{"id":5397,"date":"2021-07-27T00:20:35","date_gmt":"2021-07-27T00:20:35","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5397"},"modified":"2024-02-09T14:24:03","modified_gmt":"2024-02-09T14:24:03","slug":"lgmd-organization-uildm","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/","title":{"rendered":"ORGANIZZAZIONE LGMD: Gruppo UILDM LGMD"},"content":{"rendered":"

\"Uildm\"<\/p>\n

ORGANIZZAZIONE<\/strong>: Gruppo UILDM LGMD<\/p>\n

SITO WEB:<\/strong> https:\/\/www.uildm.org\/<\/a><\/p>\n

FACEBOOK: <\/strong>https:\/\/www.facebook.com\/uildm.naz<\/a><\/p>\n

TWITTER: <\/strong>https:\/\/twitter.com\/UILDMnazionale<\/a><\/p>\n

SU QUALE SOTTOTIPO DI LGMD SI CONCENTRA LA VOSTRA ORGANIZZAZIONE: <\/strong><\/p>\n

Il Gruppo UILDM LGMD non si concentra su uno specifico sottotipo di LGMD. Si riferisce a tutti i tipi di LGMD.<\/p>\n

COSA HA ISPIRATO LA CREAZIONE DELLA VOSTRA ORGANIZZAZIONE<\/strong>:<\/p>\n

Siamo stati ispirati dall'esigenza delle persone che vivono con la distrofia muscolare del cingolo artoide di far parte di un gruppo rappresentativo che potesse dar loro voce, poich\u00e9 \u00e8 difficile per loro trovare risposte alle loro esigenze e molto spesso sono dimenticati dalle istituzioni.<\/p>\n

QUAL \u00c8 LA MISSIONE DELLA VOSTRA ORGANIZZAZIONE:<\/strong><\/p>\n

Le attivit\u00e0 del Gruppo UILDM LGMD si concentrano su: - incoraggiare lo sviluppo di una comunit\u00e0 LGMD; - fornire informazioni scientifiche e mediche sulla LGMD; - sostenere lo scambio di esperienze e consigli tra persone che condividono la stessa condizione.<\/p>\n

QUALI SERVIZI FORNISCE LA VOSTRA ORGANIZZAZIONE:<\/strong><\/p>\n

Abbiamo creato due gruppi WhatsApp: uno per fornire notizie e aggiornamenti sul mondo LGMD, l'altro \u00e8 un gruppo aperto di auto-aiuto dove i membri possono scambiarsi idee, esperienze e consigli. Organizziamo regolarmente incontri online per fornire scambi tra pari e condividere informazioni sulle attivit\u00e0 del gruppo. Organizziamo anche webinar online con specialisti del mondo scientifico e medico in accordo con il nostro Comitato Scientifico.<\/p>\n

DI COSA \u00c8 PI\u00d9 ORGOGLIOSA LA VOSTRA ORGANIZZAZIONE:<\/strong><\/p>\n

Il gruppo \u00e8 molto motivato e continua a crescere di numero. I membri sono disposti ad aiutarsi a vicenda e spesso trovano insieme soluzioni a problemi comuni.<\/p>\n

COSA VOLETE CHE IL MONDO SAPPIA DELLA VOSTRA ORGANIZZAZIONE?<\/strong>:<\/p>\n

Vogliamo che le persone sappiano che il Gruppo UILDM LGMD esiste ed \u00e8 a disposizione di tutta la comunit\u00e0 LGMD. Pi\u00f9 il nostro gruppo cresce, pi\u00f9 possiamo dare forza alle nostre richieste.<\/p>\n

COME SI PU\u00d2 PARTECIPARE AL SOSTEGNO DELLA VOSTRA ORGANIZZAZIONE:<\/strong><\/p>\n

Le persone possono essere coinvolte scrivendo all'indirizzo e-mail gruppocingoli@uildm.it e chiedendo di entrare a far parte del nostro gruppo WhatsApp. Possono inoltre trovare aggiornamenti sulle nostre attivit\u00e0 sul sito web e sulla pagina Facebook della UILDM.<\/p>\n

QUAL \u00c8 IL MODO MIGLIORE PER CONTATTARE LA VOSTRA ORGANIZZAZIONE:<\/strong><\/p>\n

Le persone possono contattarci via e-mail all'indirizzo gruppocingoli@uildm.it<\/a><\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5421,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[94,95],"tags":[],"class_list":["post-5397","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-organization-interview","category-organization"],"acf":[],"yoast_head":"\nLGMD ORGANIZATION: UILDM LGMD Group - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD ORGANIZATION: UILDM LGMD Group - LGMD Awareness Foundation\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/it\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2021-07-27T00:20:35+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:24:03+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/UILDM-1.png\" \/>\n\t<meta property=\"og:image:width\" content=\"960\" \/>\n\t<meta property=\"og:image:height\" content=\"720\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"aoss@charter.net\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"aoss@charter.net\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/\"},\"author\":{\"name\":\"aoss@charter.net\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511\"},\"headline\":\"LGMD ORGANIZATION: UILDM LGMD Group\",\"datePublished\":\"2021-07-27T00:20:35+00:00\",\"dateModified\":\"2024-02-09T14:24:03+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/\"},\"wordCount\":508,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/UILDM-1.png\",\"articleSection\":[\"LGMD Organization - Interviews\",\"ORGANIZATION\"],\"inLanguage\":\"it-IT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/\",\"url\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/\",\"name\":\"LGMD ORGANIZATION: UILDM LGMD Group - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/UILDM-1.png\",\"datePublished\":\"2021-07-27T00:20:35+00:00\",\"dateModified\":\"2024-02-09T14:24:03+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#breadcrumb\"},\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#primaryimage\",\"url\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/UILDM-1.png\",\"contentUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/UILDM-1.png\",\"width\":960,\"height\":720,\"caption\":\"Uildm\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"LGMD ORGANIZATION: UILDM LGMD Group\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"it-IT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511\",\"name\":\"aoss@charter.net\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g\",\"caption\":\"aoss@charter.net\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LGMD ORGANIZATION: UILDM LGMD Group - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/it\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/","og_locale":"it_IT","og_type":"article","og_title":"LGMD ORGANIZATION: UILDM LGMD Group - LGMD Awareness Foundation","og_url":"https:\/\/www.lgmd-info.org\/it\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2021-07-27T00:20:35+00:00","article_modified_time":"2024-02-09T14:24:03+00:00","og_image":[{"width":960,"height":720,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/UILDM-1.png","type":"image\/png"}],"author":"aoss@charter.net","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"aoss@charter.net","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/"},"author":{"name":"aoss@charter.net","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511"},"headline":"LGMD ORGANIZATION: UILDM LGMD Group","datePublished":"2021-07-27T00:20:35+00:00","dateModified":"2024-02-09T14:24:03+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/"},"wordCount":508,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/UILDM-1.png","articleSection":["LGMD Organization - Interviews","ORGANIZATION"],"inLanguage":"it-IT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/","url":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/","name":"LGMD ORGANIZATION: UILDM LGMD Group - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/UILDM-1.png","datePublished":"2021-07-27T00:20:35+00:00","dateModified":"2024-02-09T14:24:03+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#breadcrumb"},"inLanguage":"it-IT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/"]}]},{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#primaryimage","url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/UILDM-1.png","contentUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/UILDM-1.png","width":960,"height":720,"caption":"Uildm"},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/zh\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"LGMD ORGANIZATION: UILDM LGMD Group"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"it-IT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511","name":"aoss@charter.net","image":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g","caption":"aoss@charter.net"}}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/5397","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/comments?post=5397"}],"version-history":[{"count":1,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/5397\/revisions"}],"predecessor-version":[{"id":5425,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/5397\/revisions\/5425"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/media\/5421"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/media?parent=5397"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/categories?post=5397"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/tags?post=5397"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}