{"id":967,"date":"2015-07-29T10:25:33","date_gmt":"2015-07-29T15:25:33","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=967"},"modified":"2015-07-29T10:25:33","modified_gmt":"2015-07-29T15:25:33","slug":"patricia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/07\/29\/patricia\/","title":{"rendered":"INDIVIDUO CON LGMD: Patricia"},"content":{"rendered":"

07\/29\/2015:<\/strong><\/p>\n

NOME<\/strong>: Patricia \u00a0ET\u00c0<\/strong>: 26 anni\"LGMD2A<\/a><\/p>\n

PAESE<\/strong>: Stati Uniti<\/p>\n

Sottotipo LGMD<\/strong>: LGMD2A \/ Calpainopatia<\/p>\n

 <\/p>\n

A CHE ET\u00c0 \u00c8 STATA FATTA LA DIAGNOSI<\/strong>:<\/p>\n

Mi \u00e8 stata diagnosticata la MD quando avevo 12 anni.<\/p>\n

QUALI SONO STATI I PRIMI SINTOMI<\/strong>:<\/p>\n

I primi sintomi sono stati la deambulazione con i piedi, le braccia che non vanno dritte, l'andatura zoppicante e il mancato aumento di peso.<\/p>\n

HA ALTRI FAMILIARI AFFETTI DA LGMD: <\/strong><\/p>\n

Nessuno nella mia famiglia \u00e8 affetto da distrofia muscolare o LGMD.<\/p>\n

Quali sono, secondo lei, le sfide pi\u00f9 grandi da affrontare nella convivenza con la LGMD?<\/strong>:<\/p>\n

La sfida pi\u00f9 grande \u00e8 non essere in grado di fare alcune cose come camminare, correre, alzarmi dal letto da sola, fare il bagno da sola, cucinare la cena, giocare con mio nipote sul pavimento. Tutto ci\u00f2 che faccio \u00e8 una sfida.<\/p>\n

QUAL \u00c8 IL SUO PI\u00d9 GRANDE RISULTATO<\/strong>:<\/p>\n

Il traguardo pi\u00f9 grande sarebbe quello di essermi sposata con un uomo meraviglioso e di poter presto mettere su famiglia, ma anche quello di aver ricevuto la mia sedia a rotelle e di aver potuto cucinare per la prima volta in due anni e di poter uscire all'aperto con mio marito.<\/p>\n

IN CHE MODO LA LGMD L'HA INFLUENZATA NEL DIVENTARE LA PERSONA CHE \u00c8 OGGI: <\/strong><\/p>\n

Mi ha fatto capire che, anche se le cose che posso fare sono limitate, con gli strumenti giusti posso comunque fare alcune di quelle cose, solo in modo diverso.<\/p>\n

COSA VOLETE CHE IL MONDO SAPPIA DELLA LGMD?<\/strong>:<\/p>\n

Informatevi sulla LGMD e su alcune delle lotte che le persone affrontano. Non giudicate una persona in base al suo aspetto. Ogni forma di MD ha un aspetto diverso, ma questo non fa la persona. La personalit\u00e0 fa la persona. Se vedete qualcuno in difficolt\u00e0, che sia su una sedia a rotelle o che cammini, offritevi di aiutarlo; per quanto mi riguarda, quando qualcuno mi chiede se pu\u00f2 aiutarmi, gliene sono molto grato.<\/p>\n

SE LA VOSTRA LGM POTESSE ESSERE \"CURATA\" DOMANI, QUALE SAREBBE LA PRIMA COSA CHE VORRESTE FARE?<\/strong>:<\/p>\n

Correrei pi\u00f9 veloce che posso lungo la strada e intorno all'isolato, salterei su e gi\u00f9 e forse farei anche delle capriole. Sogno il giorno in cui potr\u00f2 farlo.<\/p>","protected":false},"excerpt":{"rendered":"

07\/29\/2015: NAME: Patricia \u00a0AGE:\u00a0 26 yrs old COUNTRY: United States […]<\/p>","protected":false},"author":1,"featured_media":968,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,16],"class_list":["post-967","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Patricia<\/title>\n<meta name=\"description\" content=\"Patricia who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/it\/individuals-with-lgmd-interviews\/2015\/07\/29\/patricia\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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