{"id":5855,"date":"2022-08-13T22:20:30","date_gmt":"2022-08-13T22:20:30","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5855"},"modified":"2024-02-09T14:23:52","modified_gmt":"2024-02-09T14:23:52","slug":"5855","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/","title":{"rendered":"INDIVIDUO CON LGMD: Arthur"},"content":{"rendered":"

\"<\/p>\n

Nome<\/strong>: Art\u00f9<\/p>\n

Et\u00e0<\/strong>: \u00a013<\/p>\n

Paese<\/strong>: Francia<\/p>\n

Sottotipo LGMD<\/strong>: LGMD 2C\/R5 legato al gamma sarcoglicano<\/p>\n

A che et\u00e0 \u00e8 stata fatta la diagnosi<\/strong>?<\/p>\n

Mi \u00e8 stata diagnosticata all'et\u00e0 di 9 anni.<\/p>\n

Quali sono stati i primi sintomi?<\/strong><\/p>\n

Fin da piccola ho avuto problemi a correre e ad alzarmi da terra, ma anche a salire le scale.<\/p>\n

\u00a0<\/strong>Ha altri familiari affetti da LGMD?<\/strong><\/p>\n

No, ho una sorella ma non ha la LGMD.<\/p>\n

Quali sono, secondo lei, le sfide pi\u00f9 grandi da affrontare nella convivenza con la LGMD?<\/strong>?<\/p>\n

Non \u00e8 facile far capire le nostre difficolt\u00e0 quando siamo bambini, spesso si crede che non vogliamo fare le cose che non possiamo fare perch\u00e9 il nostro corpo funziona in modo diverso.<\/p>\n

Nonostante la malattia, rimango sempre felice e ambizioso e spero di rimanere in piedi il pi\u00f9 a lungo possibile.<\/p>\n

Qual \u00e8 il suo pi\u00f9 grande risultato?<\/strong><\/p>\n

Cerco di fare sport al mio livello e al mio ritmo, soprattutto il calcio, amo la squadra francese e soprattutto Parigi. Purtroppo non posso correre. Finch\u00e9 i miei muscoli mi reggeranno, continuer\u00f2 ad andare avanti.<\/p>\n

In che modo la LGMD l'ha influenzata nel diventare la persona che \u00e8 oggi?<\/strong><\/p>\n

Sono una persona combattiva, non voglio arrendermi di fronte alla malattia, voglio superarla. Trovo che le persone malate abbiano una grande forza interiore che \u00e8 importante mantenere per non indebolirsi. Ho conosciuto altre persone con LGMD e tutte hanno questa forza interiore e mi piace.<\/p>\n

Cosa volete che il mondo sappia della LGMD?<\/strong>?<\/p>\n

Vorrei che le persone sapessero e capissero la gravit\u00e0 della malattia e i rischi che ci possono essere, anche se attualmente non \u00e8 molto visibile quando siamo bambini. \u00c8 difficile spiegarlo perch\u00e9 gli altri pensano che non vogliamo fare le cose e questo pu\u00f2 fare molto male mentalmente.<\/p>\n

Se la vostra LGMD potesse essere \"curata\" domani, quale sarebbe la prima cosa che vorreste fare?<\/strong>?<\/p>\n

Se sar\u00f2 guarito, voglio correre in un grande rettilineo il pi\u00f9 a lungo possibile. Voglio anche diventare un grande calciatore ed essere il pi\u00f9 veloce in campo. Ma voglio anche continuare a lottare per altri bambini affetti da malattie rare. Spero che le cure arrivino presto.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5856,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[110],"class_list":["post-5855","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-france"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Arthur - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Arthur - 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