{"id":606,"date":"2015-04-25T15:46:38","date_gmt":"2015-04-25T20:46:38","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=606"},"modified":"2015-04-25T15:46:38","modified_gmt":"2015-04-25T20:46:38","slug":"audrey","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/04\/25\/audrey\/","title":{"rendered":"INDIVIDUO CON LGMD: Audrey"},"content":{"rendered":"

04\/25\/2015<\/p>\n

NOME<\/strong>: Audrey\"LGMD2i<\/a><\/p>\n

ET\u00c0<\/strong>: 42 anni. Vecchio<\/p>\n

PAESE<\/strong>: Stati Uniti<\/p>\n

Sottotipo LGMD<\/strong>: LGMD2i<\/p>\n

A CHE ET\u00c0 \u00c8 STATA FATTA LA DIAGNOSI<\/strong>:
\nMi \u00e8 stata diagnosticata la LGMD all'et\u00e0 di 37 anni. Non ne avevo mai sentito parlare prima della diagnosi.<\/p>\n

QUALI SONO STATI I PRIMI SINTOMI<\/strong>:<\/p>\n

A vent'anni ho notato che iniziavo ad avere problemi a salire le scale, ad alzarmi da terra e a sollevare le gambe. Purtroppo non sapevo quanto stessi diventando anormalmente debole. Pensavo di essere semplicemente fuori forma o scoordinata. Quando ho avuto bisogno di fare fisioterapia per un dolore alla spalla, la fisioterapista mi ha rimandato dal mio medico perch\u00e9 ha capito che c'era qualcosa di gravemente sbagliato.<\/p>\n

HA ALTRI FAMILIARI AFFETTI DA LGMD?<\/strong>:<\/p>\n

Anche mia sorella maggiore ha la LGMD2i, ma la sua progressione \u00e8 pi\u00f9 lenta.<\/p>\n

QUALI SONO, SECONDO LEI, LE MAGGIORI SFIDE NEL VIVERE CON LA LGMD<\/strong>:<\/p>\n

La mia sfida pi\u00f9 grande \u00e8 stata quella di accettare l'aiuto senza sentirmi un peso per gli altri. Sono ancora in grado di camminare, ma ho bisogno di molto aiuto da parte della mia famiglia nella vita quotidiana. Sono cos\u00ec fortunata ad avere un sistema di supporto familiare cos\u00ec grande. A volte non riesco a credere a quanto sono fortunata!<\/p>\n

QUAL \u00c8 IL SUO PI\u00d9 GRANDE RISULTATO<\/strong>:<\/p>\n

Ho trascorso gli ultimi 23 anni facendo da madre alle mie 3 figlie. La maternit\u00e0 \u00e8 certamente il mio pi\u00f9 grande risultato.<\/p>\n

IN CHE MODO LA LGMD L'HA INFLUENZATA NEL DIVENTARE LA PERSONA CHE \u00c8 OGGI<\/strong>:<\/p>\n

La LGMD mi ha permesso di accettare semplicemente ci\u00f2 che la vita mi offre. Di fronte a questa diagnosi e a un futuro incerto, ho scoperto che sto ancora bene... Posso farcela e star\u00f2 bene!<\/p>\n

COSA VOLETE CHE IL MONDO SAPPIA DELLA LGMD?<\/strong>:<\/p>\n

Penso che sarebbe bello far conoscere la LGMD a un maggior numero di persone. La maggior parte dei medici che ho visto non ne ha mai sentito parlare.<\/p>\n

SE LA VOSTRA LGM POTESSE ESSERE \"CURATA\" DOMANI, QUALE SAREBBE LA PRIMA COSA CHE VORRESTE FARE?<\/strong>:<\/p>\n

Se domani fossi guarito, correrei. Correrei il pi\u00f9 possibile, poi salirei le scale. Aiuterei ogni persona a cui \u00e8 caduto qualcosa a raccoglierlo. Pianterei e curerei un bel giardino. Non darei mai per scontate queste gambe!<\/p>","protected":false},"excerpt":{"rendered":"

04\/25\/2015 NAME: \u00a0Audrey AGE: 42 Yrs. Old COUNTRY: United States […]<\/p>","protected":false},"author":1,"featured_media":607,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-606","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Audrey<\/title>\n<meta name=\"description\" content=\"Audrey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/04\/25\/audrey\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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