{"id":412,"date":"2015-01-06T21:59:11","date_gmt":"2015-01-07T03:59:11","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=138"},"modified":"2015-01-06T21:59:11","modified_gmt":"2015-01-07T03:59:11","slug":"138","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/","title":{"rendered":"INDIVIDUO CON LGMD: Martijn"},"content":{"rendered":"

01\/06\/2015:<\/p>\n

NOME:<\/strong> Martijn\u00a0\"LGMD2A<\/a>\u00a0\u00a0\u00a0 <\/span><\/p>\n

ET\u00c0:<\/strong> 23
\n<\/span><\/p>\n

PAESE:<\/strong> Paesi Bassi
\n<\/span><\/p>\n

Sottotipo LGMD<\/strong>: LGMD 2A \/ Calpainopatia
\n<\/span><\/p>\n

A CHE ET\u00c0 LE \u00c8 STATA DIAGNOSTICATA:<\/strong>\u00a0 All'incirca intorno al mio 15\u00b0 compleanno.<\/span><\/span><\/p>\n

QUALI SONO STATI I PRIMI SINTOMI:<\/strong>
\nI primi sintomi erano visibili fin da quando ero piccola. Strisciavo come un granchio ed ero fisicamente \"diversa\" dai miei coetanei. Praticavo diversi sport, come ginnastica, pallavolo, judo e tennis. Ma le mie prestazioni diminuivano a causa della continua progressione della debolezza muscolare nel mio corpo.<\/p>\n

HA ALTRI FAMILIARI AFFETTI DA LGMD: \u00a0 <\/strong>No.<\/p>\n

QUALI SONO, SECONDO LEI, LE MAGGIORI SFIDE NEL VIVERE CON LA LGMD:<\/strong>
\nI problemi pi\u00f9 pratici sono per me pi\u00f9 gravi. Per esempio, camminare da solo su una strada con le mattonelle del marciapiede storte \u00e8 piuttosto impegnativo. Richiede molta attenzione e mi stanco di farlo. Nella maggior parte dei casi decido di usare una sedia a rotelle se devo camminare per lunghi tratti. Inoltre, spiegare la mia malattia muscolare agli estranei non \u00e8 il mio passatempo preferito. Sono un po' incerto su quante informazioni dovrei fornire. Alcuni di loro mi chiedono dell'\"intero processo\" e delle cose pi\u00f9 personali. E altri hanno paura di chiedermi qualsiasi dettaglio. Parlare della mia malattia non \u00e8 un problema per me, ma determinare quante informazioni condividere \u00e8 una sfida.<\/p>\n

QUAL \u00c8 IL SUO PI\u00d9 GRANDE RISULTATO:<\/strong>
\nHa qualche secondo? Una delle mie pi\u00f9 grandi conquiste sono il paracadutismo, lo studio e tutto ci\u00f2 che le persone sane considerano \"non possibile\" per le persone disabili. Mi piace attraversare i confini della mia vita. Sono sempre alla ricerca di avventure, come viaggiare con gli amici (in realt\u00e0 abbiamo programmato un viaggio in Islanda nel febbraio 2015) e cos\u00ec via. Oltre a questo, un risultato personale per me \u00e8 la presentazione della mia malattia muscolare e del modo in cui la sto affrontando a circa 500 studenti di medicina.<\/p>\n

IN CHE MODO LA LGMD L'HA INFLUENZATA NEL DIVENTARE LA PERSONA CHE \u00c8 OGGI:<\/strong>
\nLa LGMD ha sicuramente influenzato la mia vita! Mi ha reso pi\u00f9 maturo sotto molti aspetti. Il modo in cui gestisco i problemi e mi godo la vita \u00e8 cambiato in modo significativo dopo la diagnosi.<\/p>\n

COSA VUOLE CHE IL MONDO SAPPIA DELLA LGMD:<\/strong>
\nLe persone affette da LGMD o da qualsiasi altra malattia muscolare non sono diverse dalle persone sane, solo che a volte hanno bisogno di un po' di assistenza. Inoltre, non parlate alla persona dietro la sedia a rotelle, ma rivolgetevi direttamente alla persona sulla sedia.<\/p>\n

SE LA VOSTRA LGM POTESSE ESSERE \"CURATA\" DOMANI, QUALE SAREBBE LA PRIMA COSA CHE VORRESTE FARE:<\/strong>
\nVorrei fare Sky Diving in solitaria!<\/p>","protected":false},"excerpt":{"rendered":"

01\/06\/2015: NAME: Martijn\u00a0\u00a0\u00a0\u00a0 AGE: 23 COUNTRY: The Netherlands LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":146,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,17],"class_list":["post-412","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-netherlands"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Martijn<\/title>\n<meta name=\"description\" content=\"Martijn, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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