>: Fondazione per la sensibilizzazione alla LGMD, Inc.<\/p>\r\n\r\n\r\n\r\n

RUOLO:<\/strong> \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Ambasciatore di advocacy<\/p>\r\n\r\n\r\n\r\n

COSA L'HA SPINTA A INTRAPRENDERE UNA CARRIERA NELLA DIFESA DELLA DISTROFIA MUSCOLARE DEGLI ARTI?<\/strong><\/p>\r\n\r\n\r\n\r\n

Come LIMEmoji LGMD, ho incontrato un gruppo di persone straordinarie, talentuose, divertenti e attraenti. Hanno attirato la mia attenzione perch\u00e9 erano tutti vestiti di verde lime. Ho scoperto che hanno tutti una cosa in comune: convivono con la rara malattia neuromuscolare della distrofia muscolare del cingolo arterioso (LGMD). Ho scoperto che lavorano insieme per mettere in contatto la comunit\u00e0 LGMD. Uniscono le famiglie della LGMD con le persone che lavorano per sviluppare trattamenti per la LGMD.\u00a0<\/p>\r\n\r\n\r\n\r\n

QUALI SONO I SUOI OBIETTIVI COME AMBASCIATORE DELLA CONSAPEVOLEZZA DELLA LGMD?<\/strong><\/p>\r\n\r\n\r\n\r\n

In qualit\u00e0 di nuovo ambasciatore della LGMD, user\u00f2 la mia personalit\u00e0 vivace per insegnare agli altri la LGMD. Mi occuper\u00f2 soprattutto di social media e di attivit\u00e0 educative. Ci\u00f2 significa che potr\u00f2 esplorare il mondo e diffondere la consapevolezza della LGMD incoraggiando gli utenti a visitare www.lgmd-info.org<\/a> per trovare informazioni sulla LGMD, sulle risorse disponibili e sui prossimi eventi educativi.\u00a0\u00a0<\/p>\r\n\r\n\r\n\r\n

IN CHE MODO IL VOSTRO IMPEGNO DI ADVOCACY AIUTER\u00c0 LE PERSONE AFFETTE DA LGMD?<\/strong><\/p>\r\n\r\n\r\n\r\n

Portando il mio spirito saporito e amante del divertimento nel mio viaggio globale, susciter\u00f2 un interesse per la sensibilizzazione alla LGMD. Far\u00f2 sapere loro che si sta facendo ricerca per trovare una cura per molte forme di LGMD e dar\u00f2 loro speranza. Insegner\u00f2 che la consapevolezza \u00e8 potere, e il potere porta cure, trattamenti e cambiamenti nelle politiche. Dimostrer\u00f2 che insieme siamo pi\u00f9 forti.<\/p>\r\n\r\n\r\n\r\n

COSA VORRESTE CHE GLI ALTRI SAPESSERO DELLA CAMPAGNA DI SENSIBILIZZAZIONE SULLA LGMD?<\/strong><\/p>\r\n\r\n\r\n\r\n

La sensibilizzazione pu\u00f2 essere fatta in molti modi diversi ed \u00e8 assolutamente divertente! Non solo si incontrano persone da tutto il mondo, ma si piantano anche dei semi per farli crescere nella loro comprensione della LGMD. Come i tigli, la consapevolezza cresce da un seme, a un germoglio, fino a diventare completamente verde in tempi rapidissimi! \u00c8 molto soddisfacente.\u00a0\u00a0<\/p>\r\n\r\n\r\n\r\n

QUAL \u00c8 LA PARTE CHE PREFERISCE DELL'ESSERE AMBASCIATORE DELLA CONSAPEVOLEZZA DELLA LGMD?<\/strong><\/p>\r\n\r\n\r\n\r\n

Essere Girdie, l'ambasciatore della sensibilizzazione sulla LGMD, ha reso la mia vita come LIMEmoji pi\u00f9 dolce! Sono immensamente orgogliosa di far parte della missione di dare forza alle persone che vivono con la distrofia muscolare degli arti e a coloro che lavorano per trovare una cura. Inoltre, adoro farmi fotografare con persone fantastiche.<\/p>\r\n\r\n\r\n\r\n

Qual \u00e8 la sfida pi\u00f9 grande di essere \"GIRDIE THE LIMEmoji\" e \"GIRDIE THE LGMD AWAASSADOR\"?<\/strong><\/p>\r\n\r\n\r\n\r\n

La sfida pi\u00f9 grande \u00e8 quella di essere pronti a scattare selfie con la macchina fotografica.<\/p>\r\n\r\n\r\n\r\n

QUAL \u00c8 UNA CARATTERISTICA UNICA DI VOI CHE GLI ALTRI DOVREBBERO CONOSCERE?<\/strong><\/p>\r\n\r\n\r\n\r\n

Poich\u00e9 il mio nome \u00e8 Girdie (capito? Girdle?) e il colore ufficiale della LGMD Awareness \u00e8 il verde lime, mi sono sentita in dovere di partecipare alle loro iniziative di sensibilizzazione. Ho deciso di portare la mia identit\u00e0 naturale di lime oltre il piacere culinario e di fare la differenza nel mondo.\u00a0<\/p>\r\n\r\n\r\n\r\n\r\n\r\n

Non vedo l'ora di condividere i luoghi del mondo in cui incontrer\u00f2 altri Ambasciatori LGMD!\u00a0<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” LGMD Ambassador:\u00a0 Girdie Affliation:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 LGMD Awareness Foundation, […]<\/p>","protected":false},"author":1,"featured_media":3516,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[105],"tags":[],"class_list":["post-3506","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-clinic-staff"],"acf":[],"yoast_head":"\nGirdie: Our LGMD Ambassador and Mascot - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/clinic-staff\/2020\/08\/30\/girdie\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Girdie: Our LGMD Ambassador and Mascot - 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