{"id":5884,"date":"2022-09-14T01:28:29","date_gmt":"2022-09-14T01:28:29","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5884"},"modified":"2024-02-09T14:23:51","modified_gmt":"2024-02-09T14:23:51","slug":"individual-with-lgmd-boonsub","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/lgmd2a\/2022\/09\/14\/individual-with-lgmd-boonsub\/","title":{"rendered":"INDIVIDUO CON LGMD: Boonsub"},"content":{"rendered":"

\"<\/p>\n

Nome<\/strong>: Boonsub<\/p>\n

Et\u00e0<\/strong>: \u00a031<\/p>\n

Paese<\/strong>: THAILANDIA<\/p>\n

Sottotipo LGMD<\/strong>: LGMD 2A\/R1 legato a calpaina3<\/p>\n

A che et\u00e0 \u00e8 stata fatta la diagnosi<\/strong>?<\/p>\n

Mi \u00e8 stata diagnosticata all'et\u00e0 di 20 anni.<\/p>\n

Quali sono stati i primi sintomi?<\/strong><\/p>\n

Rabdomiolisi (dolore muscolare e urine scure) dovuta a esercizio fisico intenso.<\/p>\n

Ha altri familiari affetti da LGMD?<\/strong><\/p>\n

No, non ho nessun familiare affetto da LGMD.<\/p>\n

Quali sono, secondo lei, le sfide pi\u00f9 grandi da affrontare nella convivenza con la LGMD?<\/strong>?<\/p>\n

Da quando mi \u00e8 stata diagnosticata la malattia, correre e salire le scale \u00e8 diventato impegnativo. Pertanto, non ho la possibilit\u00e0 di partecipare con altri ad attivit\u00e0 avventurose.<\/p>\n

Qual \u00e8 il suo pi\u00f9 grande risultato?<\/strong><\/p>\n

Attualmente, il mio pi\u00f9 grande risultato \u00e8 l'istruzione..\u00a0<\/strong>Sono medico e docente di medicina. Ho anche conseguito un Master in Salute Pubblica presso la Harvard T.H. Chan School of Public Health. Inoltre, sto studiando nel programma di dottorato (Epidemiologia) presso l'Universit\u00e0 del Minnesota.<\/p>\n

In che modo la LGMD l'ha influenzata nel diventare la persona che \u00e8 oggi?<\/strong><\/p>\n

Mi rendo conto che devo convivere con la LGMD. Penso che non ci sia niente di peggio di questo. Anche se la LGMD colpisce i miei muscoli, il mio cervello sta ancora bene. Per quanto riguarda le mie capacit\u00e0, sono disposto ad aiutare gli altri, soprattutto i miei colleghi, gli studenti di medicina e gli amici. La LGMD mi insegna che la vita \u00e8 troppo breve per sprecarla. Non so per quanto tempo potr\u00f2 vivere nel mondo. Pertanto, faccio tutto ci\u00f2 che \u00e8 in mio potere.<\/p>\n

Cosa volete che il mondo sappia della LGMD?<\/strong>?<\/p>\n

La LGMD \u00e8 una malattia genetica che coinvolge i muscoli e la mente delle persone che ne sono affette. Tuttavia, ogni persona ha un potenziale e pu\u00f2 usarlo per creare un mondo meraviglioso.<\/p>\n

Ringrazio il mio istituto, gli insegnanti, gli amici e la mamma per avermi sostenuto nel tempo in ogni dimensione.<\/p>\n

Se la vostra LGMD potesse essere \"curata\" domani, quale sarebbe la prima cosa che vorreste fare?<\/strong>?<\/p>\n

Correr\u00f2!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5885,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[111],"class_list":["post-5884","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-thailand"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Boonsub - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/lgmd2a\/2022\/09\/14\/individual-with-lgmd-boonsub\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Boonsub - 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