{"id":701,"date":"2015-05-21T11:57:37","date_gmt":"2015-05-21T16:57:37","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=701"},"modified":"2015-05-21T11:57:37","modified_gmt":"2015-05-21T16:57:37","slug":"andrea","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/05\/21\/andrea\/","title":{"rendered":"INDIVIDUO CON LGMD: Andrea"},"content":{"rendered":"

05\/21\/2015:<\/p>\n

 <\/p>\n

Nome:<\/strong>\u00a0 Andrea \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Et\u00e0<\/strong>: 17 yrs. old\"LGMD1B<\/a><\/p>\n

Paese<\/strong>: Norway<\/p>\n

Sottotipo LGMD<\/strong>: LGMD 1B \/ Laminopathy<\/p>\n

A che et\u00e0 \u00e8 stata fatta la diagnosi<\/strong>:<\/p>\n

I was about 6 months old when they discovered that something was wrong, but it wasn\u2019t until I was about 2 years old that they decided it was muscle dystrophy. I have probably had the disease my whole life. I was 7 years old when I got the diagnosis LGMD 1B.<\/p>\n

Quali sono stati i primi sintomi<\/strong>:<\/p>\n

I couldn\u2019t hold my head up when I started sitting on my own.<\/p>\n

Avete altri familiari affetti da LGMD:<\/strong><\/p>\n

No, I am the only one with LGMD in my family. Both my parents have been tested and the results showed that I didn\u2019t inherit it, it was from a mutation.<\/p>\n

Quali sono, secondo lei, le sfide pi\u00f9 grandi da affrontare nella convivenza con la LGMD?<\/strong>:<\/p>\n

The greatest challenges are that I can\u2019t do anything on my own. I need help with practically everything, like getting dressed, getting in and out of bed, and picking up stuff.<\/p>\n

Qual \u00e8 il suo pi\u00f9 grande risultato<\/strong>:<\/p>\n

My greatest accomplishment is my mind. How I have a positive look on everything.<\/p>\n

In che modo la LGMD l'ha influenzata nel diventare la persona che \u00e8 oggi:<\/strong><\/p>\n

It has made me appreciate the small pleasures and made me a very positive person.<\/p>\n

Cosa volete che il mondo sappia della LGMD?<\/strong>:<\/p>\n

I want the world to know that I am not chained to my wheelchair, the wheelchair is the most helpful aid I have. Without it I would be chained, it is my freedom. When some people see me they only see the wheelchair, the noise around me, and not me. The disease only affects my muscles and not my brain, I am a normal 17-year-old girl.<\/p>\n

Se la vostra LGMD potesse essere \"curata\" domani, quale sarebbe la prima cosa che vorreste fare?<\/strong>:<\/p>\n

I would jump, run up and down the stairs, pick up things, do all the normal things I never have been able to do!<\/p>","protected":false},"excerpt":{"rendered":"

05\/21\/2015:   Name:\u00a0 Andrea \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Age: 17 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":702,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,44],"tags":[42,43,45],"class_list":["post-701","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd1b","tag-laminopathy","tag-lgmd1b","tag-norway"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Andrea<\/title>\n<meta name=\"description\" content=\"Andrea who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/05\/21\/andrea\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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