{"id":418,"date":"2015-03-01T16:17:22","date_gmt":"2015-03-01T22:17:22","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=303"},"modified":"2015-03-01T16:17:22","modified_gmt":"2015-03-01T22:17:22","slug":"julianna","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/","title":{"rendered":"INDIVIDUO CON LGMD: Julianna"},"content":{"rendered":"

03\/01\/2015:<\/p>\n

NOME: Julianna ET\u00c0: 24\"LGMD2B<\/a>
\nPAESE: Stati Uniti
\nSottotipo LGMD: LGMD2B<\/p>\n

\n

A CHE ET\u00c0 LE \u00c8 STATA DIAGNOSTICATA:
\nHo iniziato a manifestare i primi sintomi all'et\u00e0 di 16 anni, ma mi \u00e8 stata diagnosticata solo all'et\u00e0 di 22 anni.<\/p>\n

QUALI SONO STATI I PRIMI SINTOMI:
\nIl mio primo sintomo \u00e8 stato la tensione dei tendini. Il mio medico mi ha mandato a fare fisioterapia, ma non \u00e8 servito a molto. In seguito, abbiamo scoperto che sarebbe stato meglio allungare i tendini d'Achille. Mi sono operata e sono stata ingessata per due mesi su ciascuna gamba, una alla volta. Mentre mi riprendevo e ricominciavo la fisioterapia, il mio fisioterapista not\u00f2 che non stavo recuperando la forza. Mi mand\u00f2 da un neurologo per ulteriori esami.<\/p>\n

Ha altri familiari affetti da LGMD: no<\/p>\n

QUALI SONO, SECONDO LEI, LE MAGGIORI SFIDE NEL VIVERE CON LA LGMD:
\nTrovo che la sfida pi\u00f9 grande nel vivere con la LGMD sia che le persone hanno difficolt\u00e0 a capirla. Non \u00e8 facile descrivere la LGMD a qualcuno. Molti pensano che io stia esagerando o addirittura mentendo sul fatto di avere questa malattia. Sono ancora mobile e quindi non pensano che io abbia delle difficolt\u00e0. Vorrei che le persone fossero pi\u00f9 aperte a conoscere queste malattie e a capire quanto sia difficile.<\/p>\n

QUAL \u00c8 IL SUO PI\u00d9 GRANDE RISULTATO:
\nIl mio pi\u00f9 grande risultato \u00e8 stato la laurea. Mi destreggiavo tra il lavoro scolastico e gli esami medici che dovevo fare. A volte era difficile tenere il passo, ma sono riuscita a farcela e a partecipare alle organizzazioni scolastiche. Sono entrata a far parte della Gamma Sigma Sigma (una confraternita di servizio) e sono stata presidente del consiglio degli eventi del Governo degli Studenti Uniti. Ho avuto l'opportunit\u00e0 di organizzare eventi come un oratore prestigioso e un concerto. La cintura degli arti non mi ha impedito di perseguire ci\u00f2 che volevo veramente. Camminare su quel palco con quel diploma in mano \u00e8 stata una sensazione che non dimenticher\u00f2 mai.<\/p>\n

IN CHE MODO LA LGMD L'HA INFLUENZATA NEL DIVENTARE LA PERSONA CHE \u00c8 OGGI:
\nLa LGMD mi ha insegnato a essere pi\u00f9 comprensiva nei confronti degli altri e delle loro storie. Tutti hanno una storia che non conosciamo. Mi ha anche insegnato molto su me stessa. Ho imparato cosa posso fare nonostante i piccoli inconvenienti. Il senso dell'umorismo \u00e8 sicuramente indispensabile per superare i momenti difficili. Ho imparato a essere paziente e ad accettare il fatto che tutti hanno bisogno di una mano!<\/p>\n

COSA VUOLE CHE IL MONDO SAPPIA DELLA LGMD:
\nVoglio che le persone sappiano che solo perch\u00e9 non si vede, non significa che non ci sia! Cercate di essere pazienti e comprensivi con le persone che vi spiegano questa malattia. Per noi \u00e8 difficile spiegarla, cos\u00ec come lo \u00e8 per voi capirla.<\/p>\n

SE LA VOSTRA LGM POTESSE ESSERE \"CURATA\" DOMANI, QUALE SAREBBE LA PRIMA COSA CHE VORRESTE FARE:
\nLa prima cosa che vorrei fare \u00e8 viaggiare senza tutte le difficolt\u00e0 del caso. Vorrei andare in spiaggia e nuotare senza bisogno di aiuto. Sarebbe bello poter andare dove voglio senza dover pianificare ogni minimo dettaglio prima del tempo; solo non preoccuparmi e divertirmi!<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

03\/01\/2015: NAME: Julianna AGE: 24 COUNTRY: United States LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":304,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[23,16],"class_list":["post-418","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Julianna<\/title>\n<meta name=\"description\" content=\"Julianna, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - Julianna\" \/>\n<meta property=\"og:description\" content=\"Julianna, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-03-01T22:17:22+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Julianna\",\"datePublished\":\"2015-03-01T22:17:22+00:00\",\"dateModified\":\"2015-03-01T22:17:22+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/\"},\"wordCount\":550,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"LGMD2B\",\"United States\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2B\"],\"inLanguage\":\"it-IT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/\",\"url\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/\",\"name\":\"LGMD Spotlight Interview - Julianna\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2015-03-01T22:17:22+00:00\",\"dateModified\":\"2015-03-01T22:17:22+00:00\",\"description\":\"Julianna, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#breadcrumb\"},\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Julianna\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"it-IT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LGMD Spotlight Interview - Julianna","description":"Julianna, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/","og_locale":"it_IT","og_type":"article","og_title":"LGMD Spotlight Interview - Julianna","og_description":"Julianna, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","og_url":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2015-03-01T22:17:22+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Julianna","datePublished":"2015-03-01T22:17:22+00:00","dateModified":"2015-03-01T22:17:22+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/"},"wordCount":550,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#primaryimage"},"thumbnailUrl":"","keywords":["LGMD2B","United States"],"articleSection":["Individuals with LGMD - Interviews","LGMD2B"],"inLanguage":"it-IT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/","url":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/","name":"LGMD Spotlight Interview - Julianna","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#primaryimage"},"thumbnailUrl":"","datePublished":"2015-03-01T22:17:22+00:00","dateModified":"2015-03-01T22:17:22+00:00","description":"Julianna, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#breadcrumb"},"inLanguage":"it-IT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/"]}]},{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/03\/01\/julianna\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Julianna"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"it-IT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/418","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/comments?post=418"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/418\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/media?parent=418"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/categories?post=418"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/tags?post=418"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}