{"id":413,"date":"2015-01-12T22:03:55","date_gmt":"2015-01-13T04:03:55","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=141"},"modified":"2015-01-12T22:03:55","modified_gmt":"2015-01-13T04:03:55","slug":"irina","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/01\/12\/irina\/","title":{"rendered":"INDIVIDUO CON LGMD: Irina"},"content":{"rendered":"

01\/12\/2015:<\/p>\n

NOME<\/strong>: Irina\u00a0 \"LGMD2A<\/a> <\/span><\/p>\n

ET\u00c0<\/strong>: 18
\n<\/span><\/p>\n

PAESE:<\/strong> Francia
\n<\/span><\/p>\n

LGMD Sottotipo:<\/strong> LGMD 2A \/ Calpainopatia<\/span><\/p>\n

A CHE ET\u00c0 LE \u00c8 STATA DIAGNOSTICATA:<\/strong> Quando avevo 14 anni.<\/p>\n

QUALI SONO STATI I PRIMI SINTOMI:<\/strong>
\nIl primo sintomo che ho riscontrato \u00e8 stata la difficolt\u00e0 a correre.<\/p>\n

Ha altri familiari affetti da LGMD: No. <\/strong>
\n QUALI SONO, SECONDO LEI, LE MAGGIORI SFIDE NEL VIVERE CON LA LGMD:<\/strong>
\nScale... ce ne sono cos\u00ec tante! Inoltre, non sapere se le persone provano compassione o solo piet\u00e0.<\/p>\n

QUAL \u00c8 IL SUO PI\u00d9 GRANDE RISULTATO:<\/strong>
\nSono riuscita ad arrivare in cima alla Cattedrale di Santa Maria del Fiore, nota come \"Il Duomo\" in Italia. Ci sono 465 scalini estenuanti per arrivare in cima! Ma soprattutto, il mio pi\u00f9 grande risultato \u00e8 quello di essere felice e di continuare a sorridere, qualunque cosa accada.<\/p>\n

IN CHE MODO LA LGMD L'HA INFLUENZATA NEL DIVENTARE LA PERSONA CHE \u00c8 OGGI:<\/strong>
\nSapere di avere la LGMD mi ha fatto crescere o diventare pi\u00f9 matura per la mia et\u00e0. Sono diventata calma e rilassata, non lasciando che le piccole cose mi disturbino. Mi accorgo anche che mi preoccupo di meno, solo per le cose importanti. Non ho tempo per preoccuparmi delle sciocchezze.<\/p>\n

COSA VOLETE CHE IL MONDO SAPPIA DELLA LGMD?<\/strong>:
\nVoglio che la gente sappia che la malattia della LGMD esiste! Che solo perch\u00e9 qualcuno ha problemi a correre, non bisogna chiamarlo pigro. Inoltre, se una ragazza usa un bastone da passeggio probabilmente \u00e8 perch\u00e9 ne ha bisogno - non \u00e8 per apparire bella!<\/p>\n

SE LA VOSTRA LGM POTESSE ESSERE \"CURATA\" DOMANI, QUALE SAREBBE LA PRIMA COSA CHE VORRESTE FARE?<\/strong>:
\nPer correre dietro all'autobus che ho appena perso!<\/p>","protected":false},"excerpt":{"rendered":"

01\/12\/2015: NAME: Irina\u00a0 AGE: 18 COUNTRY: France LGMD Sub-Type: LGMD […]<\/p>","protected":false},"author":1,"featured_media":144,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,18,15],"class_list":["post-413","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-france","tag-lgmd2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Irina<\/title>\n<meta name=\"description\" content=\"Irina, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/01\/12\/irina\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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