{"id":945,"date":"2015-07-06T10:35:46","date_gmt":"2015-07-06T15:35:46","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=945"},"modified":"2015-07-06T10:35:46","modified_gmt":"2015-07-06T15:35:46","slug":"ramesh","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","title":{"rendered":"INDIVIDUO CON LGMD: Ramesh"},"content":{"rendered":"

07\/06\/2015:<\/strong>\u00a0<\/strong><\/p>\n

NOME<\/strong>: Ramesh \u00a0ET\u00c0<\/strong>: 28 anni\"LGMD2B<\/a>
\nPAESE<\/strong>: India
\nSottotipo LGMD<\/strong>: LGMD2B \/ Disferlinopatia<\/p>\n

A CHE ET\u00c0 \u00c8 STATA FATTA LA DIAGNOSI<\/strong>:
\nHo iniziato a manifestare i primi sintomi all'et\u00e0 di 19 anni, ma mi \u00e8 stata diagnosticata solo all'et\u00e0 di 22 anni.<\/p>\n

QUALI SONO STATI I PRIMI SINTOMI<\/strong>:
\nIl mio primo sintomo \u00e8 stato che, mentre andavo in ufficio, all'improvviso sono caduta. Ho consultato il mio medico, che mi ha suggerito la fisioterapia, ma non \u00e8 servita a molto. In seguito, abbiamo pensato che sarebbe stato meglio consultare un medico di Bangalore (India). Ho fatto una biopsia muscolare e nervosa e sono stata ingessata per due mesi su ogni gamba, una alla volta. Mi ha mandato da un neurologo per ulteriori esami.<\/p>\n

HA ALTRI FAMILIARI AFFETTI DA LGMD?<\/strong>: No<\/p>\n

QUALI SONO, SECONDO LEI, LE MAGGIORI SFIDE NEL VIVERE CON LA LGMD<\/strong>:
\nTrovo che la sfida pi\u00f9 grande nel vivere con la LGMD sia che le persone hanno difficolt\u00e0 a capirla. Non \u00e8 facile descrivere la LGMD a qualcuno. Molti pensano che io stia esagerando o addirittura mentendo sul fatto di avere questa malattia. Oltre alla malattia, trovo che la mancanza di accessibilit\u00e0 e l'atteggiamento sociale nei confronti delle persone disabili siano molto limitanti. Vorrei che le persone fossero pi\u00f9 aperte a conoscere queste malattie e a capire come liberarsi di questa patologia.<\/p>\n

QUAL \u00c8 IL SUO PI\u00d9 GRANDE RISULTATO<\/strong>:
\nIl mio pi\u00f9 grande risultato \u00e8 riuscire a lavorare e continuare a lavorare a modo mio.<\/p>\n

IN CHE MODO LA LGMD L'HA INFLUENZATA NEL DIVENTARE LA PERSONA CHE \u00c8 OGGI<\/strong>:
\nHo imparato ad apprezzare le persone che mi aiutano, ad avere pazienza, a mantenere la speranza e ad evitare la depressione, ad essere grata per tutto, a capire le persone che non sono nella mia stessa situazione e che si trovano in una situazione difficile, a dare valore a ci\u00f2 che ho e ad essere una risparmiatrice, a dare pi\u00f9 amore alla mia famiglia ogni giorno come se fosse l'ultimo. Ho imparato ad essere paziente e ad accettare il fatto che tutti hanno bisogno di una mano!<\/p>\n

COSA VOLETE CHE IL MONDO SAPPIA DELLA LGMD?<\/strong>:
\nAnche la maggior parte dei medici professionisti non \u00e8 a conoscenza di questa condizione, ma devono essere consapevoli di questa situazione e insegnare ai pazienti come affrontare la vita in modo sicuro e stimolante.<\/p>\n

SE LA VOSTRA LGM POTESSE ESSERE \"CURATA\" DOMANI, QUALE SAREBBE LA PRIMA COSA CHE VORRESTE FARE?<\/strong>:
\nPrima di tutto vorrei congratularmi con tutti i medici che mi hanno aiutato di persona. La cosa principale \u00e8 che vorrei aprire un blog su questa malattia e guidare e sostenere i pazienti su come superare la malattia. So come sto soffrendo con questa malattia. Non dar\u00f2 la possibilit\u00e0 ad altri di soffrire di nuovo.<\/p>","protected":false},"excerpt":{"rendered":"

07\/06\/2015:\u00a0 NAME: Ramesh \u00a0AGE: 28 yrs. old COUNTRY: India LGMD […]<\/p>","protected":false},"author":1,"featured_media":946,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[21,30,23],"class_list":["post-945","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-dysferlinopathy","tag-india","tag-lgmd2b"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Ramesh<\/title>\n<meta name=\"description\" content=\"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - Ramesh\" \/>\n<meta property=\"og:description\" content=\"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-07-06T15:35:46+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Ramesh\",\"datePublished\":\"2015-07-06T15:35:46+00:00\",\"dateModified\":\"2015-07-06T15:35:46+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\"},\"wordCount\":458,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"Dysferlinopathy\",\"India\",\"LGMD2B\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2B\"],\"inLanguage\":\"it-IT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\",\"url\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\",\"name\":\"LGMD Spotlight Interview - Ramesh\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2015-07-06T15:35:46+00:00\",\"dateModified\":\"2015-07-06T15:35:46+00:00\",\"description\":\"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#breadcrumb\"},\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Ramesh\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"it-IT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LGMD Spotlight Interview - Ramesh","description":"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","og_locale":"it_IT","og_type":"article","og_title":"LGMD Spotlight Interview - Ramesh","og_description":"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","og_url":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2015-07-06T15:35:46+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Ramesh","datePublished":"2015-07-06T15:35:46+00:00","dateModified":"2015-07-06T15:35:46+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/"},"wordCount":458,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage"},"thumbnailUrl":"","keywords":["Dysferlinopathy","India","LGMD2B"],"articleSection":["Individuals with LGMD - Interviews","LGMD2B"],"inLanguage":"it-IT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","url":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","name":"LGMD Spotlight Interview - Ramesh","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage"},"thumbnailUrl":"","datePublished":"2015-07-06T15:35:46+00:00","dateModified":"2015-07-06T15:35:46+00:00","description":"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#breadcrumb"},"inLanguage":"it-IT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/"]}]},{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Ramesh"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"it-IT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/945","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/comments?post=945"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/posts\/945\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/media?parent=945"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/categories?post=945"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/it\/wp-json\/wp\/v2\/tags?post=945"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}